Are you feeling lonely?

5 minute read time.
Are you feeling lonely?

There’s a lot of conversations about loneliness recently as it’s been a discussion topic for mental health awareness week. Feeling lonely can affect your mental and health and we often hear members of the Online Community talk about how lonely they feel.

We’re talking about loneliness in this blog so why not stay and read more if you’re looking for some company, or to find others who are also feeling the same as you.

The past couple of years during the coronavirus pandemic, most people have experienced loneliness as social interaction was stopped and we were told to stay at home to keep safe. For a lot of people, feelings of isolation and loneliness doesn’t just come from being physically alone, but something that can is often felt when you’re affected by cancer.

“The last 12 months have been a nightmare and finding out I've got testicular cancer recently is just the icing on the cake. I’m struggling really bad trying to deal with everything and I feel so alone.”
Community member, Testicular cancer forum

"I am really struggling having no voice to communicate with people and am finding it very lonely as I don't know anyone else in the same place as me so that's why I joined here to see if I can make some connections or friends xx"
Community member, Larynx cancer forum

Community members are often talking about feeling alone when it comes to their personal cancer experiences. We know how important social connection can be and the benefit of joining Macmillan’s Online Community is that there’s thousands of people who understand how you’re feeling.  

Feeling alone when people are around you

Having people around you can still leave you feeling lonely. You may wonder why you are feeling this way as you have family and friends by your side. The feeling of loneliness can come from those around you not truly understanding what you’re going through either living with cancer or supporting someone with cancer.

“There is no magic trick to deal with this, but this forum helped me enormously as it felt like my world was closing in on me and I felt so utterly alone and lost. everything I looked at tore me to pieces as I would see it without him. It was just awful. This form made me realise I’m not alone. It is so supportive and comforting to be able to share feelings her without judgement and receive love and support on return.”
Community member, Carer’s only forum

“Of course everyone is different but it is a guide and makes you feel less alone, sometimes you have the best family and friends but they can't understand exactly what you're going through like someone in your shoes."
Community member, Womb (uterus) cancer forum

“Firstly, hang in there, you are not alone and this chat forum is full of so much optimism, hope, support and success stories. I am reasonably new here too, I have found it to be a comfort even knowing we are all in this unwanted journey together.”
Community member, Breast cancer forum

Feeling lonely after losing a loved one

The loss of a loved one can leave you feeling lonely as you’re missing them. You don’t have to go grieve by yourself as our Bereaved spouses and partners forum and our Bereaved family and friends forum are spaces for you to get support. There’s lots of other members sharing this space to talk about how they are coping following a loss of a loved one, reading some of the posts below may help you feel less alone in your grief.

“Everyone on here knows what you are going through, you are not alone on here.”
Community member, Bereaved family and friends forum

“Having read these posts, I am so glad I am not alone in feeling the way I am right now.  Its been 15 months since my wife died and I genuinely thought that I was getting there but, like many here it would seem, I still feel lost and so so tired at times.  Understandably, people move on with their lives and I think there is an expectation or belief that I am doing the same. I am trying but it seems now, at times, to be even harder than a year ago.  And love my friends and family as I do, I know that they really don't get it.”
Community member, Bereaved spouses and partners forum

Feeling alone when supporting a loved one

Being a carer and supporting a loved one can bring a range of emotional and practical challenges. It’s not uncommon to feel lonely when you’re supporting someone as you may have stopped working or attending social events to provide more time to offer support. 

Sometimes not having all the information about your loved one’s situation can make you feel lonely as you’re involved in their care. Of course, it’s an individual’s choice what information they share with you, but the dealing with the unknown can make you feel lonely with processing everything.

“Dad knows he very poorly but will not ask life expectancy which is driving me insane because there's so much we want to do and don’t know how much time we have to do it. I feel so alone and just don't know where to turn.”
Community member, Supporting someone with incurable cancer forum

There’s other carer’s, family members and friends in the below Community groups who are regularly supporting each other. Having someone who is also in a similar situation can make you feel less alone why not join and post in the below groups:

Don’t forget that the Macmillan Support Line is there to lend a listening ear and offer emotional, practical and financial support, every day from 8am to 8pm. You’re welcome to get in touch if you need some additional support and someone to talk to by calling 0808 808 00 00 (for free), send an email or use live webchat during the opening hours.

The information pages on the Macmillan website can help explain how to cope with loneliness. Hopefully the above blog helps to reassure you and offer some comfort when you're feeling lonely. 

Why not post a supportive message in the comment box below so those who read this blog know they are not alone.

Anonymous
  • My partner has just undergone removal of his kidney for an aggressive kidney tumour , he is so angry I don't recognise him anymore . He bangs things and throws things . I am a senior nurse but I feel  like walking away from him as I just can't deal with it all . My job is stressful and home life is stressful !! The hospital presume thAt I can look after him so discharged him home before they should of done !! He doesn't listen to me and I feel like I am actually living in hell . All of my family live away so I have no support other thAn the two friends he has allowed me to tell .

  • Hi KathH2,

    Thank you for sharing your personal experiences and honest feelings. I’m sorry to hear how your coping just now and I hope being a member of the Online Community helps you feel less alone.

    If you feel like talking things through with our specialist teams on the Support Line, you’re very welcome to give them a call on 0808 808 00 00. They are there to help every day from 8am to 8pm. You can also send an email or use live webchat during the opening hours.

    There also the option to reach out to these teams in our Ask an expert section if you’d like to find out what additional support is available or to ask questions.

    You’re always welcome to reach out to the Online Community team if you need some help by emailing community@macmillan.org.uk or by sending a private message to the Moderator account.

    Best wishes, 

    Megan
    Macmillan's Online Community team

  • Hi Katielou,

    Thank you for sharing what’s brought you to the Community, I’m sorry to hear about your partner and how you are coping. We often see member’s talking about how cancer affects relationships in our Carer’s only forum and our Family and friends forum. You’d be very welcome to join these groups and talk to others in a similar situation

    I hope as a member of the Online Community you’ll find it to be a friendly and welcoming place to access peer support. There’s different ways you can access support here and alongside speaking to members in our Community groups, there's the Ask an Expert section where you can ask questions to the Nurses, Financial guides, support advisers and Work Support Officers.

    You may also find reading our Community news blog helpful as it features members stories, updates and support information. There’s a Support someone with cancer section featuring blogs such as ‘Being a partner and a carer: how cancer can affect relationships and the ‘Your rights at work as a carer’ blog.

    Please remember that the Macmillan Support Line teams are also here for you. Sometimes it can help to talk things through with someone who’s there to listen. They’re available 7 days a week, 8am-8pm on freephone 0808 808 00 00email or live webchat.

    If you have any questions about using the Community or need some help accessing the support you’re looking for, please don’t hesitate to get back in touch with the Online Community team. You can email community@macmillan.org.uk every day or start a live webchat between the hours of 8am-8pm from Monday to Friday.

    Best wishes, 

    Megan
    Macmillan's Online Community team

  • Hello I'm Nikki from uk been on this website for about 1 year now use to log on very often when I had my cancer diagnosis and while I was going though my cancer surgery and radiotherapy treatment and regular check ups at the breast department at my local hospital I'd like to share I'm very lonely and have been going through lonleyness for a long time I have no close friend s outside of the internet and my family lives far away I only have my parents company I often feel emotional and feel like crying because of my lonleyness just wanted to share this here

  • Hi Nikki,

    Thank you for sharing your thoughts here, I'm really glad you reached out to share what you're going through. I'm sorry to hear that you've often felt emotional and that you're feeling very lonely. It can be difficult to go through cancer and feel you don't have as much support as you may need. 

    I wondered whether you might find it helpful to use Macmillan's "In your area" tool on our website. If you type in your postcode, it will bring up local support groups in your area. It might help you to meet people you can talk to who live nearby. Online support can be incredibly helpful, but some people can find it also helps to have support nearby as well. 


    If you would like to talk to someone straight away for support, you can also reach our Support Line specialists 7 days a week, 8am-8pm on freephone 0808 808 00 00live webchat or email. They can help you with finding information, emotional support, medical questions and practical support.

    If you have any other questions or if you need further help, please don't hesitate to ask the Community team over private message (PM) to  or over email to community@macmillan.org.uk. 

    Take care,

    Eliza

    Macmillan Community team