Awake and up all night

Gail

Thanks for getting back to me i got nothing to hide but thanks for letting me know but when i try and post something on the chat page i got no idea what to do so if I don't speak on the chat room i still look and see what you and your family go through 

That's absolutely fine lovely, just remember not to post your surname or too many giveaways about your whereabouts. 

Did you manage to find the link about your rights with work and cancer related issues? I think Jamie, another community champion, also gave good advice on what you should do. I'm afraid I'm hopeless on that subject, as my OH took early retirement due to his ill health. Are you anywhere near retirement age Stephen? xxx

Hello Gill H and Milkey 

Jamie's post is on Page 668 - link here - near the bottom of the page:

https://community.macmillan.org.uk/cancer_experiences/cancer-chat-forum/f/chat-13/295498/awake-and-up-all-night?pifragment-16837=667#pifragment-16837=668

Kind Regards - Brian.

Cheers Brian  There's been more chit chat than I thought! Xxx

My MIL is at end of life I feel like her husband has been left to cope on his own with no care plan she is currently bed bound sedated by a nurse today no help in house ie overnight she is in constant pain! Crying and screaming at time what help can we get quickly everything seems shut over the weekend please help!! 

No matter how I try I canot get out my head the fact that a usually competent and well thought of surgeon made three schoolboy errors, one of which could have serious implications. I have tried to take on board all the positivity provided by this forum,  following everyones advice but the relief lasts only a short time until the terrors return. I have complained to the hospital, contacted a solicitor and even contemplated referring the consultantto the GMC but none of this will change a single thing

 He did not inform me of vital  onformation needed by me to make an informed choice about my operation  and 14 months after the op he politely informs me that he has an apology to make in that he didnt fully read the histology report and missed that the biopsy contained a lymph node which had a 2mm adenocarcinoma. It is all too much Not one of the objectives the team set oit to achieve was achieved and the surgeon doesnt think I was important enough to do fully read a potential life threatening report

There should be a out of hours number for the community team. They can come and arrange additional pain relief if required over night. Also if you need urgent over night help as in carers, they can also arrange this with you. Although they can sort or arrange this tomorrow as they have to send a urgent referral and can not be sorted out of hours.  

Hope this helps, 

Jamie 

Evening Alan. I couldn't reply earlier as I had my OH's last care routine for the day to do. I guess we all have a cross to bear, one way or another.

Anyway love, you're obviously having a tough time getting out of this spiral, so has anyone mentioned getting some counselling? I know there are waiting lists, but don't know if there's a fast track to securing it, so maybe your GP could step in. Also, if you have a Maggie's nearby, I've heard they provide great support and you can just call in anytime.

Just a couple of suggestions lovey xxx

Evening Pinky, and welcome to our group, although I'm really sorry to hear of the dreadful time your in-laws are going through.

Hopefully, Jamie's advice will help and ringing 111 could too, as they put in referrals to the appropriate departments.

I hope you can secure some swift respite sweetheart xxx