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Yesterday I was diagnosed with a soft tissue Sarcoma based on an MRI. The mass is quite large 16 cm x 9 cm x 11 cm in my right leg in the front of the upper thigh. Generally can I rely on this being likely correct?
Well I can't believe it's been over 3 weeks. Mum's house, my childhood home, is virtually empty of her things now. It was her funeral 2 days ago. It went well, just what she would have wanted. I didn't wear black, I warned her I wasnt going to, in fact I warned everyone. So glad to see others not wearing black either. We decided on a cremation, and at some point will be having her ashes buried with Dad, at his grave. We entered the Crem to Elvis, 'The Wonder of You', she loved Elvis. I managed...
I had an appointment today with my Chemotherapy oncologist to check my bloods and see if I can have chemo next week.
My platelets were 136(need to be above 100) and they had been as low as 108 3 months ago
My white and red cell counts were good as was all my vital organs
So next week I start my 9th month of double chemo which will then lead into my next MRI which is on the 19th of June
This will be exactly 12 months to the day that I was diagnosed
Things that I have done and put aside for my wife and kids to get after I pass away
Wife
29 days, one day for each year I’d been alive. From diagnosis to the day my mum died, 29 days, that was all the time we were granted. When you lose your mum, it comes with a dreadful feeling of loneliness. No matter what age you may be, there’s nothing in this world more heart wrenching than to watch the person who made the very fabric of your soul, that one person who watched you take your first breath, to have to watch them take their last breath. Death has never been so real in watching my mum...
So today I had my first treatment for High Grade VIN - Laser surgery. Firstly, if you are having this done do NOT worry - it was absolutely fine!
I got to the day surgery unit at 7am and I was first in to have surgery (at 8.30am). Firstly I was show to my area with a curtain around it and got into the surgery gown. Following that my consultant who was doing the surgery, as well as the anaesthetist, came and introduced themselves and explained exactly what would be happening and answered any questions...
So... to say my diagnosis was a smooth process would be entirely incorrect!
After my doctor noticed slight lumps down below she (thankfully!) referred me to another doctor who suggested I had a biopsy to rule out the possibility that it could be VIN, a pre-cancerous condition. To me (and my mums!) horror the results came back saying it was High Grade VIN, the most serious form.
I was incredibly upset and distressed as it had not crossed my mind I could or would have a pre-cancerous condition at such...
I was diagnosed with GBM July 2017 at age 44 after suffering a seizure at home and ending up in hospital an MRI and biopsy showed that I had a GBM tumour
The tumour was located in the moto cortex on the right side of my brain and was already affecting my movement on my left side. I went into surgery to have the tumor removed with the possibility of being permanently disabled on my left side. The surgeon was able to remove most of the tumor and I came out with the same mobility as going into...
I only became aware that something was seriously wrong when I suddenly found myself unable to safely drive one winters night in the Dark& Rain just as I was about to join the M25. Somehow I got home safely and even managed to park the car precisely in my Garage. 111 said I needed an Urgent CT scan which I had at local hospital the same evening and they immediately diagnosed a mass on the Brain and was told I could not drive again (which was in itself devastating for me as driving was my passion...
A chemotherapy cycle is like a merry go round in my eyes, I am stuck on this one for what should be 21 days however given my first cycle didn’t go quite to plan at the moment it is 14 days and at the end of that time I get to hop off the ride for a week and then begin the whole thing all over again on a continuous loop for as long as the drug keeps working.
