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Hello to all,
As you know started new meds on Monday and yesterday felt really good the best for quite awhile, didn't sleep much at all as my neck had seemed to spasm and was causing a lot of dicomfort. I was supposed to go for MRI on liver first thing this morning but I felt really poorly. had a headache from hell, cold, clammy felt sick the full works. was obvious couldn't travel 35 miles to hospital so hubby rang to explain. all he got was now you've cancelled at such a late date we'll fit you...
My last operation 08/04/10. They used the previous scar from my pelvic clearance in Feb 09, then cut it out and made a new one.
Below is a picture of my skin graft now, nearly 4 years on! It doesn't notice nearly as much as it used to and I feel comfortable not to cover it up as it doesn't stand out since the redness went.
This is a picture I took immediately after my pelvic clearance that I had in Feb 09 to remove a mass from my pelvic nodes.
My first major surgery was the WLE, SNB and split skin graft. June 2006.
Sentinel Node biopsy from behind my knee. These nodes were negative.
Sentine Node Biopsy, groin. Three of these nodes were positive.
The dressing on my thigh was on the donor site for the skin graft.
Having the taples removed from my split skin graft. June 2006.
"Love is not a thing to understand.
Love is not a thing to feel.
Love is not a thing to give and receive.
Love is a thing only to become
And eternally be. ."
we have just had a call from the christie, to say tim starts his radiotherapy tomorrow, that was quick as i only got him back yesterday...lol so early one tomorrow transport is coming at 8.50 so il have to get organised to night, im taking tim out in his chair in about an hour god help him .....lol
speak soon
sandra & tim...xxxxxxxxxx
Fingers, toes etc etc crossed for tomorrow see onc hopefully blood count fine so can go ahead and have my final FEC100 on Friday. Am going to ask about Docetaxel cause that follows next, feeling anxious cause back to square one with not knowing how its going to affect me!
Feeling well, strong and positive, bring it on!!!!!!!!!!!!!!!
I'm fuming I just wrote all this out and then lost it!! AAAARRGGHHH!!!!
Anyway, again!!
Yesterday I went back to see Mr Sharma at St George's. He was one of the two surgeons who operated to remove my last tumour 3 weeks ago. The wound has healed fantastic, I'm so pleased with it its so neat! I'll show it on here when I can work out how to publish photos in this blog.
The lab results confirmed that it was melanoma, no surprises there as I'd already been told it had doubled in...
An update since we got back from the states nearly 2 months ago. We've settled down again and believe it or not, apart from my very close friends I don't miss it at all. In fact I would go as far to say I am loving life right now. Today at 2pm I am having my first haircut since losing it last July. I'm going to have it pixie, bleached blonde, and then tomorrow I have my first real check up since finishing all the treatment. I am quite realistic and realise that whatever will be will. I feel...
Yesterday was an awful day for both Sal and myself. She spent the whole day almost doubled over in pain from the reaction to ciprofloxicin. She couldn't keep anything down and even water triggered an desperate dash to the loo!
Needless to say, I was on the lookout for her temperature. She was in day 6 of chemo, just when her white counts are at their lowest, so she is at great risk of dangerous infection so I was taking her temperature regularly. I noticed that it was higher later in the day...
…..for being quiet and grumpy!. Bad Fairies aren’t known for being quiet so sometimes we have to put a bit of practise in and that‘s what I‘ve been doing. The past three weeks have been very busy in the Bad Fairy house, school holidays, meeting up with an old school friend, parents visiting and parents staying. All very lovely and thoroughly enjoyable but here’s the rub. I hate admitted that my energy levels aren’t what they were. Giving in to feeling tired isn’t something...
