Community News - Macmillan Online Community

What should I take to treatment?

Finding out you have cancer can be an incredibly emotional and challenging experience. There’ll likely be more than enough questions and concerns running through your head without having to worry about the small things - such as, “what should I bring with me to the hospital when I go for treatment?” I’ve compiled suggestions across the Community from our members, and put them together to form a small check-list. “Trashy TV, films on iPad or DVDs…Favourite music, comfy headphones…Magazines…Favourite duvets/pillows, plus plenty of changes as daily laundry will be needed.” “Did anyone mention lip cream or a moisturiser? My lips in the dry air of the room cracked continuously. One other thing that was useful was an extension lead, so I could plug in all my bits and bobs by the bed and have…

Former Member
‘I felt so much love and support from my fellow carers that sometimes my screen was in danger from the wet of my tears! - What the Community means to me…Vol 3: moomy’s story

A very Happy New year from everyone on the Community Team, we are excited to kick off the year on the Community News Blog with the third volume in our series ‘ What the Community means to me…’ This series highlights just how much support, friendship and kindness is shared on the site every day. Today moomy shares her story, why not take a moment to read through? Missed the last instalment? You can click here to read Johnty and popgate’s stories. ‘I’m really called Helen. I know, the onsite name isn’t my real one! I joined the Online Community so many years back that I’ve seen it change a few times. I’m not even sure quite how long ago it was that I joined. It was then organised into two main groups, ‘General’ and ‘Chat’. I posted a question in ‘General’ but looked across at ‘Chat’ and saw…

Former Member
"Thank you all so much for sharing your journeys" - thanking all of you, our Community members

We wanted to take some time today to really focus on thanking each and every one of you for the support that you all give on the Community. Below are a few of many examples of the ways that members of the Community provide truly wonderful support to each other every single day in what may be an incredibly difficult time. Why not take a look through? 'You have found this amazing support group and there is always someone here to answer your questions no matter how trivial you may think it is. ...someone somewhere may have been through exactly the same at some point.' - Madesp "...there is always someone here to answer your questions no matter how trivial you may think it is..." 'No matter how much friends and family try to comfort you they will never truly understand how you feel. This…

Ellen - Macmillan
‘It’s a great comfort food’- Dining with an Ostomate: Fish pie

Debbie, our wonderful 'chef to ostomates' is back today with a delicious warming Fish Pie recipe, perfect for cold winter nights. All of Debbie’s recipes are, of course, designed with Ostomates in mind and in case you’ve missed any of her recipes to date, you can find them all in our Ileostomy, colostomy and stoma support group. So why not put an apron on and get cooking! 'This Fish Pie is another family favourite and is one that I have used many times over the last year as it’s a great comfort food.' Omit the onions if they upset your stomach. I never use cream, always milk and this has the added benefit that it freezes well. I often divide this into three portions and freeze two in foil containers. I usually defrost them before reheating for 30 minutes but you can reheat from frozen,…

Former Member
'My husband reassured me that I was more of a woman for finding the bravery and strength to face my fate head on...' - Understanding BRCA by Clarissa

'The emotional journey of coming to a decision to undergo risk-reducing surgery.' By Clarissa. As many of you may be aware October marks Breast cancer awareness month. This is a month of raising awareness and funds for a variety of breast cancer charities that provide lifesaving research and support to people affected by breast cancer. As the month draws to a close, we are pleased to have as a guest blogger in today's Community news, Clarissa, author of ‘ Understanding BRCA .’ Clarissa carries the BRCA2 gene and has written a blog for us today about her experience of making the decision to undergo risk- reducing surgery. Why not take a moment to read through Clarissa’s story? Clarissa, author of 'Understanding BRCA' After learning that I carried a harmful BRCA2 gene mutation…

Former Member
'Advice to Bureaucrats' by Michael

As lockdown is eased, yet shielding measures for many are extended, we wanted to share a poem with you from our guest writer Michael. ADVICE TO BUREAUCRATS It falls to you to draft a shielding letter Of weighty pages, not too clear, for someone Who has an underlying health condition, The relevance of which he may not know. Ensure you couch the information in Alarmist terms, including dicta aimed At other people rather than himself; Omit important pertinent personal details, Above all why he is included in This current noble process; for best results Print out a list of all diseases known To indicate great vulnerability Yet have no claim on his known dispositions; Don’t mention why the letter might be sent Well after start of lockdown, nor if the clearly Arbitrary…

Tom C - Online Community team
What do you wish you had known before starting Radiotherapy? The Online Community helps.

Our new blog mini-series is based on a question ‘what you wish you had known’. We’re bringing the Community together to share hints and tips around different cancer treatments or situations you might be facing. Today we’re encouraging the sharing of your experiences of radiotherapy. We know how helpful it can be to hear from someone who has been through it themselves. Whether you are starting radiotherapy treatment yourself, or supporting someone having radiotherapy, we hope this blog will help you find the suggestions you need . Radiotherapy hints and tips for all In the Radiotherapy forum , we asked the Community for their guidance in a recent thread ' What you wish you had known before starting radiotherapy ? ' Some of the advice provided could be relevant to anyone facing any type…

Steph - Online Community Team
Approaching Autumn - Celebrating the Online Community Seasonal Picture Festivals

Image: a collage of photos from Community Members - 'W ith a peaceful theme' As we approach Autumn, we are launching a new Picture Festival thread whilst taking some time to look back on the Spring and Summer pictures members have contributed in 2025. We asked members of our Express Yourself forum to share pictures of their Spring and Summer. This could include pictures of nature, art and crafts, pets or more. A big thank you to everyone who shared their images this year. We know that it can bring many of you joy to share and see pictures of nature here on the Community. Can you see your image shared in the blog? As the nights draw in and the weather is changing, images from Spring and Summer might help us all feel a little brighter. We are also looking forward to the changing colours…

Steph - Online Community Team
“It is a juggling act being a cancer patient and a parent.” – Priyanka’s story

Priyanka was diagnosed with triple negative breast cancer at the age of 36 in 2022. Priyanka lives in Aylesbury, with her husband, Manoj and two daughters, Keya and Shriyana who were 4 years old and 2 years old at the time of the diagnosis. Priyanka is a qualified teacher. Since, being diagnosed with cancer, she has gone on to become a life coach for children, supporting them through life’s challenges. Also, a published author, Priyanka has penned a heartfelt children’s book, When Mummy Had Cancer. Priyanka’s story Your world falls apart when you hear the words, you have cancer. Mine did too! You automatically think it’s a death sentence. When you have two young children, it’s terrifying. My first reaction was, what will happen to my girls? I want to be there to see them grow up. Experience…

Megan- Online Community Team
New Autumn/Winter 2026 Dates - Local Cancer Community Meet-ups

As early autumn and winter approach, we're delighted to announce a fresh round of face-to-face meet-ups in more cities than ever. If you're near any of the following locations, read on: Birmingham Bristol Colchester Dagenham Glasgow Lincoln Manchester Preston Rochester Sheffield Swindon Watford Westwood Cross (near Margate) Wolverhampton As always, these in-person events intend to build supportive communities of people local to the areas they're hosted in. To avoid confusing them with our Online Community, we refer to these events as 'Local Cancer Community Meet-ups' in this blog. If you would like to discuss attending this event with other members of the Online Community, please don't forget that our Community Guidelines still apply. The Private Messaging…

Matthew - Online Community Team
Neurodivergence and Cancer: Alison's Story

On being a "pepper pot "carer with cancer. In the Spring of 2016, I was diagnosed with myeloma, a type of blood cancer. I had not heard of this type of cancer. I was told it was incurable but treatable. I was 56. An article I read by someone who is living with blood cancer (and was much younger than myself at the time of their diagnosis) said that their diagnosis felt like their life had been hit by a wrecking ball. For me these words describe perfectly how I felt. The shock was enormous. I had been a carer all my life, from caring for a younger sibling with special needs whilst I was growing up, to working in a caring profession, to caring for my son who is autistic. In my own head, I had never envisaged a time when I would not be able to care for someone who relied on me. The diagnosis…

Emma - Online Community Team
Newly diagnosed with cancer? Advice from Macmillan’s Online Community

Receiving a cancer diagnosis can bring overwhelming emotions, uncertainty and many questions. It can be difficult to know what to do or where to turn, especially in those first few days. It can help to hear from people who have been there before. Last month, we asked members of the Online Community what they would say to themselves on the day they were diagnosed with cancer. We wanted to know what words of advice they would offer, anything they wish they had known at the time, and what helped them most during those early days. In this blog, we’ve brought together some of the replies our members shared. We hope their experiences, advice and words of encouragement will help anyone who has recently been diagnosed with cancer feel a little less alone and more prepared. Take things one step…

Dylan - Online Community Team