Lime jelly rules ok

1 minute read time.

Well Toni's eaten all the lime jelly and its stayed down but he's still got the nausea. He really liked this one as it's refreshing. I've just made an orange one and he's also drinking ginger beer as recommended by Jenni and that also helps. So we will perservere.

Tomorrow he has an x ray. We think it's to check the stent is still in place but don't really know. I'm dreading it in case it's on the lungs and the x ray picks it up as we are coasting along quite nicely and that would set him back. Am I being naive? I think I probably am but it's just that he's starting to pick up, apart from the nausea, anmd I dread anything upsetting him and setting him back again.

I got a call from the occupational therapy department at the hospital who want to come and see him on Friday. I think it's to assess him doing things like getting in and out of the bath etc so they can see what help we can have. Sorted by the palliative care nurse so that's good. I get constantly surprised by all these offers. There's help and support out there but you don't always know where to get it. She has been a marvellous support to us in getting things done and helping us.

Toni's spent a lot of time sleeping over the last 3 days. When awake he chats and makes plans but quickly drops off again, sometimes half way through a sentence. It is a slow dying really - I keep losing bits of him. I read Jenni's blog in which she described not being able to cuddle her husband as it hurts him and I can really identify with that. You sort of lose your husband slowly. Perhaps that's all designed to help with the acceptance and grieving parts, I don't know. Maybe it prepares you and you don't really realise it. Time will tell. I do sometimes feel there is a big barrier there between us, caused by this rotten disease.

I'm signing off here early tonight as he's a little bit more alert now and I can go and chat to him.

Anonymous
  • FormerMember
    FormerMember

    Hi Claire58, i think loved ones start

    grieving when they are told the cancer

    is terminal, seeing your loved one get

    weaker everyday is heart breaking, and

    when the time comes and they cant cry

    they feel guilty, but you cry so many many times over the months and weeks

    beforehand that in a way its a relief to

    to see your loved one not suffering any

    more. Keep up with the jellies, much

    easier to swallow, and if you mix a jelly

    with some ice cream and leave in the

    fridge it will set like a moose,also you

    could try ice pops, nice for the throat.

    Try tonic water for nausea and flat cola

    just a couple of suggestions that can help.

    With Love Lucy Lee. xxx