Awake and up all night

That's really beautiful Alex. Where is it if you don't mind me asking? If you live there you're a very lucky girl ️ xxx

I am having great difficulties at the moment to get a good night's sleep, I'm coming to the end of my treatment, I had my last hormone injection towards the end of last year which means that come May all I will have to look forward to is a 3 monthly PSA test. 

• Is that it? I can't really get on with my life as it was because the radiotherapy and  hormone treatment has taken away a lot of my ability do most of what I used to do, at 77 the last thing I needed was to loose my muscles mass,  despite gym training I have seen a fast slowdown of my capabilities, lifting, running with our dogs, tending my uphill garden, even climbing the twelve steps that sent me to the doctor which led to me being with PS can be a chore now. Now with sleepless nights It seems my spiral downward is picking up, become the norm for the future, do I visit my wonderful doctor and ask her for something to help.me sleep at night, would that really help?

1. I’ve completed Surgery  to cut out most of brain tumor then radiotherapy and now steroids 
2. tumour comes back it is told and I will live max I year 
3. I’ve been unable to sleep and the I was given zopiclone sleeping pills and really helped 
4. with take it last thing and I can get 8 hours and with steroids a better appetite 

chemo won’t anything for my glioblastoma state 

Hi Safeways and a warm welcome to our group.

I read your profile and sadly, much of it echoes my OH's journey thus far, apart from his cancer, surgery and age - he's 61. Pretty much everything he had is gone now, his strength, ability to run, his job, car and ability to drive, the list goes on but above all this, he can no longer speak. So my friend, you're definitely not alone and I can fully sympathise with your current situation as we also live with limitations every day.

That's the gloomy stuff out of the way - we've got each other, and from what you wrote I know you've got your wife and family by your side, plus the medical help you need, hopefully. Life does go on, and we try to find ways round the difficulties even though it means we can't do what we used to. Hey, I can tell you he has no problems sleeping at night, and his daytime fatigue has eased to just one afternoon sleep now. It's me who can never get a full night in anymore, but I've got no intention of taking meds to make it happen, and live in hope a more normal pattern will return.

I'm really hoping once your hormone treatment ends you'll get back on track, so don't give in but maybe tell your doctor about the episodes of nodding off at importune moments. I've rambled enough but it's been one of those days today and I just wanted to let you know we all have them.

Big hugs to you and yours and I hope I've not depressed you further xxx

Hi Audrey and another warm welcome to you.

I'm so sorry to hear about what you've been through my lovely, but if you're new to the site, there are groups specific to your type of cancer. If you can't navigate to find them, a community champion will provide any appropriate links that may be of help. But always feel free to post here, anytime of the day or night, although the meds seem to help you get a good night's sleep, which is great.

Sending you big hugs sweetheart xxx

Hello all on this chat. I am not the one with Stage 4B esophageal cancer but my husband is. He is 76 years old and I am at my wits end of how to deal with this. I am up every night until 4am and somimes 5am then I have to think what to make for him to eat. He has a stent but still can only have almost liquid foods. I work from 4pn to midnight or later 5 days a week. I live as though I am in paomime mode for the last 3 months since he has been diagnosed. I just want sleep   

Wishing everyone on this chat only good news!!!

Hello sweetie and welcome to our group. You sound like me from just over a year ago, so I know exactly where you're coming from. It's no picnic being a carer, but many here realise that far more than our nearest and dearest so you're amongst friends. My OH had a total laryngectomy and couldn't eat or drink, even water, for months. When he was able to, I also had to devise menus appropriate for his new eating habits. Not easy but if your hubby has a dietitian, they should be able to give you help and advice.

You obviously need some respite, so do you have anyone to help you? There are other forums on the site like carers only and oesophagus cancer - a community champion will give you the links when they see your post. Keep posting here though, even if you just want to vent, get a break or support in general as we've got some lovely members here, always willing to listen and help.

Sending you both big hugs and hopefully you'll manage a few hours of sleep xxx

Thank you so much for not knowing who I am but you have put a smile in my heart ️ 

I just keep praying  every moment of my day! He never smoked or drank and life is so unfair. I sometimes wish it was me instead. He does not deserve this. But thank you for your kind words. Means so much! 

No problem sweetheart, and I've wished the same, many times. It's horrible for you right now but I promise, if your hubby responds to his treatment, things will improve and so will your own quality of life.

I know your mind will be constantly racing, and that's why you can't sleep, but there are solutions. Macmillan has a helpline that opens at 8am, and they'll have come across your own situation many times, so will be able to give you support. If you have a Maggie's nearby, they provide amazing advice and could help both you and your hubby through these difficult early months. Reach out to his team at the hospital, or anyone else who could give you the lift you deserve. And keep posting here for our support too. I don't want you to feel alone in all this as it's very hard and the last thing you need is to crumble, as you know how much your hubby needs you to be his rock. Why not try to relax and maybe you'll get some sleep, which you need my lovely. You've made a start and already made new friends, who I'm sure will be along later. Right now they're probably in the land of nod! Lucky them, but I suggest we both try to join them as we've got our guys to sort out in a few hours time. I'll chat any time you like - in between care routines that is! Lol. I'll bid you goodnight hon, and let's hope tomorrow (today) will be brighter xxx

Very. Wise words from you Gill h  . Hope they help . sending hugs