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Following last Wednesday's fiasco:......I finally went to bed at nine after going to the toilet. I did a moderately normal wee about 60% of my usual. I laid In bed listening to classic fm for about an hour then felt the need to wee again. only this time nothing. no wee then the urge went. but It came back after fifteen minute's still nothing. after two hour's of this I started to worry the urge's were getting more frequent and I was starting to feel pain. I did not want to disturb my wife she was...
I do hope these blog posts will help someone facing chemo for the first time. I'm trying to describe my feelings as they come and go with some of the side effects that are not the ones listed and expected!
Today I'm so much better after a reasonable night's sleep. Yesterday my mind was unhinged, I was on a steroid high. I collected a lot of abdominal fluid in the 2 days since chemo so that, while hungry, I had nowhere inside to put the meal! If I bent forward I would tend to regurgitate...
I'm still here and still ranting!
First of all the chemo itself wasn't bad at all. The staff were all charming in the unit, welcomed me by first name and fitted me in as soon as they could. Two emergencies had made appointments 1-2hours late most of the day. So I talked to other patients also waiting. Some had had several cycles, others were having their first like me.
Called in by a nurse I knew well. Drip set up expertly in a hand vein, no pain at all. Saline wash through the line first...
Yesterday was the end of the first week. It was quite quick being zapped. I did feel much more tired last night - but that could just be general lack of sleep rather than anything related to the RT. I did woke up with a slight croak in my throat today but that wore off.
I had an appointment with my GP yesterday to talk about the possibility of getting the Caphopsol. When she looked it up in her book she said she didn't think it was something she could prescribe as it wasn't listed. She said she...
I had so wanted to write in my blog sooner but essentially my week has been work, sleep, work, sleep. I'm really very frustrated that I'm still so tired when I wanted to get on with enjoying what's left of this year.
My first day back on Monday was a bit of a blur. My team, having found out about my diagnosis through the rumour mill instead of from myself, all seemed terrified to speak to me in case I had been bottling up my emotions for the last 5 months and was just waiting for someone...
Where I live we don't have Macmillan nurses. Instead we have CNS's who are part of the Hospice at Home service. For the last year or so, I have not seen the need to bother my CNS, although I had met her once or twice. Then she retired and was replaced. A couple of weeks ago, I felt that the time had come to make the acquaintance of my new CNS, so I arranged an appointment with her. She was very kind, patiently listened to my woes and mopped up my tears. I never normally cry but it felt like...
On July 27th 2014 my brave Dad lost his fight to Lung Cancer at 55. I am heartbroken, angry, upset, scared, lonely but I am also very passionate about helping others and raising awareness.
I firmly believe if my Dad had been correctly diagnosed at the start of his symptoms he wouldn't have been taken from us so soon.
He was continually sent away from the doctor surgery with antibiotics and told it was maybe a chest infection, pneumonia, or bronchitis. It wasn't until the 4th visit that we decided...
My husband has just undergone a full neck dissection to remove cancer in the floor of his mouth. He will require 4 wks of radio & chemo.Feeling really anxious as not sure how I will cope in looking afer him ie the side effects that this treatment will cause
Today I encountered the first delay. Sessions were running about an hour late but most people just smiled and jolly along. It can't be helped, we all need to be there, it's not worth stressing out about. I got moved onto a different machine in the end.
Today they stuck sensors onto my eye kids so I had to keep my eyes shut so they could measure what my eyes were getting. Also had a review with a RT nurse and saw a picture of what's being zapped on me- it actually goes higher on my face than...
