Anaplastic Thyroid Cancer

Your welcome, it’s so horrible not knowing, happy to help if I can, my mum was diagnosed July and passed away 12 September total 12 weeks, we had been seeing the gp with a couple of problems since may but he thought it was something else, they moved very fast when they found the mass, unfortunately it had encased the carotid artery so inoperable, at first said there was nothing they could for mum, said it would be weeks rather than months, mum had ten treatments of radiotherapy which seemed to be shrinking it but it wasn’t to be, mum had to stay in Weston park whilst having her treatment because after the first once it made her throat swell and there wasn’t that much space left, i helped care for mum all the way, at the end it wasn’t how we had planned she was taken into hospital with complications, her legs were swollen and she had to have a blood transfusion but they couldn’t save her, be prepared for your plans to change, mum had said she didn’t want to die in hospital but the choice was taken out of our hands, she wasn’t strong enough to move, I feel bad because it was how she wanted but I’m sure mum would have understood xx

I'm sorry to hear this my husband was diagnosed in September this year and was told inoperable as it had mastised to the lung and bones, he had radiotherapy which initially did shrink the thyroid lump, then had one session of chemotherapy and was very ill after, neutropenic sepsis in hospital for a week after, so have been trying to fight infection after infection ever since 10th November and today he is in hospital has been since Friday as has pneumonia and covid, he is growing new lumps daily and you can see how it's eating away at him,.if so awful to watch the love of my life being taken away piece by piece. Our Christmas is very different this year.

I am terrified of what is next as all is going to fast, I wish I could.slow time down so we could do more but is already so weak its truly hard, make the most of time hun  sending love and hope xxx

Thank you for sharing your story x 

I’ve been diagnosed with anaplastic thyroid cancer and been told I have 6 months to live! It’s so rare and aggressive it’s so Scary! No symptoms and I know that  you mean Dave when you say that people think we look normal and well! Had my first chemo doxe and cisplstin! Doing ok today apart from nausea! 

I can’t get my head around there being nothing to cure it! 

Hi I'm sorry to say my husband passed away on the 27th December unfortunately we are devasted his funeral is next Thursday, finding it very hard as feel lost and a massive hole.

Loz only had 5 months from when we first noticed and went to the doctors and yes he still looked so good and not ill bless people would question him in the first few months as didn't look like someone who had cancer! Not until November when he had chemotherapy then it all went downhill for Loz he had radiotherapy first and that wasn't too bad and did shrink his lump in the neck which made us think we had a chance, when he had the 1st and only chemotherapy they gave him the same 2 you mentioned but gave him a bigger dose as thought his body could handle it with being a big tall well built man, but he very quickly got ill and went into neutropenic sepsis, luckily he did get a bit better but he wasn't the same and he got infection after infection so couldn't even have any more chemotherapy as would kill him. So after our wedding and honeymoon we came home and it was on top of sorting things for the kids for Xmas time went quickly and then he went into hospital  on the 22nd December and as I said in my last message I was so worried that things weren't right 5 days later he lost the battle but he is not in any more of the awful pain he was in.

It is truly one of the worst cancers I have experienced time is of the essence I urge you to grab life and live as much as you can and make memories for your loved ones.

It's awful that it's not enough information or research of this cancer.

My heart goes out to anyone living with someone with this or themselves ️️️

Hi Rhian, that is a huge amount to get your head around and I’m sorry you’ve had this news. I wish I had more to offer you other than my support, if you need a listening ear or a rant or whatever, I’ll be here on this thread.  

Sending lots of love,

ElleB

How old are your kids? When did you tell them it’s incurable?

My children are 26, 14, 12, and 9, and were almost totally honest with them and by that I mean we told them it was a thyroid cancer that had spread but we held back on telling them there was no cure! But as time was moving quickly by the 2 months before we had another conversation with them about not being able to have more treatment as being too ill hun, I thunk they knew deep in their hearts and it did prepare them for that day I had to tell them their dad had gone to be a beautiful angel and will now watch over us all and keep us safe. 

If there is anything else you want to ask then I don't mind as is good to talk hun take care mandy x

I’m so sorry for your loss, sending love and hugs, it is an awful cancer, I still miss my mum so much xx

Hi I’m so sorry you have this awful cancer, please spend as much time making memories with your loved ones as you can, sending hugs xx

Thank you and the same sorry for your loss, I also lost my mum not to cancer but also lost my dad when I was 12 to brain cancer it's not nice losing any one is it hun x