Not a club I wanted to join but think it’s gonna be a one I definitely need as a bit shell shocked after the news yesterday from the hospital.
I went through the menopause with no real worries to be honest. No HRT or anything and thought that was that 10 years ago.
Had a teeny show .. and I mean a teeny one maybe the size of my fingernails. Friends nagged me to get checked out so I begrudgingly did even tho I thought it wasn’t worth doing as so small a symptom.
Fast forward to Monday and a phone call saying I needed to go in yesterday (Tuesday) and to bring someone with me .. alarm bells straight away as said I’d get a letter after they did a biopsy.
Got told I had cancer.. nurse was absolutely amazing and knew I was panicking and managed to get me a mri scan etc straight away to try and get my info for a meeting they have today .. wasn’t guaranteed and could be the next one in 2 weeks as a bit short a time.
Said once they had info they’d know more and where I’d have the operation etc.
Not had pains or anything or anymore bleeding apart from the day before my biopsy and that wasn’t anything major… the daft thing is since yesterday Iv not got a pain as such but it feels different… I can’t explain.. just feel more aware of ‘down there’ … is it me being daft or is it you just think about it now and thinking of what’s going on down there now you know something isn’t right … I’m not explaining this very well lol
Sorry for the long waffling post at 5am Iv just woke up and head going 100 mph with stuff x
Thank you ️ we certainly will.
I’m more worried for you as I get all the sympathy type thing and you are going through it with me as well so not easy for you. X
‘Hospital just rang with results.
Stage 1A’ so the earliest one but
‘Grade’ 3 but that’s the strength type thing they said .. so operation early September.. couple of lymph nodes just as precaution type thing getting removed ..
CT scan next week but said that’s routine.. mri scan very reassuring.
Wanted me at the hospital today to tell me that info but I couldn’t get there at such short notice plus Iv workmen doing my water pipes as we speak so couldn’t just tell them to leave lol
Said it would be ok to do it by phone..
Wrote stuff down so think Iv got everything they said .. nurse said to check my McMillan book about stages/grades etc as I heard ‘3’ and panicked it was the ‘stage’ I was with and not the grade.
i feel better reading the info tho and sound ok ??
QE hospital clinic on Tuesday so find out day etc of operation. xx
Hi there... that is exactly the same grading as mine . Everyone is different so their treatment may be different but I had a complete hysterectomy with the removal of my womb, Fallopian tubes, overies and cervix. My treatment starts a week on Monday with 23 sessions of internal radiotherapy at the Rosemere Cancer Centre at Preston. I had my treatment planning appointment yesterday which was a CT scan with contrast dye. Following my radiotherapy it was going to be 3 sessions of internal radiotherapy at Christie’s in Manchester. There is no way at all I can put myself through that but they still want me to attend my appointment with the consultant on Friday this week. When I mentioned it to the radiotherapist yesterday she told me that there are alternative treatments available and I may be offered 10 more radiotherapy sessions instead. This will then move on to 4 rounds of chemotherapy at Furness general hospital. I’m not really worried about that despite being told all my hair, eyebrows and eyelashes will definitely fall out due to the chemotherapy drugs I’m being given. I’m the biggest drama Queen around..I’m 61 years old and still cry when I arrive for appointments but all the staff I have met so far have been so lovely and caring. One word of advice... NO question is silly so please ask as many questions as you need to. Get a little book and each time you think of a question write it down and then add the answer. When you get brain fog you can easily refer back to your little book. Pop it in your handbag so it’s always there for appointments. Staff will not mind at all you taking your little book out and writing down what they tell you. My radiotherapy starts on the 26th August... Bank Holiday. Good luck bless you...always here to help answer anything that I can xx
Aww bless you that sounds like a lot of stress and treatment you are going through
I go Tuesday for more information on when what etc they will do.
Said I’d need a hysterectomy and some lymph nodes removed .. not mentioned radiotherapy to me… is that just part of the normal tho?
I’ll probably find out more Tuesday hopefully..
Need a CT scan next week but nurse said it’s procedure I think and mri very reassuring.
Just so much to take in isn’t it ..
I hope you are ok .. keep us updated please xx
Hi oh I am really pleased for you that’s the exact same as me and when they said grade 3 over the phone I remember my husband jumping up off his chair as we thought they meant stage 3 too x
i had my robotic op at Christie’s manchester end of Feb and then three sessions of bracytherapy
the results from the histology took over 5 weeks due to Easter that I found hard :( but it was the same results after the op xx I wish you well for the next stages it sounds so straight forward the way it’s written but as you will know so much emotions that only we understand xxx
It’s just the numbers you hear isn’t it and you panic ..
The nurse explained it to me as I just thought the worst the same as your husband hearing ‘3’ …
Shame they don't use something like ABC for the grade so the numbers aren’t used like the stage you are at.
What’s brachytherapy? Iv not heard of that …
Think I’ll have a read of the book they gave me now Iv heard a bit more from them today as feel a bit better today about things.
Hope you are doing good xx
Sorry for the searing bit but just had this delivered from a friend today made me giggle as In morse code cheered me up x
Hi ... brachytherapy is where they place an applicator inside you (known also as internal radiotherapy). Something that is part of my treatment plan and I have a consultation on Friday at Christie’s. I’m asking for alternative treatment because I just can’t face it. My radiotherapist yesterday said they do offer alternative treatment so I may be offered 10 more sessions of external radiotherapy instead so I have my fingers crossed. I start my external radiotherapy with 23 sessions on the 26th August. xx
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