Hello,
I’m sorry to disturb you all when I haven’t yet received a diagnosis. I’m just freaking out & am worried sick.
I’m 5 yrs into menopause at age 42, started HRT 14 months ago & had a 12cm benign ovarian cyst removed 12 months ago, at which point my endometrial lining was 3mm.
I’ve had spotting intermittently for a few months, then a big 4 week bleed, which prompted a visit to the Dr & a pelvic ultrasound, which revealed my lining to be 22mm!
I’m awaiting my referral to gynaecologist but I’m scared as I’m assuming that I’ll need a biopsy but I know that I won’t be able to handle the pain of it as I can’t cope with smears as I have PTSD from a SA.
How can my lining go from 3mm to 22mm in 12 months!?! Has anyone had any similar experiences of this please?
I’m so sorry to disturb you all when you are fighting your own battles & I do not yet have a diagnosis, I just don’t know who to turn to as I do not want to worry my siblings or friends at this point.
Thank you for listening, sending prayers to you all
Thank you so much, I will definitely ask for a GA. I’ve been reading and I’m hoping it is the HRT as I’ve just noticed that I have been prescribed oestrogen only HRT!?!
Thank you for replying, I hope you are well?
*Update to help others who cannot manage gynae examinations*
Hello, I just wanted to share an update that may help other women who cannot manage gynae examinations, for whatever reason.
I spoke to a wonderful nurse on the MacMillan helpline who gave me help & tips on how to communicate my issues with gynae exams. I was so stressed about this that I nearly didn’t attend my urgent referral appointment due to bad previous experiences.
The gynaecologist was very understanding and offered me a general anaesthetic or spinal anaesthetic for my hysteroscopy & biopsies (which also turned out to include a large polyp removal & ablation of my lining). I also had a smear test done under spinal anaesthetic , as I haven’t had one done for 20 years, despite multiple attempts in the past, where I was ridiculed by the staff who told me to “get counselling”. They didn’t know my trauma but I don’t like to talk about it, & regardless, they should be kind.
I’m now waiting for my results. Therefore there is a way to have your investigations done with decent pain relief/anaesthetic if you have the confidence to be an advocate for yourself. The macmillan nurse (angel) gave me the confidence & tools I needed to politely but firmly communicate what I wanted & needed to happen in order to progress with my investigations.
I hope this helps others. Thank you all for your support & I hope that you are all doing ok
Hi, I understand your fear. I got ultrasound results 2 days ago and my womb lining is 14mm so I am on waiting list for General Anesthetic for biopsy and hoping it wont be too late. I had one small pink brown discharge at xmas then jelly like discharge but both have stopped now. i have had multiple Urine infections over the past couple of years which worries me. I have slight cramping which started few months ago and now nightly sweats., peeing couple times during the night too. I am worried sick what is happening to me. Lets hope we both get answers soon ! xxxx
have you had any other symptoms at all?
Hi,
I feel for you, it is a very worrying time. However, I was told that there can be several benign reasons for a thickened lining, often hormones play a part so it is not always bad. Hormones are definitely the cause in my case as sadly I was prescribed oestrogen only HRT. This should never be prescribed to women with a womb unless it is balanced with progesterone (only learned this last week).Therefore I’m hopeful that I just need some progesterone to get rid of my lining .
The only symptoms I had was a bit of spotting, then long, heavy bleed. I did have some period pains, which were odd as I’m post menopausal.
I do have moments of terror & panic but I try to remember that I will probably be ok as worrying was exhausting me and it won’t change the outcome.
Try to remain positive if you can and keep yourself busy as I was also told that most of the time the symptoms are not cancer, the doctors just need to rule it out.
Wishing you lots of luck & strength with your journey.
Thank you so much for your kind words and reply. defo ask for General , I did and glad i did. just waiting is the horrible part. lots of waiting to go yet. waiting for the GA biopsy , then waiting for the results . crikey I haven't slept since i got ultrasound results 2 days ago. main worry is if i have ignored maybe some issues and it has spread. I am trying to think positive and everyone has been so great in reassuring me. we will get through this!, i will post any updates and please let me know how you get on. x
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