Hystology results in

Hi what type of reaction did you havevto the Paclitaxel  as that's exactly what happened to me on Tuesday. 

Hi Barb - that is really interesting about the role of both drugs.

 My oncologist is now booking me in for my brachytherapy and a baseline CT scan, so I should get a date soon.  I asked about future CT scans - apparently that is not routine and check ups will alternate between internal examinations and I think a telephone chat?  I think I would feel happier with a scan of some sort, but do others get offered regular scans I wonder?  
After all I had no symptoms at all apart from bleeding and felt completely well, so don’t really trust myself to have the necessary 2nd sense - or more likely I will report every twinge and be a complete hypochondriac xx

Hi Mad After about 10 minutes of paclitaxel the bottom of my back started twinging which turned into spasms of pain.  I told the nurse and we waited a few more minutes but the pain didn’t go off which is when she paused the paclitaxel and gave me the steroids and piriton.  Twenty minutes later the paclitaxel was restarted and I had no more problems.  Hope you aren’t having too many side effects from Tuesday XX

Yes I had back pain after the infusion started, they did the same and retried 45 mins later(to cold cap me again) and it was fine second time. I feeling ok but today the nausea started

Hi GwenDot they don't like to offer scans routinely due to the danger of radiation (personally I'd take my chance!) When I take  break from treatment after my last chemo I'll have blood tests every3 months. they'll test CA125 which is a tumour marker. In November my marker was very high at 100, currently it's 19. I will only have a scan if I feel there's something going wrong. At the moment I'm hardly taking any morphine, less than  2'5ml spoonful at night, a couple of months ago I was taking 15ml throughout the day.

BTW all my check-up's post op were done internally, whereas other ladies had phone calls, and I was always pronounced clear.

Big hugs, Barb xx

Hi GwenDot, my oncology team has me down for an annual CT scan. I had one six months after my surgery to check out a lung nodule hadn't grown so that might be why they want to monitor me a bit more. Interestingly my notes said it was in my left lung, but last report said right lung. My notes also said I'd had an omentectomy at the same time as my hysterectomy - this wasn't the case and have managed to have the information updated on my record. A bit of a worry xx

Hi Tess57 

I sent you a friend request. Hope that's ok and hope you are well x

Hi Mad,

Thank you, I'm ok I think. Had my first chemo on Weds. Had a bad reaction at first, but they stopped it gave me more medication and restarted it half hour later. My body then tolerated it better.

First couple of days was ok and I've had no sickness as yet, but my body and legs are all aches and pains now. Very fatigued at the moment as well. I'm hoping it will get better over the next week. Just trying to take each day as it comes and dealing symptoms as they come.

Am having 4 cycles in total, every 3 weeks. Then 3x  Brackytherapy.

Thinking of you as you will have your next chemo this week l believe.

Hope all goes well for you.xx

Hi Tess57

So good to hear from you (I wondered how you've been as you nit been on here lately)

I understand it  takes time to process everything  that is happening or going to happen to you. Its not an easy ride. 

I had a reaction to the Paclitaxel just like you and tbh it frightened the life out of me as my heart was pounding my face went bright red and felt numb. The staff got it all under control and informed me it does happen sometimes and when they said they would try again 45 minutes later,  I had faith in them that it should be OK and it was.

Bless you the pains in the legs do go away after few days and the last 2 weeks I have felt pretty normal after the rough days and am now very well.  I've managed to do everything I normally do.  Hope this gives you some encouragement,  I must say I'm not really looking forward to the next one but I'm telling myself that my body will recover quickly because it recognises the medicine this time, pitive thinking  Can I ask why one 4 sessions when I was told its six normally unless it gets too much,  so I'm aiming for six cycles and should finish the end of June. Are you using the cold cap to.minimise hair loss?

Take care xx

Hi Mad,

Glad to hear there are some normal day's to come. Today I'm feeling nauseous, but not too bad. It's very encouraging to hear how you are feeling.

Yes it was very scary when I had the bad reaction, I had the exact same symptoms as you and also put my faith in them to get it settled and they did very quickly.

My oncologist said I would only need 4 cycles of chemo. She said that's what was needed along with the brackytherapy.

Wasn't offered the cold cap, but it's fine. They mentioned a wig but to be very honest, for me I have bought a few nice caps and scarves, so when my hair decides to go, I will be wearing them. I already cut it really short so when it starts falling out I will shave it off.

I really hope your body reacts better this time round, thinking of you. Take care.xxx