Community News - Macmillan Online Community

Respecting everyone on the Online Community

Cancer can often seem to be linked to your gender. It can be easy to make assumptions that only women get womb cancer, or only men get prostate cancer. When chatting to others on the Online Community, sometimes it might feel easy to presume who someone is due to their or their loved one’s diagnosis. Anna, Macmillan’s LGBT+ Network Lead, is here to talk about why it’s important not to make assumptions when talking to others online, and how this can help our Community cancer forum to be a welcoming space for everyone. Within this blog, we are talking about gender and biological sex being different. Your biological sex is what people are assigned at birth, and gender is what people identify themselves as. For lots of people, this is the same. However, it’s not the same for everyone. We hope…

Eliza -Online Community Team
Planned maintenance - Wednesday 17th March, 6am - 9am

Hi everyone, Due to some planned maintenance, the Online Community will enter a read-only mode between 6:00am and 9:00am on Wednesday 17th March 2021. This means that you will not be able to log in, post or reply on the Online Community during this time. You will still be able to read posts and blogs on the site. If you feel you need some support while the Online Community is unavailable, please remember our Support Line is here for you. Our teams are available 8am-8pm, 7 days a week on freephone 0808 808 00 00 , or by email or webchat . Thank you for your patience and support as Macmillan continues to update and improve our online services. If you have any questions, please don’t hesitate to get in touch with us at community@macmillan.org.uk . Best wishes, Eliza, Ellen, Rachel…

Eliza -Online Community Team
Coping on Mother's Day - some support from the Community

This Sunday, it’s Mother’s Day in the UK, so in this Community News Blog we’re taking some time to celebrate and remember mums. We're also sending out a big virtual hug to anyone who finds the celebration a difficult time to get through. We know that Mother’s Day can be particularly tough for those who can't see their mum, or other loved ones, for many different reasons. The Community is here for you if you need emotional support. For those who have lost a child, lost their mum or have a difficult relationship with their mum, it can be a particularly emotional time. Certain days or events like these can often trigger lots of different emotions, no matter how much time has passed. Our thoughts go out this weekend to anyone grieving for their mums, or mother-figures. You can find support…

Steph - Online Community Team
Community in Bloom

We’re starting to see the first signs of spring and welcoming the brighter evenings. You may remember the ‘Winter picture festival’ that was featured on the Community cancer forum at the end of last year but because we received such great feedback from members that took part, and others who loved seeing the pictures posted, we have decided to launch our very own ‘Community in bloom’. This will be featured in our Express yourself group so please do join and get involved. This is a space for members to share springtime images of wildlife, gardens, seasonal foods and cooking, alongside anything which fits within the springtime theme. It’s a chance to show off your creativity if you enjoy crafts or have taken a picture which could brighten up the site. You’re invited to post as many images…

Megan- Online Community Team
Cancer & me 35 years on - International Women's day

Today marks international women’s day, a day where we celebrate the social, economic, cultural and political achievements of women. It is also a day to highlight women’s issues and rally for gender equality. Here at Macmillan we are dedicated to supporting anyone who has been affected by cancer and champion for better cancer support for all. Hearing and listening to the experiences of everyone is vital in doing this. In honour of International Women’s day, we are pleased to bring you a special edition of Willo’s blog series ‘Cancer & me 35 years on’. Willo, an artist who was diagnosed with Anal cancer in 1986 while living in Zambia, has been sharing her experience of life post diagnosis in her blog series with us. After reading today’s blog, in which Willo talks about finding confidence…

Former Member
Ovarian Cancer- Anne's Story

March is Ovarian Cancer Awareness Month so to recognise this, Anne who is known as KralC on the Community, has kindly shared her blog post ‘ Who… ? ’ to tell her story and spread further awareness of Ovarian Cancer. We would like to take the opportunity to thank Anne for sharing her personal experience with the wider Online Community and send our very best wishes to her with her ongoing treatment and tests. Who… ? Who would choose to write this down? Who would choose to read a story like this? Not me. Not in all the months since my ... diagnosis. No, not me. Isn’t the word - CANCER - in itself enough to stop any vague distant notion before the idea could even begin to formulate itself? In the past I have rushed by the broadcasts, the features, the interviews, the podcasts, the TV…

Megan- Online Community Team
Let’s talk about treatment: Prostate cancer and zoladex injections

In today’s Community News Blog, we’re kicking off Prostate cancer awareness month and our new “Let’s talk about treatment” series. This series will feature stories from members of the Online Community around what their treatment experience was like. Firstly, we have Roger, known as Pozthinker on the Online Community cancer forum . Roger was diagnosed with prostate cancer in 2011. They’re here to talk about zoladex injections and managing their long-term symptoms. Zoladex is a type of hormone therapy . It is also known as Goserelin. People might have it as a treatment for breast or prostate cancer. I was first diagnosed with prostate cancer in 2011, the year I was 66. (Yes, I'm 75 now.) I first opted for radiotherapy, but I was unable to hold my water. However, I was able to stay with the…

Eliza -Online Community Team
How reflexology helped me – Charlie’s story

In today’s Community News Blog, Charlie shares with us how reflexology has supported her throughout her cancer journey. Charlie was diagnosed with breast cancer and underwent surgery in January this year. She wanted to share with all of you how a few simple techniques have helped her with stress, sleep, bowel movements and swelling. She’s kindly put together some videos for us, to show us some simple self-help reflexology tips. Why not have a go and let Charlie know what you think in the comments section below? What is Reflexology? I wanted to share my story and cancer journey so far as I have been enormously helped by Reflexology and the benefits of reflexology seem to be quite unknown. As a Clinical Reflexologist I have been helped through my journey using a range of simple self-help…

Ellen - Macmillan
Look out for our improvements!

It’s been a little while since we last posted about our plans for improving the site. In today’s news blog, we’re telling you about five improvements which will be coming to the site within the next few weeks. If you have any questions, please feel free to comment in the comments section below and one of the team will get back to you. ‘Latest’ hyperlink in forums First up, we have the ‘Latest’ link within discussion threads. When you go to one of your groups, and you look at the discussions list, you should see the option to select ‘Latest’. See the screenshot below: At the moment, when you select ‘Latest’, you are taken to the first post within the thread and not the latest post. We’re changing this so that when you select ‘Latest’ you’ll be automatically taken to the most recent post…

Steph - Online Community Team
A day in the life of an LGBTQ+ Network Lead

Previously in our “A day in the life” series, we’ve featured members of staff you could talk to on Macmillan’s webchat and Support Line. This time, as part of LGBT+ History month, we’re taking you behind the scenes. Anna, alongside her full-time role at Macmillan, volunteers as Network Lead for the LGBTQ+* Network. * LGBTQ+ stands for lesbian, gay, bisexual, transgender/trans+, queer/questioning, and other marginalised identities. If you’d like to learn more about what being LGBTQ+ means, please take a look at our previous blog . What is the LGBTQ+ Network at Macmillan, and why is it important? The network is a safe space for LGBTQ+ staff working at Macmillan. It provides collective support and connection, aiming to improve members’ experience of working here. We have vastly ranging backgrounds…

Eliza -Online Community Team
Looking after yourself, by yourself

Here in the Online Community, we know the power that peer support can have. Spending time with a loved one or talking to someone online who knows what you’re going through, can be incredibly important sources of support. However, sometimes there might be nobody around when you need support, or you might not want to talk to someone right now. Your friends and family might be busy, and you might be waiting on a reply to your post on the Online Community cancer forum . In today’s Community News blog, we’re exploring ways you can help yourself feel better, self-care and looking after yourself when you’re feeling low. What helps each of us feel better can be very individual. There are likely to be many things that you find helpful, that might not be included in this blog. However, we hope that…

Eliza -Online Community Team
Looking after you - coping with a recent bereavement

There is no right or wrong way to feel if you have just experienced a recent loss. Everyone is different, and everyone’s relationship with the person who has passed away is unique, so it’s natural that each person will need different support depending on how they feel. The most important thing to remember is that you are not alone. The Community, and Macmillan, are here to support you. As part of this support, we wanted to put together some information about looking after yourself after a recent bereavement. In the days or weeks after the loss In these early days after a bereavement being kind and gentle with yourself is so important. You may be experiencing shock, numbness, anger, extreme sadness or a whole range of different emotions. There is no wrong or right way to feel, but there…

Former Member

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