An epic journey

2 minute read time.

Today Toni had an appointment for an x-ray on his abdomen to check the stent is still in place. This means a journey of epic proportions which starts in the bedroom.

He decided he wanted to have a shave so dragged himself out of bed and went to the bathroom to perform this male ritual. It didn't take him more than 10 minutes but when he'd done he had to lie down for 40 minutes to recover. As we needed to leave the house at around 1.20pm I started to get him dressed at 1pm. This entails top half off then top clothes on and rest for 5 minutes. Then bottom half off and trousers and socks on and rest. Then finally boots which he insists on wearing even though his feet are like elephant's feet, so badly swollen. Me pushing and him pulling eventually got them on then another rest.

Next step is to get down stairs and I place a chair at the bottom so he can sit for a while, then he stands up to put his coat on. We gett out of the house and safely into the car and set off.

At the hospital we drive round and round for a while as there are no spaces. Work is going on at the hospital to build a new surgical day unit so what with workmen's vans and fewer spaces it's a right old game finding a parking space. I eventually got one outside the MacMillan unit which is miles away from the x ray dept. You watch tomorrow when he has an appointment in the MacMillan unit there will be no spaces!

So parked up out comes the wheelchair out of the boot with me slipping on ice trying to lift it out. I'm only 5ft tall so it's a struggle to do. I help Toni out of the car and into the wheelchair and we're off.

We trekked through the long hospital corridor towards x-ray when the fire alarms go off and we get shunted into a corridor by a very officious member of staff so that we're safely out of the area where the smoke is. We wait ten minutes then the all clear is given and off we go again.

X ray were brilliant once I explained the difficulty with getting his clothes off and on and his low energy levels etc.  One of the radiographers went to get a zimmer for him to lean on as he went from wheelchair to flat bed and they also helped me get him undressed. Plus they saw us straight away which I was grateful for after the palava with the fire alarms I thought we'd be late seen. He had a shot of oramorph before he went in just in case which was a sensible decision as it took a lot out of him.

Once back home at 2.45 we went through the same procedure in reverse.

And we'll have to do it all again tomorrow!!

 

 

 

 

Anonymous
  • FormerMember
    FormerMember

    Hi Claire,

    Can sympathise on the 'boots' issue...why do they insist on wearing boots when their feet are swollen. You'd probably laugh at the dressing palava if it didn't drain every ounce of stength out of you.

    Don't you find it such a relief when someone else witnesses the problems you face everyday, it's only then that they can understand what it's like for us.  Getting them dressed and into the car sounds so simple...I wish!!!

    Best of luck for tomorrow...pity they cant book these appointments for the same day, it would make our lives so much easier.

    Take care hun.  XX

  • FormerMember
    FormerMember

    Hi Claire,

    I have been exactly where you are. It takes forever to get them dressed and the organisation on our part has to be just right, allowing time for rests in between, forward planning with chairs in the right places, it's like a military operation.

    Well done you, I'll bet you are tired out tonight. It is so stressfull making sure it all goes smoothly and as you said, you have it all to look forward to again tomorrow.

    When I think back, it's amazing how well we cope as carers and just get on with what has to be done.

    Good luck for tomorrow Claire, I will look in to see how you both get on.

    Hugs

    Grace X

  • FormerMember
    FormerMember

    Thanks Margaret and Grace

    I did suggest he wore his slippers but he was having none of it. So on with the boots and his feet were worse when we got home.

    Now he is exhausted and can't keep his eyes open. It's all such a strain and yes I have often asked about having the appointments on the same day but does anybody listen?

    Grace - have the outlaws gone home? Hope you get some much deserved 'you' time and are feeling as well as can be expected.

    Margaret - hope it's still going okay with K and his pain still under control. Is he home yet?

    Love Claire

  • FormerMember
    FormerMember

    Yes Claire, Whoopeee !

    At 4a.m. this morning, they set off for the airport. They will be back on Monday night. My broth-in-law cooked all the meals though, so it was tinned soup this evening.

    The night before the funeral I'll have his family over from Spain, my family up from Edinburgh and my kids.

    Twelve of us to find beds for..........great fun !

    Am doing okay thanks Claire, I seem to have a real good sobbing session every morning and then just the odd breakdown during the day. I feel as if I am wearing the sadness though, such a heavy feeling.

    Anyway, enough about me, all the best to Toni for tomorrow and of course, almost goes without saying, much strength, patience and hugs to you.

    Grace X