Not coping well with news ,that endometrial polyps appear cancerous. They were removed during hysteroscopy under GA and a Mirena coil inserted to slow down growth. Now waiting for biopsy results

I'm sorry you are going through this. Until the biopsy comes back they don't know anything for sure. I'm sure you've been going down a research rabbit hole but I would hold off looking too much into things until you get the results of the biopsy. 

Yes, a hysterectomy sounds likely, but until they confirm cancerous cells and stage it, you won't know if radiotherapy or chemotherapy is required. That's a long way off yet. I am waiting for my histology results to come back after my hysterectomy last week and I refuse to look at radiotherapy and chemotherapy as it's not yet confirmed I will need them and therefore I'll be spending time, energy and worry on something that might not pertain to me.

Hope this kind of helps and give you perspective. The wait for results is agony I know.

Hi Charliebear

Welcome to the Womb group.

I am sorry to hear that you have had to have some polyps removed and that they may be cancerous. I understand that it is a worrying time. I hope that you do not have to wait too long for the biopsy results. It is only them that can say for certain whether there is any cancer present or if it can be ruled out. 

If cancer is present and only in the polyps this would be positive news as hopefully it would all be contained within the womb and at an early stage. Early stage endometrial cancer is a very treatable cancer. 

If cancer is present then for most ladies, where it is medically possible a hysterectomy is offered. For some ladies with an early stage and grade cancer this may be all the treatment that is needed. For some ladies some follow up treatment may be needed in the form of radiotherapy and/or chemotherapy. However this is normally based on any post op results. 

I know it is hard not to worry about what may be ahead and some of the best advice I was given is to focus on what you actually know now than what may or may not happen in the future. In that way you are breaking it down into more manageable steps that can be less overwhelming. I know for me one of the first things I did was to look for further information but at the moment this can just cause extra worry. 

At the moment you have done the right thing in having the further testing. At the moment- the polyps have been removed. If there is cancer and if it was contained in the polyp them hopefully the cancer has been removed. The hysterectomy would then make sure it has all gone. If there is any cancer there then the mirena will already be starting to treat it. If there is not cancer present then it may be that no further treatment is needed, apart from perhaps some routine monitoring. 

I know that it is hard to wait for results but for me getting the diagnosis and finding out what would happen in terms of treatment did make things feel a bit better. The not knowing and worrying was in a way worse. Once I had a treatment plan, I could focus on that. 

Do give the Support Line a call if it would help to talk things through. They are there from 8am-8pm daily. 

Jane

Hi Charliebear, welcome to the womb forum which is full of extremely supportive and caring women who are all at different stages of diagnosis, treatment etc. Waiting for results and plan for treatment is really hard. I would echo what Jane and music lover have said. Best not to do lots of internet searching, use McMillan as a source of support and info. In the 3 weeks between my diagnosis and getting results of CT and MRi scans, I phoned the helpline twice a day. I could not have got through that time without them. 
If cancer is found as it was in my case, my experience is that they move very quickly because in most cases endometrial cancer is treatable. Take care sending lots of positive thoughts 

Thank you so much ladies for your helpful advice. I have been online looking at stuff that I really shouldn't be looking at. It has increased my worries!

I have to try and take this step by step. What is making this worse,I think,  is that I initially had small amount of brown pv loss on 3rd November. Had a scan and failed biopsy 4 weeks later. Then another biopsy attempt on 12th January. This was unsuccessful as my cervix was too tightly closed. Then eventually biopsy, removal polyps under GA ,this week Thanks again ladies 

I am still waiting on the result of the biopsy and if the polyps are cancerous. I can't think of anything else. I am still bleeding fairly heavy with cramps. Went to GP who thinks it is because I am on blood thinners. It will be 2 weeks on Tuesday since biopsy and removal of polyps and insertion of mirena under GA. I want the results and don't want them .I am really scared the cancer has spread outside mu uterus. 

Hi Charliebear, iam really sorry to hear that you have not yet had your results. It is still difficult to get through the period of waiting and I know what you mean by wanting and also not wanting the results. I got some support from my GP who prescribed sertraline and diazepam for the anxiety. I phoned the McMillan helpline a lot,  I tried to get out for walks and named all the things I saw on the walk out loud, I also used some calming/meditation apps which helped to distract and calm me. And I was never the kind of person to use these things before! I tried hard to remember that I was under the care of experts who would be able to give me diagnosis and treatment. Sending you lots of love and positivity 

Hi Nicky cross

• Thanks for getting in touch and your advice. My GP did give me Diazapan,.but only 14 tablets, so I feel that I have to " ration".them...Also 14 Zoplicone to help me sleep. I have two lovely dogs and I walk them every day. But sometimes a feeling of despair just comes over me. I can't seem to cry, which I think would help. Waking up in the morning is the worst. My husband is supportive, but it is a very lonely place, which I am sure you will understand. 

Hi Charliebear yes they rationed the diazepam with me too, I had a bad reaction to the sertraline so stopped taking it, but the diazepam  helped on evenings where I really felt like I couldn’t relax or bring myself down at all from my anxiety. I was also prescribed some beta blockers which helped a bit too. The feeling of despair is very familiar, it just used to come over me and I had to either take myself away to be on my own for a bit or have a bloody good cry. When I woke up in the morning feeling desperate I would try to do something, just anything, whether it was having a shower or making a cup of tea or listening to a song. I Wish I had a dog as I bet that does help. It’s a bloody hard time but I know from having got through that first really difficult time, waiting for results, that things do feel better once there is a plan in place. It is a lonely place but there are lots of us here who have gone though it and are here to support you x

Thank you, NickyCros,

It helps knowing others have gone through this and out the other side. Haven't been doing so well this morning, even though it is a lovely sunny day. Just can't seem to get in the shower, but I am going now. My husband has suggested going out for some lunch. Don't really feel like it, but haven't said that to him, so we are going to go. Probably will make me feel better. 

I really appreciate your advice and help x

I just heard yesterday afternoon that I have to have a CT scan a week on Friday. Sounds like the cancer is more aggressive than first thought  .

Will be surgery, chemotherapy then radiotherapy. 

I am terrified, not so much the procedures, but will I come out the other side. 

Anyone else been through all this