The out of hours service rang last night at 11.10pm and told me that Toni's HB levels are 6.2. So that accounts for the low energy and to an extent the swollen feet. So we're back to the hospital tomorrow for 2 bags of blood and the same on Friday. That should give him energy and hopefully mean he can start to get out of bed more and potter around.
All okay with the consutlant today and no problems so that was…
Today Toni had an appointment for an x-ray on his abdomen to check the stent is still in place. This means a journey of epic proportions which starts in the bedroom.
He decided he wanted to have a shave so dragged himself out of bed and went to the bathroom to perform this male ritual. It didn't take him more than 10 minutes but when he'd done he had to lie down for 40 minutes to recover. As we needed to leave the house…
Well Toni's eaten all the lime jelly and its stayed down but he's still got the nausea. He really liked this one as it's refreshing. I've just made an orange one and he's also drinking ginger beer as recommended by Jenni and that also helps. So we will perservere.
Tomorrow he has an x ray. We think it's to check the stent is still in place but don't really know. I'm dreading it in case it's on the…
I've had quite a lazy weekend for which I'm very grateful. Toni has been nauseous all weekend and so spent a lot of time sleeping and very little time eating so I haven't been running up and down stairs so much. Apart from washing and keeping on top of the kitchen I haven't done much and it's been great. Such a pleasant change from last weekend and running round after the visitors. I'm long past caring about housework…
I seem to get anxious on Fridays as the approaching weekend makes me scared in case something goes wrong and I'm ringing emergency numbers. Mostly it's irrational as the hospice have an emergency number and there is someone there all the time, and I have the District Nurse twilight and weekend numbers as well as the GP. But it just seems to come on every Friday and I can't shake it.
Today I noticed Toni's…
