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I am so fed up with this business. I want to scream, Please Help Me!. But I might as well be in space, as no one seems to be hearing me.
So much pain today, bloated aching bowels. My whole chest and stomach feels like its being squeeze. Just overwhelming pain. I had an oesophageal stent put in 2 weeks ago, which has worked wonders for being able to swallow. But now I just cant eat because of the constant overwhelming pain. My pain control (Oxycontin, Oxynorm and paracetamols) is not stopping the...
As you know August scan results were a relief that Pembro was working again, but it’s somehow been a struggle and I seem to have run out of ummph, not celebrating I think as much as I should. I had a big birthday coming up in early November and with treatment every 3 weeks, and a scan also due in November I was wanting to plan in a big holiday in the October gap of treatments but didn’t dare plan it before my August results. I have annual travel insurance which has due for renewal in August which...
So, last Monday I had another check up. The oncologist did an ultrasound on my abdomen and said he was happy with how everything looks. Got my 2nd B12 injection and blood tests. Hard to believe that it is a year already since I had surgery.
On Tuesday I submitted the stool test for the colorectal cancer screening. I wish I hadn't! My GP's secretary called me this morning to make an appointment. I explained that I was out of the country for a couple of months. The doctor wasn't working today so...
So many times I’ve logged on to write something on my blog or to ask a question on the sites and my mind goes mad with thoughts that I just cannot put into words. I read what other people are going through and I end up with all these emotions coarsing through me and I log off without writing a word. My family and friends have always said I’m the sensitive one, I like to help people, I like to show them that life is not all bad ...making people smile, seeing that big grin spread across their...
I’m writing this blog as a sort of way of clearing my head, and not wanting to put it in the discussions section, but forgive me as I’m not used to blog writing. I can’t say this is my first blog as back in April I was asked to contribute something for Mays Melanoma awareness month, and I think it’s easier if I just give the link to that blog.
Back home after having stent fitted. I had to stay in hospital overnight for them get my pain under control. I was on a specialist cancer ward, so you would think that they would know what the were doing. Thankfully the surgical and anaesthetic teams were brilliant and have done a very good job under testing conditions. Unfortunately the nursing care was a total shambles. I was left in agony all night, as the nursing staff were unable or unqualified to adjust my pain killers, even though it was obvious...
I haven’t added to my blog for a while - not because I haven’t had a laugh along the way but because after 25 days of radiotherapy plus the weekly chemo dose I have been too shattered to write it down.
Today should have been my final radiotherapy session but due to machine breakdown yesterday was cancelled. It felt like a bitter blow but I got over it and now have a Saturday session so tomorrow will be the final one. I cannot wait.
The team looking after me each day have been lovely,...
After the first cycle which was really tough, the oncologist reduced the dose. So the second cycle was much easier and although the first week was hard because of the nausea I was able to go out for a walk every day and my energy levels were better.
I also knew better what to expect and knew it would pass.
The hardest part was dealing with the hair loss. I didn’t lose my hair when I had chemo eleven years ago. I found it really upsetting to see so much hair on my clothes and hairbrush every...
hello My 6th post.
it has now been 9 month since I had nanonife surgery at the princess grace hospital London.
All I have done since my op is to simply return to normal life but I have tried to get a fresh blood test done to check my PSA level every 2 months or so.
one week ago just at the start of November 2018 I had my latest PSA blood test and my result have been very positive. It came in at ( 1 ) Now that is a drop from a peak of ( 17 ) in January 2018. I spoke to my consultant concerning these...
Of crawling up the stairs to the loo.
Doing your business.
Wiping.
Finding blood.
Then having no idea if it is coming from your urethra or your vagina - or heck, maybe both just to be extra special. Both are possible at the moment, neither should be happening, one I'm on tablets to stop happening.
How ridiculous!
