My bowel and other parts

  • Chemo first cycle started 3 September 2021

    On four 21 day cycles of Xelox.  I was impressed by the chemo unit, care was excellent and other patients on the whole friendly, I’m not a great chatterer anyway. Fingers became sensitive to cold before I left the unit, I nearly dropped my...
  • First few days at home

    I panic about things, so far I have suspected: Overdose of paracetamol - be warned there is a limit to how many you can take in 24 hours, I was exceeding this, luckily realised fairly quickly Blood clot - my ankle went a bit pink and my foot had bee...
  • 15th July - dismissed from hospital

    Not a bad night apart from a session around 3.00 am when I needed pain relief and couldn’t get it. Woke up feeling better again and was told I could go home once my medication was sorted out and the Doctor had signed me out. Chat with rapid rec...
  • 14th July on the ward

    Spent first night on ICU where I received maximum care and attention, then moved to a ward where it wasn’t so good. I was sick at one point and got no help. Eventually got to sleep and woke feeling better. Am eating ice cream as I post this. Ca...
  • 12th July - operation day

    Waiting in some sort of holding area with fancy arm chairs. There were several women, we’re down to the last three. All but one I’d say is younger than me, that’s a surprise. I’ve felt very anxious these past few days, feel li...
  • 9th July - COVID test and stoma marks

    I now have large black dots on my tummy where the stoma will be if I need one, I do hope not. Another lovely nurse. I had my COVID test, was rather squeamish, think I annoyed the nurse, hope I’m braver next week.
  • 7th July - appointment with recovery nurse

    Met with a lovely nurse who went through everything I needed to do before my surgery, what to bring with me and what to expect afterwards. A lot of instructions and potions to take! Starting the next day I have protein drinks to take twice a day, lax...
  • 6th July - telephone conversation with surgeon

    Husband came home from work early, daughter worked from our house so they could both listen in, it was a waste of their time. He phoned up about forty minutes early (which threw me slightly) and very quickly went through what was likely to happen in ...
  • 29th June - PET scan results etc.

    Went out on a work errand and was just parking when the nurse phoned, most apologetic for not phoning yesterday. PETSCAN showed nothing extra apart from a hot spot on my throat, probably nothing (but I heard that about my liver) I will need an ultras...
  • 28th June - phone colorectal nurses

    It’s over a week since the PET scan and not a word. I don’t even know for absolute sure if the operation date has remained the same. I phoned the nurses to enquire and left a message, they usually get back within about half an hour, but t...
  • 19th June - PET CT scan

    All went according to plan. I arrived very early and went in early too. No problems with the cannula and I felt no effects from the “radiation” injection. The scariest part of this will be the results, I am not going to think about them t...
  • 14th and 15th June confusion and changes

    Phone call from PETscan people and all arranged for two days time, given “starving” instructions etc. husband booked day off work to take me. The next day a well-meaning friend insisted that I drop my work and talk urgently to a friend of...
  • 12th June - one step further and…

    Phone call from Nurse just phoned to say I have to have a PET scan. I asked about date of operation and found they are talking about 12th July. I asked if it would have spread further by then but was reassured that it is relatively slow growing. The ...
  • 8th June - appointment with surgeon

    We were the last appointment of the day and went in just over an hour late, it was an anxious wait. The surgeon explained everything very clearly and answered our questions fully so I didn’t mind the wait, we certainly didn’t feel rushed....
  • 1 June - I phone the hospital after a week of silence

    Tuesday after a bank holiday and a week after the MRI I decided it was time to chase things along. I phoned the nurse team and asked what was happening. I was told that a letter was in the post with an appointment to see the consultant, or one of his...
  • 25th May - MRI

    Again all went to time despite it being quite late in the afternoon. I had no problems with the MRI and was amused by the hologram of a beach with flying birds and falling coconuts. Slightly bemused afterwards as I was ushered out and nobody told me ...
  • 20th May - Hoping for gallstones

    I received a phone call from the nurse. She said the CT scan had shown the tumour on my bowel and something small near my liver that was probably unconnected possibly gallstones, I needed an MRI to be sure. I asked how large the tumour was and was to...
  • 18th May - CT scan

    The worst part of this was remembering not to eat! The bowel prep wasn’t too bad.  I think I went into my appointment slightly early and it wasn’t too bad an experience.  I was asked which was my best arm for veins and I said &l...
  • 15th May - blood test

    No I am not going to record all of these but I now know my left arm is best for veins, but not good. I forgot to mention the enormous bruise from the colonoscopy cannula…
  • 12th May - anaesthetic assessment and CPEX assessment

    This involved answering lots of questions, I said in my limited experience anaesthetic made me sick (tonsillectomy and hammer toe surgery) I had an MRSA test and was put on an exercise bike. I always say I was born unfit and I have never really learn...
  • 10th May COVID test

    This was actually my second as I had one before my colonoscopy, I was delighted that it was the same nurse who remembered me! I thought this kind of thing only happened on Neighbours. I hate having this test but I suppose it is nothing to compare wit...
  • May 6th colonoscopy

    I was absolutely petrified about the procedure and a little about the results. I had a sedative but after a very short space of time I was asked to look at the screen. It meant nothing to me, but I was told I had a growth and that it had been there f...