Hi All
Sorry for my absence, we have been on a bit of a roller-coaster over the past few months..
Dal is well!
After several steroid attempts to clear the pneumonitis in his lungs, it was decided by the sponsors' that Dal's lungs were not going to correctly heal, and that the trial treatment was only going to make things worse. Dal would be taken off the trial and we would now have to wait to see what else could be done…
Hi all,
Dal started on a trial back in March, I have added a link HERE to give you a bit more information on what it kind of involves.. it is a big read and mostly for professionals, but if you are like me, and interested in this type of thing, it can make a good afternoon read
Dal's treatment on April 12th went ahead, although his scan had been done on the 10th April, the full results of it had not been available, but…
The spring cold came and went, and another cold jumped in its place, this time things were different, Dal had been feeling quite unwell, and he had also started to lose his hair, something that seems to have surprised the oncologist, a rare side effect of this trial treatment we were informed.
Initially the hair was just coming out in small strands, but one evening after his shower I found him standing in front of the…
The New Trial Treatment started on March 1st,
The last three months have been extremely difficult, mostly due to the not knowing, or due to Dal's concerns that he felt as if he was waiting and waiting on next steps... We really didn;t have any option other to wait.
The new hospital is very different to the old hospital, this highlighted to me that it is so difficult to give guidance or advice on treatment, as even…
Yesterday was the day for signing the consent forms at the New Hospital, still London based, but a whole new set of buildings to learn how to get around.
Not a great deal to report as today will be ECG, CT, Echo and Bloods and soon after that will be the Biopsy, then we wait, we see whether Dal is still HER2 positive and if so, what arm of the trial he will be on...
I admit to being slightly anxious, and to seeing Dal…
