Hi, MTC diagnosis with spread to lymph nodes. TT, chest and bilateral neck dissections 6 hr op, 5 weeks ago. Consultant said he was confident he got it all, which is brilliant news of course (so I feel guilty even posting this) but I just wondered if anyone had a similar experience? Even 5 weeks on I feel like I've been hit by a bus! Both shoulders affected, one I can hardly move in so much pain, so struggling to sleep, shooting nerve pains across chest and neck, and feeling like someone has their hands round my throat constantly. Does that get better? I saw the consultant 2 weeks ago and he said he was happy with my progress but I'm just still not clear on how long that strangled feeling lasts. I'm doing neck massage and exercises they gave me and have been referred to physio for shoulders but no date yet. Any other similar experiences to give me a bit of ongoing encouragement would be appreciated. Thank you.
Hi there, thanks for your message! That's really kind to get back in touch. Did you get your awaited scans and blood results back yet?
Unfortunately still got the same strangling. It's unbearable some days! Seeing consultant end sept so I'll have to see what he says this time.
Got physio referral through at last, started that and already seeing some progress with arm movements which is a relief but an awful lot of pain still, through my back too, which must be taking up the posture strain I guess. Must keep telling myself what a major op it was and how long it takes to heal and everyone is different!! I really hope this isn't the "new normal" yet! Fingers crossed. 
Medullary Thyroid cancer dx May 2023
