Hi All
Sorry for my absence, we have been on a bit of a roller-coaster over the past few months..
Dal is well!
After several steroid attempts to clear the pneumonitis in his lungs, it was decided by the sponsors' that Dal's lungs were not going to correctly heal, and that the trial treatment was only going to make things worse. Dal would be taken off the trial and we would now have to wait to see what else could be done…
Tuesday, Scan day, Blood Test and then Oncologist phone call.
I have found the past few days so tough! A rollercoaster of a ride, but the ride continues! it has it's scary times, it has it's laughs and it has it's emotional breakdowns, and all of this is necessary..... for we are working towards a positive outcome.
Amazingly only 30 minutes after Dal got home from the hospital on Tuesday he received the call…
Things have been such a rollercoaster for us over the past year.
It is hard to believe that just over 13 months ago at the beginning of May 2020, Dal was diagnosed with Stage 4 Oesophageal Cancer with secondaries in his lung, liver and lymph nodes, T3N3M1 GOJ.
13 months ago, we learnt that Dal had a terminal illness, that he was not expected to live for more than a year, (and that was with treatment) and that Life as we…
Things have been going ok for Dal since he came out of hospital, he has had some swelling on his knee which is unexplained, but an ultrasound on his entire leg proved that no blood clots were present, so we continue to monitor this.
We took a camping trip to Somerset, just a long weekend, it is amazing what a short trip away can do to make you feel better about life in general.
Treatment continues - just about to start…
The New Trial Treatment started on March 1st,
The last three months have been extremely difficult, mostly due to the not knowing, or due to Dal's concerns that he felt as if he was waiting and waiting on next steps... We really didn;t have any option other to wait.
The new hospital is very different to the old hospital, this highlighted to me that it is so difficult to give guidance or advice on treatment, as even…
