Radiotherapy Support Thread (inc. Brachytherapy)

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This is a dedicated thread specifically for those who have had, are having, will be having or are considering the option of external radiotherapy or internal radiotherapy (brachytherapy). The idea for the thread has been approved by the Macmillan Community Team and the aim is for it to be a safe space where members can ask questions and share concerns and experiences. 

I would respectfully ask that the chat is kept on topic to things specific to radiotherapy.

My own situation is that, pre-hysterectomy I was a probable grade 1 stage 1a, and was not likely to need adjuvant therapy. But my post op histology disappointingly revealed a few unexpected cells on my cervix, so I was restaged to a 2, meaning I was offered external radiotherapy x 25, and internal radiotherapy (brachytherapy) x 2. I’ve had my planning CT and am due to start radio on 11/4. I wanted to start this thread so that others facing radio can ask questions and seek support more easily than in an ordinary thread. 

So please do feel free to post and tell us about your situation, ask questions, seek support and share tips/advice etc! I will also probably use this thread to post diary updates once my treatment has started. 

  • Have you received any booklets? From what I understand the suggested diet changes are there to help minimise digestive side effects. 

  • I have a booklet, but all it says re diet, is to eat a healthy well balanced diet and drink plenty of fluids during the treatment! I suffer from quite mild IBS, which is mostly very manageable when taking a really good quality probiotic. I think it will probably be trial and error. I think it was you, who said you treated yourself to a Mcplant burger each week (apologies if it wasn't you), are you a vegetarian? I eat very little meat, but not completely veggie.

  • No, not me. I haven’t had any McDonalds for years. I am not a vegetarian though rarely have red meat but do eat chicken and fish. 

  • Sorry! Think it might be Marmite Fan59!

  • Love to walk, it’s only dietary suggestions to hopefully help minimise wind and side effects, not a “regime” that must be followed. Some hospitals say eat normally and just change if you get side effects. I’d recommend telling them about your IBS, if you haven’t already, and seeing what they say about food. 

  • This morning had a loose movement then later diarrhoea. My appointment is in a couple of hours so have taken an Imodium as I need to be able to travel and wait on treatment and transport.
    well I almost got halfway through Week 4 before this side effect happened. 
    Any suggestions on how to cope? 
    I have the Imodium and am eating a low fibre diet 

    I know to drink more water in order to compensate for the loss of water. 

  • Hi Muse, have a chat to the radiology staff there and they will be able to advise you on how best to cope and your Imodium dosage. Mine offered to supply me with Imodium free if I wanted. At least you know it’s only for another week or so! 

  • Hi Muse,

    best thing to do is chat to the staff- most of the people having pelvic radiotherapy will be having similar effects. I met a lot of men having treatment for prostate cancer while undergoing my treatments. Imodium is good and there are ways that they can advise you to take it depending on your symptoms and when they are at there worst. There are also other medications that they can give you which really help too. They can also give you a can't wait toilet card which helps with the anxiety of having to access toilets quickly. 

    Bland foods but keep eating regularly even if a small amount and lots to drink. Limit fibre and caffeine I was told. I found I became quite weak quite quickly so its good to talk to them at the first sign of trouble.

    Not too much longer now

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Yes I did and I did have a free prescription for the generic Imodium. They suggested that I just use if I have another bout though not to use a micro-enema if nothing happens tomorrow morning. 
    Yes hopefully just another week and a half. 

  • I have an appt Friday to discuss/plan radiotherapy. I’ve been told that my cancer was confined to uterus & lymph nodes clear yet still being told need radiotherapy even though surgeon said I’m cancer free ?