Facing the future: Together

  • Early August Update

    Things have been going ok for Dal since he came out of hospital, he has had some swelling on his knee which is unexplained, but an ultrasound on his entire leg proved that no blood clots were present, so we continue to monitor this. 

    We took a camping trip to Somerset, just a long weekend, it is amazing what a short trip away can do to make you feel better about life in general. 

    Treatment continues - just about to start…

  • 4th July 2022 ... A trip to the Hospital. -updated - Again

    It's been a while since I wrote in the blog, mainly because things continued smoothly and there were no real updates to give.

    We received good news from the oncologist in June, in so much as she confirmed that she is still happy with the developments, all scans were good, bloods great, no issues what-so-ever. 

    Asked maybe if we wanted to go on holiday, have a break from the treatment if Dal felt that he could do that…

  • End of April update (2022)

    Hi, 

    I said that I would keep everyone informed of how it went with the Oncologist... 

    This appointment was a face to face conversation for Dal and his Oncologist, as previously mentioned Dal is doing amazingly well and he has been told that whilst he is able to continue to manage the Chemo/Targetted therapy as well as he is, he will continue with this treatment. 

    All Dal's bloods are good, actually they are amazing, based…

  • Early April update

    Just a quick update 

    March Echo scan seemed to go ok, (waiting on oncologist to phone and let us know more)  and still waiting on CT scan appointment which seem to be taking longer now, we imagine this is caused by the backlog of Covid and lockdown.

    Dal still has occasional glitches when eating, (which I think I find more scary than he does) and still has nosebleeds a few days after treatment, this is one of his main on…

  • General Update - treatment continues

    Another Month has passed every day is a miracle 

    Treatment continues and we will get an update from the oncologist in a couple of weeks on how things are going, but for Dal, everything is good. 

    It is true that occasionally there are some food issues when eating, which almost always invovles chicken and still Dal experiences the occasional nose bleed after treatment, but considering everything that he has been through…

  • January 2022 update

    I just wanted to leave a note here... 

    Dal has managed to beat the chest infection / cold which lingered for quite some time..  he also continues his treatment

    Although delayed he has had a his CT scan and his Echocardiogram, bloods and Oncologist update... 

    It is amazing to report, that Dal continues to do well, the bloods continue to remain very good, the lymph nodes around his stomach are returning to normal, his chest…

  • Starting the New Year 2022

    Happy New Year to you all... or at least, I hope it is a good year for many of you. 

    Last year was the year I had imagined We would never have! after Dal's Diagnosis in May 2020 and the prognosis given, we embraced 2020 with a view that there may not be a 2021 for us, but there was.   

    2021 brought us many ups and downs, both with Dal's cancer treatment and within our own lives, but it was a year where we threw abandon…

  • Biopsy Update

    Sorry to leave everyone hanging and delaying the update of our blog, we have been waiting on updates and results which we received on Monday. 

    The strangest of things happened : As you know if you have been reading the blog, Dal was called in for a pre-assessment early, which included a CT scan of his chest / lungs in preparation for the biopsy surgery on Saturday 30th October. 

    Surgery day comes, and we are up at 04.45am…

  • Biopsy update

    Phone call received today, Dal is to go in tomorrow for the pre- assessment and have the Biopsy on Saturday ,, so all happening this week rather than next, which obviously means we should get the results quicker too. 

    Dal does seem to be bruising easier from small knocks, something to keep an eye on, but overall, he continues to do well. 

    Things are getting busy in the hospital, times and dates for chemo are changing due…

  • Navigational Bronchoscopy

    Sorry for my delay in updating the blog, we had the call on October 6th from the lung specialist and were advised that a Biopsy needs to be taken from Dal's right lung to determine the cause of the markers they found during the scan. 

    So to do this they will perform a navigational bronchoscopy, which is basically a telescope down the throat that is guided by a CAT scan through the veins to the correct area of the right…

  • Further to the scan findings

    It always surprises me how time can go so fast, and yet feel so slow, both at the same time. 

    We received a call from a man at the hospital on Monday 20th advising Dal that his chemo had been rescheduled, cancelled for September 24th, rescheduled for the 1st October, no reason as to why, just that it had... but he was still to go in for his nurse assessment on the 21st.  So the Tuesday comes, and transport takes him to…

  • Scan 16th September

    We didn't expect a phone call from the hospital so quickly after the scan yesterday, 16th September.

    This afternoon Dal was called and informed that although it doesn't look it is too much to worry about, but they have noticed some spots on his lungs. Although they do not think that the spots look like cancer, they need to have the images looked at further by a lung expert, they believe that it may be an infection…

  • What a way to end June 2021

    Things have been such a rollercoaster for us over the past year. 

    It is hard to believe that just over 13 months ago at the beginning of May 2020, Dal was diagnosed with Stage 4 Oesophageal Cancer with secondaries in his lung, liver and lymph nodes,  T3N3M1 GOJ. 

    13 months ago, we learnt that Dal had a terminal illness, that he was not expected to live for more than a year, (and that was with treatment) and that Life as we…

  • Sad update on Brother-in-Law

    After a brief but brave fight with secondary liver failure, Dal's brother Mark passed away at 5am on 15/05/2021 I am so grateful that his fight enabled all of the my children to attend their Grandad's funeral on the 13th, Mark battled hard and made that possible. 

    Only two dedicated people had been allowed in to see him at the hospice, my mother in law and my second youngest daughter, sadly on the morning of his…

  • How quickly things change

    Last week Tuesday Dal received a surprise phone call from the oncologist, 

    With Dal's blood readings he was told that the 4000 reading is now 12 and the one that was 24 is now less than 1, and once it's less than 1 it can't be measured.. so his bloods are all within the normal range, and it is likely that there will be little change now. The scan itself shows that everything is stable, the tumours in the lung are undetectable…

  • Oncology update Treatment to continue

    We have had to wait a while to hear from the Oncologist and to get information on the scan which Dal had last week and today we were advised:

    Everything is stable, the gullet tumour has remained the same, the liver has a very small lesion, the lymph nodes are also stable and nothing really was mentioned about the lungs. The bloods, taken today, have nothing negative to report and it all looks positive in so far as, things…

  • Treatment on-going

    Over the past month and with regards to Dal's treatment, things have continued positively. 

    The scar on his chest has healed well, the port is in use for all chemo sessions and now this is the way that his bloods are taken in preparation for the trastuzumab. No more covering his arm to protect a picc line during a shower, and because of that his arm is looking a lot better. His skin had started to grey and dry out…

  • "Stay Focused" 2021

    It’s hard to believe that it has been over one month since we last updated our blog, it certainly is overdue.

    Christmas was spent with our second eldest daughter, Dal, chose his food carefully, he had to take his time as he was concerned that he would choke at the dinner table, he felt more conscious whilst eating and I felt a little apprehensive. Dal reached for his fizzy drink a few times and I noticed myself…

  • Heading into the New Year Continued Again!!

    Tuesday, Scan day, Blood Test and then Oncologist phone call.

    I have found the past few days so tough! A rollercoaster of a ride, but the ride continues! it has it's scary times, it has it's laughs and it has it's emotional breakdowns, and all of this is necessary..... for we are working towards a positive outcome.

    Amazingly only 30 minutes after Dal got home from the hospital on Tuesday he received the call…

  • Heading into the New Year Continued

    Yesterday was a difficult food day for Dal, it hits home as a reminder of what he is going through, and it is frightening.  Due to food getting stuck and taking quite a while for him to be able to clear it, he ended up not eating.... and he hates me fussing..

    We still hadn't heard about a date for the scan, so this morning Dal phoned his chemo nurse, she moved swiftly and within minutes the right department was on the…

  • Heading in to the New Year

    Treatment continues, every two weeks and Dal continues to react positively, there are always little things to mention, like the numbness of his hands and feet, the feeling of cold in these areas even when he is quite warm, and the few irregular nose bleeds. Other things also like, Dal's hair continuing to grow, his ability to eat solids most of the time with very few problems, but he has a few glitches which catch him…

  • Things continue to be positive

    Hi Again

    You may remember in October that we had some great news regarding the rewards of the treatment that Dal has been on. We are still reeling from these great results, but we are also back to just waiting on the next update. I find that quiet difficult personally!

    Nose Bleeds - this had been one of the side effects that Dal had been experiencing, they started out of the blue and seem to have stopped just as quickly…

  • September and Early October

    Hi Everyone,

    I didn't do an end of September blog because Dal and I have been waiting on the latest scan and subsequent results which we got yesterday afternoon. But before I go into the results, let me give you an overview of what has been going on during September.

    Dal, continues to receive his treatment fortnightly, 336mg Trastuzumab at the hospital after the Ondansetron 8mg anti sickness medication, then 5,200mg…

  • That's August Done With.

    This month has gone so fast, I turn around and we are just dropping into September, thing have for the most part turned in to a new kind of normality, Tuesday bloods, Tuesday afternoon phone call from Oncologist, Friday Chemo, Weekend of feeling rough and back on his feet again Monday, refusing to be held down for long. Then a week off.. before it all starts again!

    The weight continues to be very well maintained, Dal…

  • The Journey through rest of July

    Things have continued to go well, Dal continues to eat well, and has gained more weight.  He had his first Herceptin treatment on Friday, which was not the best of experiences.. He went through the treatment fine but once he was told he could go home, he was violently sick. 

    Over the last two days, he has struggled to feel "himself" but we know that this is the first time his body has been put through this particular treatment…