Awake and up all night

Managed to sleep much better last night, was up and down of course but seemed to get back off  baby steps, all progress 

Have a great day all, sending positivity

Good luck with your appointment today sending hugs.

Morning Tom Tomus 

The forum can be a bit of a challenge to navigate until you get used to it, but it gets easier! If you never need a hand with navigating anything or finding what you need, please give me a shout. This thread in the chat can be very active with lots of posts so it can be hard to keep up sometimes, but replying to people directly like you’ve done with your post here will notify the person that they’ve had a response. 

It’s quite difficult even in the Macmillan community to find many people who’ve undergone a TPE and can understand and appreciate the challenges of it so we need to stick together! I haven’t had the post surgery experiences you’ve had with your foot and neuropathy, but I’ve had some different things to contend with in the years post surgery which aren’t connected. Reading my profile might get you off to sleep if you’re finding it hard to doze off!

The hardest thing for me is my loss of mobility through my severe osteoarthritis, so I sympathise with you struggling with your own mobility. I was very impressed with you undertaking lifeboat training-that’s amazing! 

We do have a stoma support group which I’ll mention in case you haven’t seen it-

Stoma Discussion Forum

I keep an eye on this group as the community champion there, and you’d be welcome to join us. We have lots of people join who are new to living with stomas, so I’m sure you’d have lots of experience you could share. People are happy to give lots of tips and advice too-I’ve learned a lot from others even as a near 6 year veteran of this, and we’ve had many interesting questions and discussions. 

Keep posting and replying Tom, whenever you’d like to. The chat is a nice distraction from pain and other worries, especially through the night but lots of us chat throughout the day too and have found lovely new friends here. You are very welcome to be with us.

Sarah xx

Hi there,

I often seem to wake around 4:00 and getting back to sleep is often complicated. I try not to resort to doomscrolling but sometimes a question pops into my head and I know I won’t be able to rest till I’ve looked it up. Are there other night birds out there?

I took have trouble sleeping have done for a few years  so not a new thing .i like to come on here and read what has been going on .i like to talk so if you need to and i am around i would be more than happy to text sending hugs 

Good evening Britething and a very warm welcome to our expanding group, as more night owls are flying in all the time. All good, but not the sleepless nights.

I seem to have the same issue as yourself, waking up around the same time each early morning and then finding it hard to get back off. It's annoying but is what it is.

Anyway, glad you're here now and chat about anything you like, or join in with others' conversations too. Sending you hugs xxx

Hi how are things with you today hope all is well sending hugs 

Hi Lynne  

Yes, all ok here hon and hope you are too.

I reckon I'm partly to blame with poor sleep as I bought one of those cushions with a backrest and arms recently. It's so cosy that almost every time I sit in the chair, and put the footrest up, I conk out. But, after two or three times of that happening, it ruins getting off later on. Moral of this tale - don't get one of those snuggle cushions or whatever they're called xxx

Sound Coffey.how are you getting on with your Christmas preparations 

Everything's pretty much done Lynne, as Christmas will be a low-key affair for us. Just the two of us here, and I'll make the dinner for around noon as we like to eat early on. OH eats much more slowly now, so it's best not to have folk round anyway. To be honest I prefer it that way as all I can remember, from a very young age, was crowds descending every Christmas when all I wanted was to play with my toys in peace. My dad was the eldest of nine, so I'm from a seriously large family with about a million relatives. No, that's a massive exaggeration, and many of them have passed now, but my aversion to gatherings stems from a crowded house every Christmas. So, low-key it will be and luckily OH wants that too.

After my long-winded ramble, how about you my lovely? Have you got a lot coming to yours or have you been invited out? Whichever, I'm sure you'll have a lovely time. Hugs to you xxx