Are you feeling lonely?

5 minute read time.
Are you feeling lonely?

There’s a lot of conversations about loneliness recently as it’s been a discussion topic for mental health awareness week. Feeling lonely can affect your mental and health and we often hear members of the Online Community talk about how lonely they feel.

We’re talking about loneliness in this blog so why not stay and read more if you’re looking for some company, or to find others who are also feeling the same as you.

The past couple of years during the coronavirus pandemic, most people have experienced loneliness as social interaction was stopped and we were told to stay at home to keep safe. For a lot of people, feelings of isolation and loneliness doesn’t just come from being physically alone, but something that can is often felt when you’re affected by cancer.

“The last 12 months have been a nightmare and finding out I've got testicular cancer recently is just the icing on the cake. I’m struggling really bad trying to deal with everything and I feel so alone.”
Community member, Testicular cancer forum

"I am really struggling having no voice to communicate with people and am finding it very lonely as I don't know anyone else in the same place as me so that's why I joined here to see if I can make some connections or friends xx"
Community member, Larynx cancer forum

Community members are often talking about feeling alone when it comes to their personal cancer experiences. We know how important social connection can be and the benefit of joining Macmillan’s Online Community is that there’s thousands of people who understand how you’re feeling.  

Feeling alone when people are around you

Having people around you can still leave you feeling lonely. You may wonder why you are feeling this way as you have family and friends by your side. The feeling of loneliness can come from those around you not truly understanding what you’re going through either living with cancer or supporting someone with cancer.

“There is no magic trick to deal with this, but this forum helped me enormously as it felt like my world was closing in on me and I felt so utterly alone and lost. everything I looked at tore me to pieces as I would see it without him. It was just awful. This form made me realise I’m not alone. It is so supportive and comforting to be able to share feelings her without judgement and receive love and support on return.”
Community member, Carer’s only forum

“Of course everyone is different but it is a guide and makes you feel less alone, sometimes you have the best family and friends but they can't understand exactly what you're going through like someone in your shoes."
Community member, Womb (uterus) cancer forum

“Firstly, hang in there, you are not alone and this chat forum is full of so much optimism, hope, support and success stories. I am reasonably new here too, I have found it to be a comfort even knowing we are all in this unwanted journey together.”
Community member, Breast cancer forum

Feeling lonely after losing a loved one

The loss of a loved one can leave you feeling lonely as you’re missing them. You don’t have to go grieve by yourself as our Bereaved spouses and partners forum and our Bereaved family and friends forum are spaces for you to get support. There’s lots of other members sharing this space to talk about how they are coping following a loss of a loved one, reading some of the posts below may help you feel less alone in your grief.

“Everyone on here knows what you are going through, you are not alone on here.”
Community member, Bereaved family and friends forum

“Having read these posts, I am so glad I am not alone in feeling the way I am right now.  Its been 15 months since my wife died and I genuinely thought that I was getting there but, like many here it would seem, I still feel lost and so so tired at times.  Understandably, people move on with their lives and I think there is an expectation or belief that I am doing the same. I am trying but it seems now, at times, to be even harder than a year ago.  And love my friends and family as I do, I know that they really don't get it.”
Community member, Bereaved spouses and partners forum

Feeling alone when supporting a loved one

Being a carer and supporting a loved one can bring a range of emotional and practical challenges. It’s not uncommon to feel lonely when you’re supporting someone as you may have stopped working or attending social events to provide more time to offer support. 

Sometimes not having all the information about your loved one’s situation can make you feel lonely as you’re involved in their care. Of course, it’s an individual’s choice what information they share with you, but the dealing with the unknown can make you feel lonely with processing everything.

“Dad knows he very poorly but will not ask life expectancy which is driving me insane because there's so much we want to do and don’t know how much time we have to do it. I feel so alone and just don't know where to turn.”
Community member, Supporting someone with incurable cancer forum

There’s other carer’s, family members and friends in the below Community groups who are regularly supporting each other. Having someone who is also in a similar situation can make you feel less alone why not join and post in the below groups:

Don’t forget that the Macmillan Support Line is there to lend a listening ear and offer emotional, practical and financial support, every day from 8am to 8pm. You’re welcome to get in touch if you need some additional support and someone to talk to by calling 0808 808 00 00 (for free), send an email or use live webchat during the opening hours.

The information pages on the Macmillan website can help explain how to cope with loneliness. Hopefully the above blog helps to reassure you and offer some comfort when you're feeling lonely. 

Why not post a supportive message in the comment box below so those who read this blog know they are not alone.

Anonymous
  • Thank you so much for your reply and help advice and support much appreciated  

  • Macmillan has been a god send over the past 6 months for me. I don;t open up easily but this forum and the phone line have been wonderful and helped me to express how i'm feeling. 

  • Hi , thank you for your comment. I'm so glad to hear that you've found Macmillan's support services helpful to express how you're feeling.

    I hope you continue to find the Online Community and the Support Line helpful. If there's anything else we can do to support you, please feel welcome to get in touch with the Community team at community@macmillan.org.uk

    Take care,

  • I feel lonely  more this time around. Last time it was Colon Cancer,and I got away with just part of my Colon removed. No Stomer needed and no other treatments. That was 2014. This time with the Lung Cancer and diagnosis out of the blue as they found something from Christmas Eve 2022. Although I have family around me I still feel more alone. My 2 Children live in North Nottinghamshire..

  • Hi Jan.

    It’s Megan here from Macmillan’s Online Community team.

    I’m sorry to hear how you are feeling just now, from what you have said it sounds like you have dealt with a lot over the years so I’m glad you are reaching out for some support.

    I hope reading the above blog was helpful and made you feel less alone as there’s others here on the Community who can understand how you’re feeling.

    From looking at your profile I can see that you’ve joined the Lung cancer forum and but have not yet posted. If you’d like to connect with other members, you’ll need to click the ‘+new’ or ‘+’ button near the group title to start a discussion. You’re also welcome to join in the other conversations in the group should you wish to.

    I’m sure once you introduce yourself and share what’s brought you to join the group, others will be close by to offer some support.

    Alongside accessing peer to peer support from our Community groups, the Macmillan Support Line has specialist teams who are also there to support you. Sometimes it can help to talk things through with someone who’s there to listen. They’re available 7 days a week, 8am-8pm on freephone 0808 808 00 00email or live webchat.

    When you contact the Support Line there will be options to speak to the Information Nurse Specialists, the Information and Support advisers, and the other Money and Work teams. They can provide emotional support, practical information, and financial guidance.

    If there’s anything the Online Community team can do to support you, please don’t hesitate to get in touch. You can email us at community@macmillan.org.uk or by sending a private message to the moderator account.

    Best wishes, 

    Megan
    Macmillan's Online Community team