Relationships, sex and cancer - support from Macmillan's Online Community

9 minute read time.
Relationships, sex and cancer - support from Macmillan's Online Community

Lots of people are celebrating Valentine’s Day today as February 14th marks a day of celebrating love around the world.

In this Community News blog we will be exploring how cancer might affect love and intimate relationships. Whether you have been together for a long time, in a new relationship or considering dating, there is support available for you.

Some people find it helps to talk to other people who are in a similar situation. Members of the Community have been supporting one another with experiences of cancer, love and relationships.

When you or your loved one has been diagnosed with cancer, it can be a lot to cope with.

"It is like living in an alternate reality. Life is going on and we have to carry on and function as if everything is normal but at the same time we are dealing with something that feels so abnormal! It reminds of that awful feeling when you are travelling to the funeral of someone you were particularly close to and you look out of the car window and wonder how the world is still turning." Community member, breast cancer forum

Communicating with your partner when you have cancer

Cancer might put a strain on your relationships. Every relationship is different and people deal with things in their own way. It's important to talk things through and recognise that you will both be dealing with some really difficult feelings. The Community is a place where you can share your emotions and support one another.

“I’m at home so we’re spending a lot of time together which I’m grateful for, but I don’t want to spent the time we have left arguing.” Community member, family and friends forum

"I feel like our relationship has taken a battering from this and I just don’t know how we will cope when treatment really kicks in" Community member, oesophageal cancer forum

Communication can be really important to understand how your partner is thinking and feeling. Going through cancer together might be difficult, but some couples find that it makes your relationship stronger. 

"My husband was my rock and he had lost his first wife through cancer and I felt really guilty putting him through it again and upsetting him but he needed to know how I felt to support me." Community member, anal cancer forum

"Staying honest with our loved ones, even if that means occasionally saying, 'I'm not really okay at the moment, thanks for asking. But I'm pretty sure I will be. I could use a hug!' or even 'I'm doing well overall, but sometimes it overwhelms me and I need to be on my own for a bit, so be patient with me if I'm not very communicative.' Or whatever your emotions dictate at the moment. It's how we get through this. Day by day, moment by moment." Community member, anal cancer forum

In addition to talking to each other, you might find it helpful to talk to a friend or family member. It might be even more helpful to be able to talk things out anonymously on the Online Community.

"Hello all, just wanted to say hello and how pleased I was to find an LGBTIQ group on here. I've recently been diagnosed with breast cancer and am currently in the horrendous waiting stage whilst more tests are being done. Struggling emotionally but thankfully my wife is very supportive.” Community member, LGBTQ forum

When your loved one has cancer and relationships as a carer

The person with cancer might feel frightened, angry, guilty or lonely. You might also have some of these feelings.

"My wife is really positive and strong but tears are so near the surface. I feel I can’t show my own feelings and must be strong for her." Community member, glioblastoma multiforme brain tumour forum

"“I can’t imagine being here without him and am so scared to lose my soul mate. I never reach out but I’m scared... I thought it might help to talk to others like me.” Community member, LGBTQ+ forum

However you are feeling, there is lots of support available from people who understand what you are going through.

"Please don't carry guilt around with you anymore as I truly believe that people understand the changing roles we take on in caring for them and accept that love is still shown albeit in a different form" Community member, cancer chat forum

"Please don't apologise for expressing your feelings . This is the right space to rant/rave/vent or whatever you need to do.  Everyone here understands and you don't need to explain" Community member, glioblastoma multiforme brain tumour forum

Cancer, sex and intimacy

You might be concerned about how the emotional impact of cancer will affect your relationship. If you’re in an intimate relationship, you might worry about how cancer treatment or side effects could affect your sex life. The Community is a online support group where you can share your feelings anonymously in a safe space.

Intimacy might mean different things depending on your relationship. It can mean holding hands, kissing and touching, not only full sexual intercourse.

"However, I am struggling as well and when I struggle or get upset or anything like that then I want affection, whether that’s hugs, holding hands, little kiss, anything like that really. She just seems to push me away, whether it’s not take my advice or physically push me away when I try and comfort her, at the moment it feels like we are friends, sometimes not even that. I do not want this to break us but it feel that is going that way and there’s nothing I can do to change it because she doesn’t want my support, I’ve tried to be really romantic and tried to have a bit of us time… but if anything I do she doesn’t want. It’s really upsetting me now and I need some help and advice please" Community member, emotional support forum

This member came to the Online Community with a positive message about meeting a new partner and sex drive after cancer. 

It is possible to remain sexual after breast cancer.  It is possible to be desirable after mastectomy without reconstruction (possible with also).  It is possible to find playful pleasurable ways to have sex and intimacy after breast cancer.“ Community member, breast cancer forum

We're here to talk about your worries too. Your or your partner’s body image and self esteem might be affected by a cancer diagnosis. If you have sexual intimacy in your relationship, you might be concerned about physical changes to your body. Lots of members in the Online Community have been talking about vaginal dryness and erectile dysfunction and other issues that might affect your sexual desire or sexual function.

"Having read the information sheets about Zoladex, I understand that recovery from the loss of libido & ED can be slow & possibly no recovery. Prior to the PCa diagnosis, my partner & I had a very healthy sex life & despite it "not being everything", it was an important part of our lives & I am (we are) increasingly worried it may now be over." Community member, prostate cancer forum

"I seem to have many of the reported side effects of letrazole, but one of the main ones is vaginal dryness. Sex has become unbearable...I really miss the intimacy with my husband and I feel I am too young to say goodbye to that side of our relationship. My husband has been amazing and there has been no pressure from him." Community member, Ask a Nurse

In addition to talking to other members, you can also find support from Macmillan on the Community in our 'Ask an Expert' sessions. If you would like to read the full question about vaginal dryness and read the response from nurse Rachel, you can click on the link at the end of the quote above. There's a link to the original post at the end of each quote in this blog. 

Body image and cancer

Even if you're not experiencing any sexual issues, cancer and the effects of treatment might change the way you feel about yourself. Your self-esteem and general well-being might affect your relationships.

“I totally struggle with the person I see in the mirror. I find it hard to look at old photos, or wanting to be in new photos, because it's hard to see what I've "become". At the same time, who gives a crap what I look like besides me? Not my family, they're just glad I'm here! Ditto for my partner. And I don't want to deprive them of any memories of me, after I'm gone, because of my self-consciousness.” Community member, living with incurable cancer forum

Dating, new relationships and cancer

Whether you have had cancer or been bereaved by cancer, you might consider how this will affect future relationships. 

"I joined a dating website and recently met a really nice man.  Before i had discussed my health he told me he had spent a few months last year looking after a friend with cancer. So I told him about my situation and he is more than happy to spend time with me, is very kind and thinks a lot of me. So I am very touched and happy about it. There are indeed some decent kind men out there like some of you said! And I can be lovable, including my cancer not despite it." Community member, living with incurable cancer forum

For some people, it can be all about working on re-connecting to your self and getting used to your new normal.

“I'm working in my spiritual connection. I aim to dance in Brighton Pride in the Parade again. It was my first time last year. Embrace the new, just get through the treatment first and slowly emerge like butterfly.” Community member, breast cancer forum

Whatever your experience, there is support available in the Community for whatever you might be going through.

Found this blog helpful? Why not read the following:

There's lots of support to be had by connecting with others who share a similar experience. Why not share what is worrying you by posting in our Community groups. There's no judgment here and remember, the Community is an embarrassment free zone. 

 Looking for more information and support around cancer and relationships from Macmillan? Please find links to some of our popular webpages below:

Anonymous
  • Dear all, I am confused about all the illnesses, my husband has. First of all, he has Altzeimer's, for 8 years now, then Lung Cancer

  • Sorry I pressed wrong button. To continue, 2years ago. he was diagnosed with Lung Cancer. He also has an ulcerated stomach and digestive track. He refused treatment.with this. He is 91. It is very hard to look after him, as he refuses to accept that he has Altzheimer's therefore he carries on DIY jobs and wrecking our home. He appears to have pains in his chest. so I got him painkillers. Now he denies he has any pain. I am only venting. I don't expect miracles, I just have to keep on keeping on as my brother comments. 

  • Hi Deedee WD,

    It’s Megan here from Macmillan’s Online Community team. I’d firstly like to welcome you to the Community, I hope it can be a comforting source of support.

    I’m sorry to hear you are feeling confused about your husband’s illnesses. It sounds like you have both been coping with a lot just now, so I am glad you are reaching out for some support.

    You may find it helpful to post a question in our Ask an Expert section where specialist teams of Nurses and support advisers can provide further support. They can look into the support available to you and your husband, and talk through your concerns.

    If you’d prefer to talk, you can speak to the Nurses and other specialist teams on the Support Line. They’ll be able to answer clinical questions about a cancer diagnosis, treatment and side effects. If you’re worried and want to talk through your concerns and questions, please do get in touch.

    To get in touch you can call 0808 808 00 00 from 8am to 8pm 7 days week. There’s also the option to send an email or start a live webchat during the opening hours.

    In the meantime, the information in Macmillan’s Cancer and dementia: a guide for carers booklet may be useful to you. It includes some guidance for managing the two conditions with practical tips to help you access support. You can view this online or order a copy for free.

    Here on the Community, we have groups such as the Lung cancer forum and our Family and friends forum that you may want to join. Here there are others sharing their personal experiences, asking questions and offering support back.

    Do let us know if you have any questions about using the Community or need some help accessing the support you’re looking for. You contact the Community team by sending an email to community@macmillan.org.uk or by sending a private message to the moderator account every day.

    Best wishes, 

    Megan
    Macmillan's Online Community team

  • I was diagnosed with breast cancer September 2022. I had surgery and having chemotherapy. I was in a relationship from September 2021 and my boyfriend and I broke up. Firstly I could see he lacked empathy towards me and he then told me he lacked empathy. He said he was trying. He was given some information via whatsapp by his sister on caring for someone with cancer. He then sent it to me. I said that it was for him not me. I asked him whether he would contact the organisation and he said no. I noticed that he never really asked me how I was much. When |I came out of hospital the same day after my surgery in November 2022. He didn't come to see me until about 4 or 5 days time saying that I needed time or something like that. Luckily my daughter were there for me. His words eventually didn't match his actions. 

  • Hi  

    I'm Steph from the Community team. Thank you for sharing your experience in response to this blog, although I am sorry to hear what you have been through. 

    Lots of members of the Community talk about their relationships and find support from the forums. 

    We'd recommend you join the breast cancer forum and introduce yourself there so that members can offer you some support. You can share your experience and find support from people who understand.

    We hope that the Community helps you feel less alone.