Are you feeling lonely?

5 minute read time.
Are you feeling lonely?

There’s a lot of conversations about loneliness recently as it’s been a discussion topic for mental health awareness week. Feeling lonely can affect your mental and health and we often hear members of the Online Community talk about how lonely they feel.

We’re talking about loneliness in this blog so why not stay and read more if you’re looking for some company, or to find others who are also feeling the same as you.

The past couple of years during the coronavirus pandemic, most people have experienced loneliness as social interaction was stopped and we were told to stay at home to keep safe. For a lot of people, feelings of isolation and loneliness doesn’t just come from being physically alone, but something that can is often felt when you’re affected by cancer.

“The last 12 months have been a nightmare and finding out I've got testicular cancer recently is just the icing on the cake. I’m struggling really bad trying to deal with everything and I feel so alone.”
Community member, Testicular cancer forum

"I am really struggling having no voice to communicate with people and am finding it very lonely as I don't know anyone else in the same place as me so that's why I joined here to see if I can make some connections or friends xx"
Community member, Larynx cancer forum

Community members are often talking about feeling alone when it comes to their personal cancer experiences. We know how important social connection can be and the benefit of joining Macmillan’s Online Community is that there’s thousands of people who understand how you’re feeling.  

Feeling alone when people are around you

Having people around you can still leave you feeling lonely. You may wonder why you are feeling this way as you have family and friends by your side. The feeling of loneliness can come from those around you not truly understanding what you’re going through either living with cancer or supporting someone with cancer.

“There is no magic trick to deal with this, but this forum helped me enormously as it felt like my world was closing in on me and I felt so utterly alone and lost. everything I looked at tore me to pieces as I would see it without him. It was just awful. This form made me realise I’m not alone. It is so supportive and comforting to be able to share feelings her without judgement and receive love and support on return.”
Community member, Carer’s only forum

“Of course everyone is different but it is a guide and makes you feel less alone, sometimes you have the best family and friends but they can't understand exactly what you're going through like someone in your shoes."
Community member, Womb (uterus) cancer forum

“Firstly, hang in there, you are not alone and this chat forum is full of so much optimism, hope, support and success stories. I am reasonably new here too, I have found it to be a comfort even knowing we are all in this unwanted journey together.”
Community member, Breast cancer forum

Feeling lonely after losing a loved one

The loss of a loved one can leave you feeling lonely as you’re missing them. You don’t have to go grieve by yourself as our Bereaved spouses and partners forum and our Bereaved family and friends forum are spaces for you to get support. There’s lots of other members sharing this space to talk about how they are coping following a loss of a loved one, reading some of the posts below may help you feel less alone in your grief.

“Everyone on here knows what you are going through, you are not alone on here.”
Community member, Bereaved family and friends forum

“Having read these posts, I am so glad I am not alone in feeling the way I am right now.  Its been 15 months since my wife died and I genuinely thought that I was getting there but, like many here it would seem, I still feel lost and so so tired at times.  Understandably, people move on with their lives and I think there is an expectation or belief that I am doing the same. I am trying but it seems now, at times, to be even harder than a year ago.  And love my friends and family as I do, I know that they really don't get it.”
Community member, Bereaved spouses and partners forum

Feeling alone when supporting a loved one

Being a carer and supporting a loved one can bring a range of emotional and practical challenges. It’s not uncommon to feel lonely when you’re supporting someone as you may have stopped working or attending social events to provide more time to offer support. 

Sometimes not having all the information about your loved one’s situation can make you feel lonely as you’re involved in their care. Of course, it’s an individual’s choice what information they share with you, but the dealing with the unknown can make you feel lonely with processing everything.

“Dad knows he very poorly but will not ask life expectancy which is driving me insane because there's so much we want to do and don’t know how much time we have to do it. I feel so alone and just don't know where to turn.”
Community member, Supporting someone with incurable cancer forum

There’s other carer’s, family members and friends in the below Community groups who are regularly supporting each other. Having someone who is also in a similar situation can make you feel less alone why not join and post in the below groups:

Don’t forget that the Macmillan Support Line is there to lend a listening ear and offer emotional, practical and financial support, every day from 8am to 8pm. You’re welcome to get in touch if you need some additional support and someone to talk to by calling 0808 808 00 00 (for free), send an email or use live webchat during the opening hours.

The information pages on the Macmillan website can help explain how to cope with loneliness. Hopefully the above blog helps to reassure you and offer some comfort when you're feeling lonely. 

Why not post a supportive message in the comment box below so those who read this blog know they are not alone.

Anonymous
  • I don't like to say I feel anything as nothing is as bad as what my husband is going through. My heart breaks for him. It is a lonely journey that only those who are on it truly understand.  I am scared of the loneliness when he goes more - he is all I have.  

  • Hi JoeyB,

    It’s Megan here from the Online Community team, I hope reading the above blog was helpful. It’s natural to process a lot of different emotions when being there to support a loved one and I’m sure you’re not alone in feeling this way.

    It’s important that you have some support for yourself so I’m glad that you’ve found us here on the Online Community. It’s a place where you can access some support from people who can understand what you’re going through.

    I can see you’re a member of the Carer’s only forum and have reached out to the teams in the Ask an Expert section. They will respond as soon as they can, usually between 2-3 working days.

    Please remember that alongside accessing peer support here on the Online Community, the Macmillan Support Line teams are also here for you. Sometimes it can help to talk things through with someone who’s there to listen. They’re available 7 days a week, 8am-8pm on freephone 0808 808 00 00email or live webchat.

    When you contact the Support Line there will be options to speak to the Information Nurse Specialists, the Information and Support advisers, and the other Money and Work teams. They can provide emotional support, practical information, and financial guidance alongside offering a listening ear.

    I hope the above information is helpful and if you have any questions about using the Online Community or finding additional support, please don’t hesitate to get back in touch. You can contact the Online Community team every day by sending a private message to the Moderator account, or by emailing community@macmillan.org.uk.

    Best wishes, 

    Megan
    Macmillan's Online Community team

  • I have wonderful family and friends to support me and a loving husband but still feel lonely and isolated. I've had depression and anxiety since the first lockdown. I've been on numerous anti depressants, two counselling courses, art therapy, hypnotherapy, yoga, aromatherapy and psychotherapy but nothing has helped me. I am desperate fir something to work. I only feel better when I see my grown up children  but of course they have to work and have their own lives to lead. I see them most weekend but hate it when they have to go. I struggle in this covid World. It doesn't make sense - I've had four vacs and know the virus is now like a bad cold. I think the way I feel is tried up to the first five years after my colonostomy when I had lots of complications and was in and out of hospital. It was a very traumatic time and I seem to be experiencing the same emotions.

  • I feel lonely and isolated despite having family and friends and a loving husband around me. I suffer with depression and anxiety and when the first lockdown occured I was thrown into turmoil which won't shift despite having four vacs. medications, and various therapies.I'm desperate for something to work. I had to retire early as I couldn't cope. My emotions seem to be the same as when I first had cancer in 2010. The following five years were traumatic as I had lots of complications.

  • I too feel lonely despite much support around me.