Community News - Macmillan Online Community

Where can I find support over the festive season?

This week can be a difficult time and can sometimes cause some anxiety for those who need support. Services’ opening hours can change, public places can be hectic, family members and friends may be less available to talk due to preparing for the season. Our recent blog “What does the festive season mean to you?” talks a lot about the emotions you might feel. Many of you found this blog helpful to read and shared your thoughts in the comments section. Following on from this blog, we’re highlighting support services which are available for you during the festive season. Support from Macmillan Macmillan’s Information and support team, alongside our Clinical nurse specialists on the Support Line are available as usual throughout the festive period. Please remember our Support Line is available…

Eliza -Online Community Team
Feeling Under Pressure

People affected by cancer have been under pressure, more than ever, in the last few years. As the NHS was stretched in dealing with the Coronavirus pandemic, treatment delays and necessary changes in the way healthcare works, have left many feeling scared and worried. "It’s a scary thing at the start as it’s the waiting which is one of the hardest to cope with. My treatment was during the covid lifting of restrictions and the impact on the hospitals meant scans were delayed and also results. I think maybe because it takes what feels like so long between each step, it causes my inner negative voice to rise to the surface." - Online Community member, Anal cancer forum. The additional challenges brought by COVID 19 are shared and talked about on our Community. "The reason that I am posting…

Tom C - Online Community team
Holly’s Cancer Poems: Finding support and talking about cancer (Part 3)

Holly’s collection of cancer poems were written following her breast cancer diagnosis in January 2005. Her poems talk about her experience of diagnosis, treatment including surgery and treatment, side effects and talking to her sons about cancer. In today’s blog, Holly talks about explaining cancer to children and saying thank you to the people that helped her through. Holly’s collection is called “Holly’s cancer poems…The truth behind my smile.” You can catch up with Holly’s story so far by reading her previous blogs on Community News: World Poetry Day: Holly’s Cancer Poems (Part 1) Holly’s Cancer Poems: Coping with chemotherapy (Part 2) If you’d like to go straight to Holly’s poems, just use the buttons below: Holly's poems: The future Pterodactyl in my tummy Last…

Eliza -Online Community Team
Winter Wonderland on the Online Community

Header image: Thehighlander The Winter Picture Festival is held every year here on the Online Community. The festival is to celebrate the season and our members’ creativity. Our members, as always, have shared some amazing photographs with all of us. We’d firstly like to say a big thank you to everyone who shared a picture and helped make the Online Community magical this December. Your pictures have spread a lot of joy and comfort across the Online Community. The Winter Picture Festival is also a great way to highlight how creativity and nature can be great for self care and your mental wellbeing. There was a clear theme in this year’s Winter Picture Festival. This turned out to be the beauty of nature at this time of year. From snowy castles to frosted leaves, Community members took the…

Eliza -Online Community Team
Prostate Cancer - How does our Community help?

March marks Prostate Cancer awareness month. You may have seen Pep Guardiola, the manager of Manchester City Football Club, donning the famous ‘Man of Men’ badge as well as billboards in various sports signposting to Prostate Cancer UK . According to Prostate Cancer UK , 1 in 8 will encounter at some point, however those odds are increased to 1 in 4 if you are black. It affects a lot of members in the Community; however, what kind of support is available for members on the Community? So in this blog, let’s take a deep dive into Prostate Cancer and how members support each other on the Prostate Cancer forum . As we nestle into the middle of March, we are also in the middle of Prostate Cancer Awareness Month . This month has been highlighted to provide the information, signs and symptoms to…

Syed - Macmillan
Not everyone can see your pictures

Thursday 3 rd December marks the International Day of People with Disabilities, or International Day of Disabled Persons. Not everyone might know that as part of the Equality Act in 2010, anyone with a cancer diagnosis can choose to identify as having a disability. However, it’s important to remember that people can be affected by cancer, and other disabilities, in very different ways. The theme for 2020’s International Day of People with Disabilities, is “not all disabilities are visible.” Of course, this is especially true on the Online Community. Here on the site, you can anonymously talk to people from all over the UK and internationally. While you might come to know quite a lot about someone else’s cancer experience, you might not always know how they might be affected by a disability…

Eliza -Online Community Team
Being bodies - breast cancer and wearing a breast prosthesis

Sapphie, also known on the Online Community as , was diagnosed with breast cancer at just 32. Sapphie talks us through their experience trying several different types of prosthetics following their breast cancer surgery in the 1990s, and how humour has helped them and their family over the years. I was diagnosed when I was 32 years old, after finding a lump and being told by a consultant I was too young to have breast cancer and was sent on my way. A few months later we moved to a new area. My new doctor referred me to a consultant took the lump seriously, and I was diagnosed with primary breast cancer. I had a radical mastectomy on the right and given options of further reconstruction in the future (this was normal in the 90s). I had a concave chest on the left, which caused a lot of laughter…

Eliza -Online Community Team
Thanks to you, our Community members and Community Champions.

https://youtu.be/kWX6g1XCjWc Today is Macmillan Cancer Support’s thanks to you day and this Community News Blog is dedicated to you, the Online Community members and our amazing Community Champions. Macmillan are sharing a video of thanks to everyone who supports us, or who helps Macmillan support others. You can watch it by clicking play on the video above. Feel free to share this blog and our thank you video on your own social media accounts. On behalf of the Community team, we wanted to say a big thank you to you all for the support you share with each other across the Community. With your support, Macmillan can be there for more of the three million people living with cancer in the UK, their family and friends. We are a Community of over 90,000 members affected by cancer. We support…

Steph - Online Community Team
Talking about body image after cancer treatment and improving your self esteem

When cancer or cancer treatment affects your body image, it can change the way you think and feel about yourself. Body image is important as it can be linked to feelings of self-worth. Members of the Community often talk about how the loss of their hair or change of appearance has affected them. In today’s Community News Blog, we will be sharing conversations about body image from around the Community. There is lots of support available and hints and tips to share. Please do have a read through and share with everyone who might need a boost to their self-esteem following cancer treatment. “I finished my chemo just over two weeks ago but feel so down, I think I thought I’m done, now to start feeling better but feel so awful all the time I look in the mirror and don’t recognise myself I…

Steph - Online Community Team
Travel Tips from our Cancer Forums

The neck pillows, the duty-free attendants waiting to spray you in the latest cologne or perfume, using your passport as a fan and the extortionate in-flight meal price. It seems like it’s that time again. It doesn’t necessarily mean you have to go abroad, a quiet break a few towns away is just as good to replenish and recharge. As we approach the tail-end of Summer, we take a look on the Community at how our lovely members provide their experiences to help others to try and have the best trip they can. Every person’s definition of holiday is different. You can go biking in a national park on a quaint family holiday, you can relax by the swimming pool at a hotel in Thailand or even explore some affordable staycations. Whatever the plan is, you can look to the Community for some summer holiday…

Syed - Macmillan
Cancer, exercise and you

Here on the Community we know that staying active looks different for everyone. Everyone is unique, and so is how they may feel emotionally and physically after their cancer treatment. For some people, trying to keep active and move their body after treatment can be a way of looking after themselves. It may help you feel less stressed and lift your spirits if you are feeling low. It can also help you feel more in control, because you are doing something positive for yourself. We all know the benefits of exercise, and that eating well and trying to keep active can be good for our physical and mental health. But for some people, building up fitness after treatment also means getting back to activities and sports that are important to them. Doing what you love and what makes you happy is…

Former Member
'Nobody is perfect, but my mum was about as close as it is possible for a human to get' - Benedict's blog

Benedict and his mum at his master’s graduation in 2018. Benedict used to work as part of Macmillan’s Community Team, he got in touch recently to send us a piece he wrote about coping with the grief of losing his mum on Easter Sunday last year. We wanted to share it with you all today, and we want to thank Benedict for writing such an honest, open, and powerful piece of writing for us. I’m not really sure why I’m writing this. Aside from a few tentative forays into journalism during a post-graduate career crisis, and some student essays of questionable quality, I’ve never been much of a wordsmith. But for the best part of 24 years, I do know that I have been somewhat of an introvert; an introvert who on the whole finds it difficult having difficult conversations with real human beings and…

Former Member