Peter's iron stores were 16 and his hb is dropping again fortunately his team have secured funding for IV Iron, he had the first infusion of monofer on Tuesday. it only took half an hour. He is having another 2 units of blood next week. and will continue to have iv iron until his stores are o.k
Hes been quite poorly since the infusion vomiting and extremely tired, I think his body is getting used to the chemical…
It is so nice to feel a little control coming back into our lives, we seem to have been trying to run up a descending escalator for the past few weeks, leaving little time or energy for us.
But with great help and support from the Hospital and Hospice Peter is improving. the Tranexamic Acid is working the elusive internal bleeding must have stopped as stools are no longer black and his hb is holding at 9 yipeeeee. no…
It seems that following my meltdown on Thursday meetings have been convened and plans put in place there is a real glimmer of light, a chance that we might drag Peter up and out of hb free-fall.
Yesterday was good, no it was lovely. our 10 yr old grandson spent the day with us he had a hospital appointment which I was taking him to ( our daughter does night duty ) Although he had just eaten a bowl of porridge, I asked…
Peter had a brisk bleed from the picc line insertion site this morning, quite scary and very worrying as a 2 units transfusion was given yesterday so in and straight back out. His hb will be checked tomorrow morning.
I was shocked at how unprepared local services were to deal with this and it took many phone calls by the Dr for guidance and me breaking down in tears before he got action.
At least we are back home now…
