Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • What lovely words, and I totally agree with you. It is a great distraction with what we are all dealing with. xx

  • That’s lovely. xx

  • Thanks for your lovely message, it will break my dads and Amy's hearts if I tell them. I new that this was going to happen because all I get is bad luck, I get that i am different in the way that I want to do anything to forget. It would be better for them if I just disappear.

  • Yeah, I have had that a few times. It just hits you from nowhere. I spoke to a nurse about it, and it’s fatigue 

  • Problem is, I often feel more out of it when I wake up.

  • Yeah, it’s such a strange feeling. When it first happened to me, I was thinking what is going on. 
    Just follow what your body is telling you. x

  • Adz love, it wouldn't be better for them if you disappeared - most people want to be close to their nearest and dearest in times of distress. And you're no different to most, feeling good luck has deserted you and wanting to forget the bad stuff - I'd put a bet on that all of us here have felt exactly the same, many times.

    I don't want to pressure you sweetheart, but although they'll be really gutted initially, your dad's and Amy's hearts will be bruised but not broken when they undoubtedly find out what's happened. If I was in your shoes, I'd rather tell my sister myself than have her find out from elsewhere.

    Whenever you decide what path you'd like to take, we'll still be here to listen my lovely xxx

  • Hello everyone on the chat room i came on here about 2 weeks ago have not said anything since then that's because i don't know how to do my phone my step daughter came down to day and should me how to do it so my name is Stephen, i live in a little town called pontypool in south Wales i live on top of a mounting which you can not get a signal on your phone you have to go down the bottom of the garden which is not very nice in the winter me and my missis ow my wife who is a very beautiful woman love her so much and my grandchildren and my daughters and my wife's family which between us we got 17 grandchildren which was a bit of a shock when i had kidney cancer that i had when i had a medical for my bus licence that's when the problem started i have been a bus driver with stagecoach for 26 years so i went through a bad patch with depression which i don't know what you go through when recovering from kidney cancer so i had a lot of time off work due to a lot of infection then to top it all off when i was having a bad time with having diarrhea i don't know if it was from the creon tablets i had to take for the rest of my life if so that's OK then it all started with stagecoach because i was having problems with the diarrhoea and i did not no when I would have it i had to have time off work due to the diarrhoea then when i went back to work i had a 1st warning because of the time i had off work because of the diarrhoea which is to do with my recovery from cancer as i had to take crean medication for what the cancer done to my body then i had a few more problems with my health whan recovering from cancer then i ended up with a final written worrning all because i was recovering from cancer i now that all the family on the chat room who as gone or is going through cancer my heart is thinking of you well that's enough of me stay safe 

  • Sorry that's all on the chat group i will say about me trying to speak to you lovley people still can't do it like my missus said you need to though your phone down the toilet because you don't no how to do it 

  • Hi again Stephen. I saw your original post my lovely, but you gave too much personal information and it's not encouraged. It's not yours or your wife's fault, and I advise you not to throw your phone down any toilet!

    I'm sure others will remember how you were having trouble from work about taking time off, but that was to do with issues about your cancer and how they were affecting you. I think Brian, one of our community champions, gave you a link about how you could tackle this, so if you go back several pages you should be able to find it. If not, maybe another member could help you out better than I can. Good luck hon xxx