Hi all,
I was told last week that I have breast cancer at age 27. I was told I have an invasive ductal carcinoma in my right breast which hasn’t spread to my lymph nodes. They say that it’s completely treatable and curable however I struggle to believe them.
I’m currently booked in for surgery on the 21st october, however I’m still waiting for the result of the her2 test this week before I have a full treatment plan in place.
My daughter is only 3 and terrified of leaving her without a mum.
I’m also still waiting to see a gynaecologist because of pelvic pain I’ve had for a few years. Back in March they found a ‘large complex cyst’ on one of my ovaries. The past few days since my breast cancer diagnosis the pain in my ovaries has been bad and causing stomach pain too. I’m so concerned that I have ovarian cancer aswell as breast cancer and finding it hard to not think negatively!
thanks for reading x
Hi
So sorry you find yourself here but you will find so much support and friendly advice from others who have all been in your shoes. The waiting is by far the worst - once you start to get more detailed results through, a plan of action will follow and that will help you to feel you are dealing with it.
I found that after each appointment I would try and do something that was positive / made me feel good even if only for a few minutes - the little things that previously wouldn’t have interested me seemed to brighten my day and it became a routine that i followed after each appointment / scan / treatment. I felt it gave me some control back. I viewed it that each appointment/ scan / treatment was Getting me closer to completing it.
It’s not easy but you will do it x
feel free to ask any questions at all Xx
Hi Mel93,
It will take time to assimilate your diagnosis. I was diagnosed with the same as you in August and am now almost 3 weeks post surgery and reconstruction. I found the waiting for results really difficult but looking back it all happened so quickly even though it didn’t feel like that at the time. Have you had your CT and Bone scans, these will assess for any secondary cancer. Have you discussed your concerns with your consultant? I’ve also had ovary pain since my daughter was born without any real explanation after many investigations. It’s thought to be cyclical changes that I expect will stop with the menopause. My daughter is four and I understand your anxieties. She has however been amazing and made me smile with her little efforts of help and care.
It really is a whirlwind of a journey and some days are better than others. I just try to do one thing a day that makes me happy, no matter how small it is.
Take care xx
Hey, thanks for responding! Glad to hear your little girl is helping you through!
I found out at my last appointment I am HER2 positive so I will now be having chemo before surgery. I have a echocardiogram next week and waiting on my appointments for my MRI and CT scan, do they check the bones on these? My consultant is also getting me in for a pelvic ultrasound! xx
Hi,
That’s good you’ll have a pelvic ultrasound too. I initially I had a CT and bone scan. The bone scan was all clear but there was an area on my spine they wanted to double check with an MRI. Fortunately it showed a degenerative disc, not metastasis.
They may have decided to give you the MRI instead of the bone scan.
I’m now waiting to see if I need radiotherapy and will start hormone therapy soon xx
Hi I had a bone scan and ct scans. Hope you are ok. When do you start chemo do you know? Have you started it already? I notice this post is a few Weeks old.
Hey! I’ve had an MRI and ct scan of my head down to my pelvis, would this show up the bones aswell? I was due to start chemo around now however they are still waiting for my fertility treatment to start so we are going ahead with a lumpectomy first next week instead so that I can proceed with fertility treatment and then crack on with chemo after that x
I’m not sure about the ct scans from head to pelvis, I have a chest one and a pelvic one, but the bone scan was separate and take ages, as it’s from the head down to the feet, my other ct scans were pretty quick. Bone scan took about 50 minutes. I imagine the MRI will have looked at the bones. I didn’t have a MRI, it depends on different areas I think, depending where you live.
Good luck with lumpectomy, let us know how you get on x
Okay that makes sense if I’ve had an mri! Thankyou will do! x
Hi
Hope you're doing ok
I'm 29 and been diagnosed with NST breast cancer, sounds like we are going through similar, although I'm HER2 negative so treatment is looking a bit different.
I'm going for a mastectomy on 18th November and my chemotherapy has been delayed because of my fertility treatment. How are you finding the fertility treatment or have you not started it yet? Hope you don't mind me asking, are you single or going through the fertility stuff with a partner?
I've been told my treatment is for curative purposes too, legally they leave themselves wide open if they make false claims so won't tell you that if they aren't 100% sure.
xx
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