Facing the future: Together

  • this upgrade

    just been on community posts print to small for me to read this upgrade with all respest is sorry not repeatable note my eyesight is fine

    • 7 Sep 2020
  • That's August Done With.

    This month has gone so fast, I turn around and we are just dropping into September, thing have for the most part turned in to a new kind of normality, Tuesday bloods, Tuesday afternoon phone call from Oncologist, Friday Chemo, Weekend of feeling rough and back on his feet again Monday, refusing to be held down for long. Then a week off.. before it all starts again!

    The weight continues to be very well maintained, Dal…

    • 1 Sep 2020
  • The Journey through rest of July

    Things have continued to go well, Dal continues to eat well, and has gained more weight.  He had his first Herceptin treatment on Friday, which was not the best of experiences.. He went through the treatment fine but once he was told he could go home, he was violently sick. 

    Over the last two days, he has struggled to feel "himself" but we know that this is the first time his body has been put through this particular treatment…

    • 2 Aug 2020
  • Trying to share some great news

    Hi All, I really, really want to share some exciting news with you all...  (unfortunately at the time of writing this I was unable to post it, so I am hoping this can be posted now..... (FYI the date of this post would have been July 18th)

    We read so much heartbreaking news and with the knowledge that Dal won't ever be "free" of this condition, we had done a great deal of research on what he can, and cannot expect to receive…

    • 2 Aug 2020
  • Mid July Results

    After having such a good month in June, we have been waiting patiently for this morning to come... it has been quicker than we thought it would be, but it has been extremely stressful. Restless nights, brain working overtime, thinking of the 'what ifs'.

    Food continues to go down well, although Dal does seem to consume even more fizzy drinks, but I suppose the more food he can eat the more drink he needs to help…

    • 13 Jul 2020
  • The journey through the month of June.

    What a fantastic month June has been! 

    Dal weighed in at 13st 10 & 1/8th up 2lb since last time  such a good sign. He continues to take Lansoprazole 30mg but only once a day as apposed to the two a day he had been taking in May.  A week after his first chemo, Dal stopped taking any other pain killers, he had been on the maximum amount of pain killers prior to chemo, he was woken in the night with pain, but now, there…

    • 5 Jul 2020
  • The first experience of chemo

    First Chemo Treatment – Friday 22nd May 2020 – Long

     After receiving the phone call to confirm the 2nd Covid19 Negative Test, Dal and his brother left at 10.20am to go to the Hospital. Arriving at 11.30, Dal went in alone to the chemo floor – there he booked into reception, waited for about 1 hour before being called in to the outpatients ward  - treatment room  – where he waited for the medication to come…

    • 13 Jun 2020
  • Preparing for Chemotherapy

    With the Covid19 positive test, the preparations for chemotherapy could be hindered, Dal had to have another Corona-virus test,  He was registered with one of the London Cancer Hospitals and thankfully they were prepared to meet him immediately, an appointment was made for the following day May 14th -  in an isolated room Dal was met by his specialist team, he had to sign all the consent forms, after having a further explanation…

    • 29 May 2020
  • Leading up to and including Wednesday 13th May

    What a week! waiting for today to come 12th May 2020, watching the clock, counting down the hours.  Dal had been told last week on discharge to call the hospital or the Clinical nurse at lunch time if he had not been contacted regarding the results. 

    We have four daughters, one lives with us with her partner and their two children, the other three live very close and have family of their own, in all we are the proud grandparents…

    • 28 May 2020
  • Tuesday 5th & Wednesday 6th May

    Nil by mouth throughout the night, and during the morning, Dal was taken for an endoscopy early afternoon, he was offered a throat spray or a sedative, he chose the sedative due the continued pain he was experiencing. The sedative was administered through the cannular which had been placed in his arm the day before, after which they placed a tube down his throat with a small camera on it. He found this the most uncomfortable…

    • 28 May 2020
  • The beginning of our Journey.

    Dal had a procedure at the end of February which involved a great deal of pressure on his stomach and for about a week afterwards he was obviously very sore and uncomfortable. By mid March he started to feel uncomfortable eating and by Easter he had only managed to eat one full meal a week. He contacted the GP, as Covid19 demanded that only telephone consultations took place, and a change in medication was suggested,…

    • 28 May 2020