Radiotherapy Support Thread (inc. Brachytherapy)

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This is a dedicated thread specifically for those who have had, are having, will be having or are considering the option of external radiotherapy or internal radiotherapy (brachytherapy). The idea for the thread has been approved by the Macmillan Community Team and the aim is for it to be a safe space where members can ask questions and share concerns and experiences. 

I would respectfully ask that the chat is kept on topic to things specific to radiotherapy.

My own situation is that, pre-hysterectomy I was a probable grade 1 stage 1a, and was not likely to need adjuvant therapy. But my post op histology disappointingly revealed a few unexpected cells on my cervix, so I was restaged to a 2, meaning I was offered external radiotherapy x 25, and internal radiotherapy (brachytherapy) x 2. I’ve had my planning CT and am due to start radio on 11/4. I wanted to start this thread so that others facing radio can ask questions and seek support more easily than in an ordinary thread. 

So please do feel free to post and tell us about your situation, ask questions, seek support and share tips/advice etc! I will also probably use this thread to post diary updates once my treatment has started. 

  • Thanks so much for sharing I will look that up. I hope your sister is OK. I feel vert lucky that my cancer was found early and I haven't had any real issues with the treatment but I would be concerned if my daughter had to go through all this knowing what I know I hoping that she will just need a hysterectomy which is nowhere near as bad xxx

  • I went through this process as my Mum died of ovarian cancer 21 years ago. It hadn’t been treated and had spread widely before she was hospitalised. So, I have been on the alert. So, I was put forward for testing for Lynch. It involved a meeting with a genetics nurse who discussed the Syndrome and drew blood. She got in touch recently with the welcome news that was no evidence of pathological variants in the various genes. So no Lynch.

    My two female cousins have both applied for genetic testing given both their parents died of bowel cancer. As both are healthy it’s likely a longer process than mine but well worth going through as they both have daughters 

  • That's great news for you and yes it's a concern for the females in our family when something like this is discovered xx

  • Hi Muse, have you seen a couple of us mention Wype gel at all? 

  • Oh yes though I probably will have to wait until next weekend to order as cannot guarantee I will be home 

  • Hi Muse, it would just arrive with your normal post and the package may even fit through the letter box 

  • That could work though I usually use Amazon Prime for free delivery.

    Things returned to normal this afternoon so shall see how things are tomorrow. It’s such a balancing act between bladder and bowel and I can see that I am far from alone in experiencing this daily stress. Will be glad to get it over with 

  • Tony and I have just been to our favourite Italian restaurant for father's day and have booked for a family get together in July, when I will potentially be about 7 treatments in. Had to ask the guy who runs it, if he could cater for my very bland dietary requirements!! Not something I ever envisaged having to ask!

  • Love to walk, after only 7 treatments in, as long as your meal is at a weekend, you should be able to eat whatever you like. The suggested tweaks to our food intake is for during the week not our days off. 

  • Oh thank you. That's really good news! I assumed it was a 25 day regime. I probably need to chat to someone, when I go for my first session, as apart from the little my oncologist told me and what I have gleaned from here, no-one has spoken to me about changes to my diet yet.