Hi All
Sorry for my absence, we have been on a bit of a roller-coaster over the past few months..
Dal is well!
After several steroid attempts to clear the pneumonitis in his lungs, it was decided by the sponsors' that Dal's lungs were not going to correctly heal, and that the trial treatment was only going to make things worse. Dal would be taken off the trial and we would now have to wait to see what else could be done for him.
Dal has had several scans, blood tests and periods of waiting whilst decisions were made on next steps, We were aware that there had been movement in his liver lesion and was advised that either further, different chemo would be considered or lazer ablation surgery, but we had to wait for further scans to dictate which.
It has been stressful, because Dal has now been off treatment since May, and considering how aggressive his type of tumour had been, not knowing what was going on inside of him was sort of eating away at me... forever positive, Dal increase the turkey tail mushroom intake, to counteract the lack of treatment and continued his meditation, and positive affirmations on his body and we continued our nightly acknowledgement of good days, and put in our requests for good news.
On Wednesday, we were given some news. The liver lesion was actually two, 1.5cm spots which had joined together, making it too big for lazer ablation, the other turmours were behaving well and because of this, further chemo may not yet be needed, so, next steps will be Targeted Radiotherapy, we have a meeting next week, and then Dal will undertake 5 back to back sessions of radiotherapy directly on the affected area on his liver, he will then be reviewed for further next steps.
Dal's hair is still growing, all of his bloods are really good, white and red blood cell counts are back in normal range and overall, if you didn't know he was living with this alien, you would not know that he was ill at all... he does sometimes get out of breath, and is occasionally more tired than normal, but considering everything, we are extremely blessed.
I will try to keep you updated a little more regularly, it is a huge relief to know, that after all these months without any treatment, the treatment that he had previously has preformed what can only be classed as miracle's, and our on-going gratitude is sent to everyone involved in Dal's treatment, we know how quickly things change with this disease, so we will remain ever vigilant and pray that Dal continues with positive outcomes.
Take care of you.
Lowe'
