Got the news yesterday so a bit she’ll shocked

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Not a club I wanted to join but think it’s gonna be a one I definitely need as a bit shell shocked after the news yesterday from the hospital.

I went through the menopause with no real worries to be honest. No HRT or anything and thought that was that 10 years ago.

Had a teeny show .. and I mean a teeny one maybe the size of my fingernails. Friends nagged me to get checked out so I begrudgingly did even tho I thought it wasn’t worth doing as so small a symptom.

Fast forward to Monday and a phone call saying I needed to go in yesterday (Tuesday) and to bring someone with me .. alarm bells straight away as said I’d get a letter after they did a biopsy.

Got told I had cancer.. nurse was absolutely amazing and knew I was panicking and managed to get me a mri scan etc straight away to try and get my info for a meeting they have today .. wasn’t guaranteed and could be the next one in 2 weeks as a bit short a time.

Said once they had info they’d know more and where I’d have the operation etc.

Not had pains or anything or anymore bleeding apart  from the day before my biopsy and that wasn’t anything major… the daft thing is since yesterday Iv not got a pain as such but it feels different… I can’t explain.. just feel more aware of ‘down there’ … is it me being daft or is it you just think about it now and thinking of what’s going on down there now you know something isn’t right … I’m not explaining this very well lol 

Sorry for the long waffling post at 5am Iv just woke up and head going 100 mph with stuff x

  • Hi Geordiesuzie, I’ve recently been there (see my journey in my profile) so know exactly how you feel! All I can say coming out the other side (laparoscopic hysterectomy 7 weeks ago now) is that the waiting is definitely the worst part. Shortly after my diagnosis I felt all sorts of thing were wrong - back/pelvis pain which must mean it was in my bones… it wasn’t, my brain was making it up!

    It’s a horrible time but you’re in the system and it sounds like your nursing team are on it! Keep busy to get you through the next couple of weeks, until you know the next steps and then just take it 1 step at a time. Every day waiting will feel like a month but you will get through it!

  • Thank you so much for that .. I feel so much better as thought the same thing that you did. 
    Think my brain has just gone into overdrive as when I’m distracted I can’t feel or notice anything. It’s like my brain playing tricks when I’m thinking too much.

    I hope you are doing good now and thanks again for replying x 

  • I too am on the other side now, I had a full hysterectomy 4 weeks ago after being diagnosed with leiomyosarcoma (aggressive tissue cancer in my womb). Luckily it looks like it was contained to my womb. Although I am still awaiting the biopsy results.from my op. The waiting is definetly the worst as your brain goes into overtime. I was convinced mine had spread to my lungs because I had a cold and a cough. Please try not to worry and use all the support that you have around you especially your oncologist nurse, mine was so helpful. Hopefully you will het sorted quickly. Good Luck and keep.us all up to date with your progress xx

  • Aww thank you so much.

    You are so right it’s the waiting and not knowing but that’s the hardest.

    Definitely a brain playing tricks thing as not felt or thought of anything when Iv been sorting my puppy out and doing stuff for her. Now I’m sat doing nothing I’m thinking ‘can I feel anything again’ lol 

    Hope you are on the mend and feeling better … take care and thank you for messaging me x

  • Glad you have a puppy I do too got him in October got diagnosed in Feb he’s been the best thing for my recovery xx my op was end of Feb feel so much better now,  lots of love to you xxx

  • So pleased you said that as a few people have said I need to be careful having a puppy that’s full of energy after I’m going to have an operation. 
    Ruby my puppy is only 5 months old and very excitable.. she’s a saluki/whippet ( a lurcher) but goes from 100 mph to zero so I’m sure she will be fine… plus a good excuse for my partner to have time to himself walking her if he needs it as a lot to take in for us both at the min. X

  • Hi Geordiesuzie

    Welcome to the Womb group.

    I am sorry to hear of your diagnosis of cancer.

    The scan is a normal thing to happen after the biopsy as they are trying to pinpoint exactly where the cancer is so they can plan the treatment effectively. What normally happens is when they have all the information there is a Multi Disciplinary Team meeting- where the professionals all get together and discuss the best way forward. Once this is done then they normally get you in and discuss their recommendations. Most ladies are offered a hysterectomy. 

    I remember also being hyper aware of every feeling in my body and worrying that it was due to the cancer. i still do it when I have my check ups. So how you are feeling is very normal.

    I remember having a lot of questions and I will pop a link here to some info that may be of help.

    Womb cancer booklet | Macmillan Cancer Support

    I hope this helps a bit and in the meantime if you have any questions please do ask. 

    We also have a Support Line that you are welcome to call. The details are below if you feel like talking things through would help.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Aww thank you for that … I remember the words ‘discipline meeting ‘ as thought it sounds like something work would do if you’ve been skiving lol my head was all over at the time and not thinking straight .

    It’s good to hear it’s normal what I’m feeling and thinking bout any ache or pain type thing I feel … probably an age thing Iv had for ages but noticing it more today after yesterdays bombshell.

    Ordered new Pjs and nighties and had a wander around B&M for odds n sods for Hospital so feel a bit better that I’d done stuff. Nothing big or anything, just bought face wipes, new toothbrush etc but feel more in control of things .. know that sounds daft ..

    Thank you for replying.. everyone has been so lovely and makes such a difference Heartpulse  Hope you are well x

  • Not daft at all - do anything that helps! 

  • It's not daft, I had my 2 grandchildren the week before I went in hospital that was a great distraction, anything that helps you get through the days is good x