Community News - Macmillan Online Community

Online Community downtime: Thursday 9th March 2023- 7am to 9am

There is some planned maintenance taking place on Macmillan’s website on Thursday 9th March from 7am-9am. So that this essential maintenance can take place, the Online Community will experience some downtime. This means that members will not be able to log in, or join the Online Community, between 7 am - 9am On Thursday 9th March . We know how important the Community is as a source of support for our members, so we always do our best to ensure the site is not unavailable for any longer than necessary. Please know that while the site is down, although you will not be able to create an account, log into the site or post, you will still be able to view the Community and read posts and discussions for support. We understand that this may impact members who rely on the Online Community for…

Megan- Online Community Team
How do you prepare to hear the news? Getting the results with member Wee Me

Whether you have been personally diagnosed or you are supporting a loved one, waiting for and getting results can be difficult. It can be hard to know how you might feel if you receive news you didn’t want or didn’t expect. You might know Community member and Macmillan volunteer Wee Me from our “Carers only” group or “Glioblastoma multiforme brain tumour” group . You might also know her from all her blogs here on Community News. Wee Me’s husband was diagnosed with a Glioblastoma brain tumour in September 2020. Following on from her blog in March 2022 for Brain Cancer Awareness Month, Wee Me is here today to talk about hearing the news. She shares her experience of going to appointments, looking at scans and hearing her husband’s results. “Point to the picture of the blue pencil under the…

Eliza -Online Community Team
Oesophageal cancer: Michael’s story

Getting a cancer diagnosis and going through treatment can change a lot. This experience might change how you feel about yourself, alongside how you feel physically and emotionally. Everyone’s experience of cancer can be different. But it can be comforting to know someone else might know how you feel. Someone else here on the Community might have gone through what you’re experiencing. Every month, we share a person from Macmillan’s Digital Storytelling project here on the Online Community. Today, we’re featuring Michael who has shared his experience of oesophageal cancer. Michael is here on the Online Community as Jamesp. If you or a loved one have been diagnosed with oesophageal cancer, there’s kindness and understanding on the Online Community. You might find it helpful to look at our…

Eliza -Online Community Team
Relationships, sex and cancer - support from Macmillan's Online Community

Lots of people are celebrating Valentine’s Day today as February 14th marks a day of celebrating love around the world. In this Community News blog we will be exploring how cancer might affect love and intimate relationships. Whether you have been together for a long time, in a new relationship or considering dating, there is support available for you. Some people find it helps to talk to other people who are in a similar situation. Members of the Community have been supporting one another with experiences of cancer, love and relationships. When you or your loved one has been diagnosed with cancer, it can be a lot to cope with. "It is like living in an alternate reality. Life is going on and we have to carry on and function as if everything is normal but at the same time we are dealing…

Steph - Online Community Team
Cancer and the Menopause: watch our Instagram Live with the Titty Gritty

Whether it's early menopause due to treatment, or going through menopause whilst living with cancer, menopause and cancer is something we often see being discussed on the Community. From hot flushes to mood swings, brain fog and fatigue, our members have been sharing their experiences and offering tips and support to one another. To help raise awareness and break down taboos surrounding the menopause, this Friday, 3rd February ahead of World Cancer Day on 4th February, Macmillan’s National Clinical Adviser Dr Hannah Tharmalingam will take part in an Instagram Live event with cancer campaigner and broadcast journalist Helen Addis. Known to her followers on Instagram as @thetittygritty , Helen is dedicated to raising awareness around cancer, following her own experience of breast cancer. …

Ellen - Macmillan
Are you worried about hair loss? Hair loss support from Macmillan’s Community forums

We recently shared Ellie's story as part of the digital storytelling project. Ellie shares her concerns about her kidney diagnosis and hair loss. Today's blog is sharing support information if you are also worried about losing your hair. Hair loss can be a side effect of your cancer treatment and often causes a range of emotions. Your hair can often form part of your identity so it's natural that losing your hair is causing some concern. Our Community members regularly share experiences and tips for coping with hair loss. In this blog, we are highlighting conversations about hair loss from different Community forums and sharing support information. Hair loss support from our forums You’re not alone if you’re worried about losing your hair. It's also natural to have questions and concerns…

Megan- Online Community Team
Coping with hair loss after a kidney cancer diagnosis: Ellie’s story

For lots of people, worrying about side effects can have a big impact when you’ve had a cancer diagnosis. Ellie was diagnosed with kidney cancer in 2015. As part of the Digital Storytelling Project, Ellie has shared her experiences as a poem. Ellie talks about her experience getting diagnosed, and her worry around hair loss. Like Ellie, lots of members here on the Community share how they’re feeling about diagnosis, side effects and hair loss. If you’ve been diagnosed with kidney cancer, you might find support and comfort in our “Kidney cancer” forum . This is a safe place to find support and talk to other people affected by cancer. Ellie has shared her story as a video. Ellie describes her video below: “My kidney cancer journey – about trusting my instincts; the good times, bad times…

Eliza -Online Community Team
Hysterectomy support from the Macmillan Online Community forums

A hysterectomy can be hard to deal with physically and emotionally. Our forum members can help you cope through shared hysterectomy experiences. Some members have been talking about total hysterectomy (sometimes known as a simple hysterectomy) where the surgeon removes the womb and cervix. Others are discussing radical hysterectomy where the surgeon also removes the upper part of the vagina, pelvic lymph nodes and tissue surrounding the womb and cervix. Whatever your experience, it can be really helpful to be able to talk to real people who have been through a hysterectomy. How our forum members support each other with hysterectomy When you are facing a hysterectomy and you’re not sure what to expect, you can chat things through here on the Community. Prior to surgery or hospital stay…

Steph - Online Community Team
Waiting for Breast Biopsy Results

Receiving a cancer diagnosis is one of the toughest moments a person can face. Whether it’s you or a loved one, going for a biopsy and waiting for test results can be a nervous and anxious process, as they can potentially affect the rest of your life. About 55,000 women are diagnosed with Breast Cancer in the UK every year. There are also around 390 men are diagnosed with breast cancer in the UK. As one of the UK’s most common cancer types, we take a deeper dive around the Breast Cancer forum within the Community and see how other members have reached out for support during a difficult time. What the Community says If you or a loved one have recently had a biopsy for breast cancer and feel worried about the results, you’re not alone. There are a lot of members who post on the Online Community…

Syed - Macmillan
Looking back at the Online Community in 2022

We’re coming to the end of 2022 and as the new year approaches, we wanted to take some time to look back at what’s happened on the Online Community this year. This blog is a short overview of some Community highlights. The Online Community team would firstly like to thank all our members for the kindness and support that you have shown each other this year. There have been over 75,802 posts in our Community groups which shows the tremendous amount of peer support that can be found here. We’ve had lots of new members join our Community in 2022 and the power of peer support grows every day in our Community groups. Connecting with others who share similar experiences can provide comfort and reassurance. There's spaces for loved ones and those living with cancer to find support 24/7. “Coming…

Megan- Online Community Team
Winter Wonderland on the Online Community

Header image: Thehighlander The Winter Picture Festival is held every year here on the Online Community. The festival is to celebrate the season and our members’ creativity. Our members, as always, have shared some amazing photographs with all of us. We’d firstly like to say a big thank you to everyone who shared a picture and helped make the Online Community magical this December. Your pictures have spread a lot of joy and comfort across the Online Community. The Winter Picture Festival is also a great way to highlight how creativity and nature can be great for self care and your mental wellbeing. There was a clear theme in this year’s Winter Picture Festival. This turned out to be the beauty of nature at this time of year. From snowy castles to frosted leaves, Community members took the…

Eliza -Online Community Team
Coping with loneliness over the holidays

Loneliness is something we see members of the Community talk about throughout the year in our Community forums. Feelings of loneliness are often experienced when you have cancer as you may not have told anyone about your diagnosis or told them how you are coping. This time of year can be difficult for many people for lots of reasons and not alone if you’re struggling. Hopefully, this blog will provide some comfort as we’re highlighting conversations from our forums and including support information. “Christmas can be an awful time of year - not just for those of us who have undergone/ getting on with cancer treatments - yet also anyone that feels lonely/ suffering mental problems, etc. It's a very difficult time of year!” Community member, Bowel (colon and rectal) cancer forum “It’s a…

Megan- Online Community Team