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Just received my appointment with the surgeon and the radiologist. I looked them up online and they are both at the top of their profession. That makes me feel better, I can tell you. 22nd August which is about ten days time. This shit gets realer all the time. Having seen their credentials I feel better about it all. My surgeon is leading the field in robotic surgery and my radiologist is a leader in his field. I feel very lucky.
The fact they are both leaders in their fields makes me much happier...
Sometimes I can’t believe my own stupidity!
I’ve thought that I can now eat ‘as normal’ and manage the consequences with the use of loperamide.I have read and been told that a few jelly babies or pastilles can assist with the consistency of 'output'.
However, on my journey home from work, a journey of about an hour, I demolished an entire bag of wine gums.
I could blame Waitrose for doing special offers on sweets but no this is all down to me. I had the most incredible...
Right. I've decided. No chemotherapy because at present there is no tumour to shrink and my bladder is coming out. I see no point in chemotherapy. I feel it would weaken me for no good reason before major surgery. Although a neobladder sounds great in order to have one they would have to leave my uretha in and, my cancer being very aggressive, I think I'd rather get rid of the lot.
My nurse rang with a cancellation appointment for me to see the specialist but I couldn't make it at short notice...
Hi,
My amazing dad has just completed a round of chemotherapy (docetaxal) after hormone therapy/steroids stopped working. The position prior to starting chemo was that he had advanced prostate cancer which had spread to his pelvic bone and rib area and his psa was 400 plus.
For the first 3/4 rounds, his psa continued to increase until it was over 700. This concerned us and we spoke to his consultant however he said this was usual. Finally his psa level started to decrease to 390 just before his...
I don't think I will have chemo. It doesn't work if you have 'squamous differentiation' so seems pointless, especially as the bladder is coming out. Surely it would weaken me before the op? I don't like the fact that the bag goes on your stomach. I was ok with the idea when I thought it would be on my leg. I guess I will need all new clothes to accommodate it. How will I afford it. And the bag looked smaller than the one I had on my leg. I could have a neobladder but it takes a long time before it...
Well it's really good news and bad news. The good news is there was only the one tumour which was completely removed during the op and it hasn't spread anywhere. So I won't die. The bad news is that it was malignant so it will come back. Stage 3, Grade 3, muscle invasive. So I have to have my bladder out. I'll be going for a stoma - the thought of self-catheterising does not appeal. It won't be for a few weeks and I'll be in hospital for about eight days. Loads of people in this group have had this...
