My mum’s health is very up and down, she has good days and bad days and I am finding it hard to cope with. What people find helpful to deal with the emotional rollercoaster of palliative care and the unpredictability?
Hi Alo17
Welcome to our community I hope you find it both informative and supportive.
I am Steve one of the community champions and my experience of cancer is via my wife who has Leiomyosarcoma.
Something that really helped me was doing a living with less stress course. I learnt to appreciate the value of living day to day and appreciating what we have. I think possibly before hand I was probably suffering some from anticipatory grief and working out how I would cope after my wife had gone. The conscious breathing exercises were good too both for being able to take a step back when life decided to throw us another curve ball but also in helping me relax and get some sleep.
<<hugs>>
Steve
Hi
I've just joined this group and I'm definitely feeling very lost. My husband has had bowel cancel and now has neuroendocrine tumours on his liver. It's been a difficult 4 years and particularly the last 8 months with the liver diagnosis have been hard.
I go through so many different emotions and so days feel that I just can't cope.
My husband is very reluctant to talk about any of it. My grown up children live far away and we have no family nearby. I do have friends but it's difficult as I don't want to burden them, that's why I've joined this community. I feel sometimes that the people living with someone who has cancer are forgotten
Hi Pegs
Welcome to our community, I hope you find it both informative and supportive.
It is quite easy to feel close to invisible when your loved one has cancer and I know how close I came to breaking before I walked in to my local Maggies centre. It can be really helpful to find we are less alone.
Has your hisband had a needs assessment and you are carers assessment? They can be really helpful in identifying support for you both so that you will be in the best place possible when things are more difficult.
<<hugs>>
Steve
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