Well today was what Macmillan call a good day. We needed to make a call to the hospital to get last weeks AFP count and make some changes to next appointment but last night we were both so scared of these results that we said we would wait until the appointment next week. Well I could not get any sleep, restless at the best of times but I found myself in a very long conversation with God, the usual things, asking for…
Well hubby starts another regime tomorrow and boy am I not looking forward to it. We thought it would be over again by now, the doc said four months back in June and now it has turned into next February. The journey to the hospital is one that we hate with a passion, you wake up and feel so lost, like a child that does not want to go back to school after the holidays, but no matter how much you try and stall time you…
A few weeks ago Macmillan campaigns asked me whether we would support them in their Fuel Poverty Campaign, to which I agreed. The reason I said I would be more than willing to help is because not only have we had to fight to fit into the welfare system but I see so many others with cancer having to struggle to get help with the cost of having cancer, both physically and financially and that makes me so angry and hurt…
Wouldn't it be nice if it was so easy to actually turn time back, just like we do every year. I would only go back though if I knew what I know now. I would like to go back to Christmas 1994, with a two yr old and a seven week old baby, all seemed perfect then. Married, lucky enough to have had two healthy children and looking for ward to a wonderful Xmas. All the extended family coming to us for Xmas dinner and an evening…
Well I must say I feel a bit better today. The 'New' mac nurse came out as promised and spent two hours listening to both of us.
She was astounded at how hubby did not get up and hit someone with all that has happened to him. She has arranged for hubby to see the Palliative doc this week instead of next week, so that he will get some pain relief from what we can only describe as muscle spasms all over his body…
