Community News - Macmillan Online Community

Thanks to you, our Community members and Community Champions.

https://youtu.be/kWX6g1XCjWc Today is Macmillan Cancer Support’s thanks to you day and this Community News Blog is dedicated to you, the Online Community members and our amazing Community Champions. Macmillan are sharing a video of thanks to everyone who supports us, or who helps Macmillan support others. You can watch it by clicking play on the video above. Feel free to share this blog and our thank you video on your own social media accounts. On behalf of the Community team, we wanted to say a big thank you to you all for the support you share with each other across the Community. With your support, Macmillan can be there for more of the three million people living with cancer in the UK, their family and friends. We are a Community of over 90,000 members affected by cancer. We support…

Steph - Online Community Team
"Thank you to all the community champions, your kindness and dedication is absolutely amazing"

It’s volunteer’s week from 1 st - 7 th June and we hope you’ll join us with saying a big thank you to our amazing Community Champions. They are members of the site who dedicate their time to support members of the Online Community. “Thank you to all the community champions , your kindness and dedication is absolutely amazing” Community member, Community news blog “Thank you so much. You've been supportive from the start and encouraged me all the way. You’re an absolute inspiration x" Community member, Cervical cancer forum “ Thank again, you are always there for people with good advice and support, so very kind, no wonder you are a community champion.” Community member, Diffuse large b cell lymphoma forum “Thank you for taking on the role of champion. Your support is invaluable to everyone…

Megan- Online Community Team
Dealing with Change

The emotional effects of dealing with change and cancer are something that is often talked about by our members. “This is so hard and I get frustrated with all the conflicting emotions, whether the changes I'm making are right or wrong and if Nic would approve of what I'm doing. I have a lot of support from friends and family, but am feeling very lost at the moment and can't say this to anybody apart from you lovely people on this site as only you truly understand what it's like.” - Community member, bereaved spouses and partner forum. “Feeling very emotional about it all, it’s all flooding back, not even sure I have whilst accepted what’s happed to me in the past 12 months, mixed bag of feelings tonight and not quite sure what to do with myself.” - Community member, Breast cancer forum…

Tom C - Online Community team
Finding support for stoma reversal and LARS on the Online Community

The Ileostomy, colostomy and stoma support group on the Online Community is a place where members can support one another through surgery, managing a stoma , diet tips and keeping comfortable. Following surgery for bowel cancer , colorectal cancers , other cancers and pre-cancerous conditions, some members have a permanent stoma , others may have been offered a temporary stoma . When you have a temporary stoma, you might be offered a stoma reversal. Members recently asked if we could provide a dedicated space for conversations around stoma reversal and Low Anterior Resection Syndrome (LARS). We’ve responded by adding a new forum to the Ileostomy, colostomy and stoma support group called the Stoma reversal and Low Anterior Resection Syndrome (LARS) forum. The new forum which you can find…

Steph - Online Community Team
Telling children about cancer

Alongside receiving a cancer diagnosis, one of the toughest moments a person can face is having to tell their children that they have cancer. Finding the words can be difficult, especially when trying to process the information yourself. It’s challenging but a conversation many will have to have, especially if mum or dad could potentially be struggling physically. In this blog, we take a look around the Community and see how other members have approached this sensitive subject. How do you approach this subject? Is there only one way to approach this? You can ask a professional such as a doctor or nurse, but maybe they haven’t experienced what other members have. The things they wish they had done differently whilst telling their children as well as the things that worked for them. The most…

Syed - Macmillan
Confused about your diagnosis or treatment options?

Lots of members come to the Online Community with questions. It can be really difficult to cope with feeling that you don’t understand your own cancer diagnosis, treatment options, or information you’ve been given. It’s important to make sure you can access the explanations you may need. It’s also important that you are asking questions in the right place. Remember that you’re not alone, and that there’s lots of support available to you. “I'm just very confused that all this has happened so fast” Online Community member, ‘Acute myeloid leukaemia’ group Receiving a new diagnosis can be overwhelming. You might have received information you don’t understand, or medical terms which sound confusing. Not understanding your diagnosis may cause more worry and uncertainty. You might feel frustrated…

Eliza -Online Community Team
Are you feeling lonely?

There’s a lot of conversations about loneliness recently as it’s been a discussion topic for mental health awareness week. Feeling lonely can affect your mental and health and w e often hear members of the Online Community talk about how lonely they feel. We’re talking about loneliness in this blog so why not stay and read more if you’re looking for some company, or to find others who are also feeling the same as you. The past couple of years during the coronavirus pandemic, most people have experienced loneliness as social interaction was stopped and we were told to stay at home to keep safe. For a lot of people, feelings of isolation and loneliness doesn’t just come from being physically alone, but something that can is often felt when you’re affected by cancer. “The last 12 months…

Megan- Online Community Team
Story of the Month: Jennifer

Have you ever felt misunderstood during your experience with cancer? Here in the Online Community, we’re excited to launch a new series working with Macmillan’s Digital Storytelling Project, where people affected by cancer have created their own videos to talk about their experiences. We’re starting with Jennifer as our first story of the month for May 2022, also known on the Online Community as . Jennifer has created a video to share her experience of receiving a cancer diagnosis as an autistic person. Her video is called ‘Take a moment’. She talks about her feelings of being misunderstood by medical professionals and the assumptions made about her. Jennifer also shares how her experiences have changed her perspective on both herself and how she wants to move through the world. “I am…

Eliza -Online Community Team
“I’m fine”: how do you really cope as a carer?

Community member and Macmillan volunteer Wee Me has been through a lot since her husband was diagnosed with a brain tumour in August 2020. Along the way, she has learned a lot about her own resilience and looking after her wellbeing. You might have read Wee Me’s story in her recent guest blog, “Caring for a partner with a brain tumour.” Today, Wee Me is talking about the coping strategies that work for her and how it’s ok to cope in a way that feels right for you. One of the frequently asked questions or themes running through the ‘Carers only’ group and many other groups within the Macmillan Online Community is “How do you cope?” How many times have you been asked that and replied along the lines of “I just get on with it. I’m fine.” Now I can’t begin to imagine the emotional journey…

Eliza -Online Community Team
Feeling Under Pressure

People affected by cancer have been under pressure, more than ever, in the last few years. As the NHS was stretched in dealing with the Coronavirus pandemic, treatment delays and necessary changes in the way healthcare works, have left many feeling scared and worried. "It’s a scary thing at the start as it’s the waiting which is one of the hardest to cope with. My treatment was during the covid lifting of restrictions and the impact on the hospitals meant scans were delayed and also results. I think maybe because it takes what feels like so long between each step, it causes my inner negative voice to rise to the surface." - Online Community member, Anal cancer forum. The additional challenges brought by COVID 19 are shared and talked about on our Community. "The reason that I am posting…

Tom C - Online Community team
Supporting men with breast cancer in the Online Community

In our October 2021 Community News blog for breast cancer awareness month we linked to some Macmillan information on male breast cancer with the hope it could help people find that information when they need it. A breast cancer diagnosis in men is rare, so it can feel particularly isolating when going through diagnosis, treatment and beyond. Recently, a new member of the Community posted in our breast cancer group , looking for other men going through similar experiences . In this blog, we will be highlighting the conversation that followed with the intention of helping others find the group and join in. There is lots of support offered to everyone in the breast cancer support groups across our Online Community . “ Hi, I have recently joined this female dominated cancer world I have had…

Steph - Online Community Team
Finding cancer support over the Easter bank holiday weekend

As we head into the UK bank holiday weekend, some of us are celebrating Easter with family and friends. Some of us are almost halfway through the month of Ramadan, a time for reflection and spending time with loved ones. For some of us, it might also be a worrying or sad time. You might be waiting for results, coping with the side effects of treatment, supporting a loved one with cancer or struggling with a bereavement. We wanted to reach out through our Community News blog to highlight the support available to you over this weekend and beyond. “ My family is coming over Easter. I like that very much but now I need to prepare food and stuff. A bit stressful and my energy level is still low.” - Community member, living with cancer outside of the UK forum. Cancer support from the Online…

Steph - Online Community Team