I’ve had a biopsy & been advised it’s a CUP as my symptom is a swollen shoulder. Nothing else is showing anywhere on the various scans but now I’m really worried where or what the primary could be. What tests did you have? How long have you waited for...
Hi there, I've recently been told from the results of a biopsy that I have a secondary, had PETct scan this week so still waiting results of that! It's the waiting, wondering & uncertainty that is getting to me....... I'm not alone on this unknown journey...
Hi everyone, I am so pleased to have found this group. My husband was diagnosed with CUP in August this year. He thought he had pulled a muscle gardening and didn't contact the GP for 6 weeks in case the pain in his back abated. We went on holiday in...
I've just been diagnosed with secondary liver cancer but the doctors do not know where the primary cancer is. Hoping to learn more about the subject and to join in conversations were I can.
Hello - wow this is never a place I thought I'd be. I've been very unwell for two months thinking it was coil related turns out this had just got an infection. Never did I imagine I'd walk out of A&E with a cancer diagnosis that's spread with unknown...
Hi. Got told weeks ago that I have secondary liver cancer. Further tests were done to locate the primary last one was yesterday which was PET scan. This didn't show up any primary cancer. I have appointment with unknown primary cancer oncologist next...
Hi, I was diagnosed with an incurable cancer 21 months ago. Have had 2 rounds of chemotherapy and I’m currently stable in my diagnosis. I have many friends and family around me but yet feel so alone. I feel like I’m trapped in a bubble… others can come...
My husband is 56 years old and already has progressive rheumatoid arthritis. This diagnosis was about 9 years ago. He has been treated with immunosuppressive drugs for most of this time and Methotrexate. These drugs all fail after a while and then he...
My husband was diagnosed in November 2021 with CUP after having been ill since the June. He was offered a trial but unfortunately nothing in his DNA could be identified to profile so he went on and did 3 months of Gem and Cisplatin chemo of which the...
Hi Everyone, I was diagnosed with CUP 6th Jan. The secondary cancer is within 4 lymphs. Everything about CUP seems negative, I.e. incurable, treatment is redundant, 9-12 months to live etc should I resign myself to die or should I be fighting this...
