Reaching out :)

Bless your heart  work will be a good distraction for sure. Lean on your family, they will help carry you in this journey.  Xx

Hi , welcome to the online community, I too have an incurable diagnosis although mine was given to me 5 years ago now. It’s a lot to take in isn’t it. One of the first groups I joined on here was  Chat it is so supportive and a good place to discuss living with that diagnosis and preparations for when your not if you get my meaning, take a look by clicking on my link to see what you think. Many people in that group have been on trials, I haven’t my treatment was made available on the nhs 2 months before I needed it. I have been shielding like yourself and am still getting my groceries online, I’ve not ventured into a shop yet or had my hair cut, but I had to isolate again after the shielding ended due to my husband having a cystoscope. I find friends understand a bit more about cancer now that they have had to think about covid, but I think people on this site understand it the most.

Take care

Hello ,

I'm sorry that you find yourself in this community but you are very welcome.  Like KTatHome I was also given the incurable tag over five and a half years ago.  I am also on the incurables forum and also wanted to reassure you that you will be very welcome there and will find lots in common with the others in that forum.

I have been on a trial since the start of treatment although mine was a very low level one which just establishes the best way to deliver the established medication.  The one thing that I would say is that as part of a trial the treatment that you receive is excellent and the communication is even easier than if you were just receiving an established treatment.

The forum is an opportunity to say the things that you can't say to family or close friends as the people on there will understand where you are coming from.  I hope to see you there.

All the best,

Gragon x