The power of shared support on Macmillan's Online Community

5 minute read time.
The power of shared support on Macmillan's Online Community

When you first join the Community, supporting others might be the last thing on your mind.

You might have just received a cancer diagnosis, feeling alone and fearful of what lies ahead. You might be reeling with news of a loved one’s diagnosis and not sure how you’ll cope. You might be struggling with cancer treatment and just want someone to talk to in the middle of the night.

Although finding support might be your initial need, you might be surprised to find that by simply posting here, your words will help to support others. We hope it brings you comfort to know that by sharing your personal experience here on the Community, you become part of a powerful social network of peer support.

"I came on your thread to comfort you and you've given me comfort right back! Thank you" Community member, breast cancer forum

The power of finding support from the Community

“I feel lonely all the time… I hope I’ll find a bit of support here I just want to share my emotions and just to talk. My friend advised me Macmillan Community and after a few days here I found similar people with similar problems and stories so I feel now not so alone” Community member, living with cancer outside the UK forum

We hear lots of members talking about unmet needs after speaking to family and friends. By speaking to members of the Online Community going through similar experiences, it can be a boost for your general wellbeing, mental health and in turn improve your quality of life.

"I think talking to someone who is in a very similar situation can be more comforting than someone you know can't really understand what you're going through" Community member, supporting someone with incurable cancer forum

Lots of members say they expected much better one-to-one emotional support from friends and family. Some expected in-person or face to face support to be the most helpful. Although the connections you form in the Community are anonymous and virtual, we hear regularly that support needs have often been well met.

"You will always be welcome here and you can say anything you want without ever being judged! This site is a safe place away from your family and close friends, a place where you are allowed to be honest about how YOU feel, without worrying about upsetting anyone else! We all have different experiences but we all support each other, regardless of whose case was ‘worse’ or ‘better" Community member, breast cancer forum

Many members find a certain empowerment in finding the right support network for them in the Community.

"I’ve found a lot of comfort in being able to come on here and put down my worries and hopes and ask for advice when I would not have been able to talk to family or friends without dissolving into tears" Community member, carers only forum

"Firstly, hang in there, you are not alone and this chat forum is full of so much optimism, hope, support and success stories...I am reasonably new here too, I have found it to be a comfort even knowing we are all in this unwanted journey together . You got this." Community member, breast cancer forum

We hope it brings you comfort to know that whilst finding support, you could also be making a big difference for another member in their time of need.

The power of supporting others

"When I come here and see how STRONG you ladies are being thru this most terrible ordeal. I feel not so alone, many hear have very positive attitudes....So I am going to stick around and hope some of that positivity wears onto me!"  Community member, breast cancer forum

Many members return to the Community after their initial support need has passed. Some members choose to share their experience in greater depth, with the aim of supporting others.

"This group was my life line and I am here for you whenever you need help or advice." Community member, skin cancer forum

"Hello all. I have benefited from some of the great advice and comments made by others on this journey. As such, I felt I should share this for anyone who may be facing a prostate biopsy." Community member, prostate cancer forum

"Thank you so much for your reply you've given me the tools to start me on my road to acceptance of my aunties death & ways to help me over come my sadness. ..Thank you to each & everyone in this community. I hope I can read group discussions & maybe share similar experiences & help comfort people" Community member, bereaved family and friends forum 

"Reading of others situations is actually quite inspiring as I know I am not alone and I hope soon I can reply to others and help them. Macmillan have been amazing over the past couple of years and without your support I certainly wouldn’t be where I am now."  Community member, bereaved family and friends forum 

This Community News Blog wouldn’t be complete without mentioning our amazing volunteer Community Champions. The Community Champions are usually members who felt they have benefitted so much from the support offered from the Community that they wanted to give something back. If you’d like to find out more about our Community Champions, or are interested in volunteering, you can find out more by reading our Community News Blog called  'Thank you to all the Community Champions, your kindness and dedication is absolutely amazing'

We completely understand that not everybody will be in the position to offer support through the Online Community. We hope it brings you comfort to know that by sharing your own experience and by highlighting issues that others might also be experiencing, you’ll be helping others.

Do you feel you’ve benefitted from the support shared on the Community? What have you found particularly helpful when receiving support or offering support to others? Let us know by commenting below.

Read more blogs like this:

Anonymous
  • I am not new here, however, it has been some time since  I posted. I was diagnosed with endometrial cancer five years ago. To date, it appears to have been managed. However,  I have developed symptoms that are causing me great pain and concern. Seven months ago, my husband died from a sudden and unexpected heart attack.  I was lying beside him having a nap when I felt it was time to awaken him. He never woke again. He was my life, my mainstay and support. My life will never be the same. Since that day, I have struggled with nausea, lack of appetite, and little interest in living.  I am told it is grief, yet I cannot imagine that anything on this earth could be so physically terrible.  I have no interest in anything and sit for hours in a state of nothingness. I cannot handle this loss coupled with the ongoing health scare. Please, help me. Ms. Muggles

  • Hi

    It's Megan here from Macmillan's Online Community team. I'm sorry to hear about your husband's passing and how you are coping at the moment. 

    We've sent you a message directly with some tailored support and hopefully this is helpful to you. 

    Please remember that alongside accessing peer support here on the Online Community, the Macmillan Support Line teams are also here for you. Sometimes it can help to talk things through with someone who’s there to listen. They’re available 7 days a week, 8am-8pm on freephone 0808 808 00 00email or live webchat.

    When you contact the Support Line there will be options to speak to the Information Nurse Specialists, the Information and Support advisers, and the other Money and Work teams. They can provide emotional support, practical information, and financial guidance alongside offering a listening ear.

    Please don't ever hesitate to get back in touch if you need further support. You're always welcome to email Community@macmillan.org.uk or send a private message to the moderator account.

    Best wishes,
     
    Megan
    Macmillan's Online Community team

  • I am so sorry to hear your sad news. I too had endometrial cancer stage 1a and got my five years all clear in February. By April I had some pain and nausea and went to the gp. Sam has since confirmed the cancer has spread to the liver. You should ask for a followup and for blood test for cancer markers. I am sure if blood tests for CA125 had been done routinely my secondary stage 4 liver cancer would have been spotted a long time sooner.