I was diagnosed in 2019, had my first partial thyroidectomy in Oct 2019 but they discovered it had spread to neighbouring lymph nodes so had a total in Nov 2019.
I have been on 125mg of Levo since and until beginning of this year I have had normal checkups. My bloods have come back, abnormal for the last 3 tests. Alkaline Phosphate being in the above normal range. 160. They have now said my Thyroid levels are too high and I need to reduce my Levo to 100mg. This was over the phone so I have not actually since a Consultant since May of this year and that appointment was over with before I knew it was over.
I am under Guys of London.
I have had so many other issues that are all being treated as separate and I never know whether they are related or not. I was fit and well before all this and never saw a Doctor, never taken any medication and never been in hospital other than having my children.
If anyone can give any advice I would be so grateful.
Hi there . i am sorry to hear your story , your definitely not on your own . Now i was diagnosed 3 months ago , i had my surgery 4 weeks ago , i never ever been in hospital as well been always fit and healthy , give birth to 2 children age 11 and 9 now .i am isolating at the moment and i am on a diet as well ,first of October i am having radioactive iodine treatment and have to stay in hospital for 3 nights .I do know how you feel . because i still get emotional of my news when they told me i have thyroid cancer . and i have been in and out of hospital for the past 3months and i had enough . I take Levo 125 mg as well , and make shore i do take them in the morning as i never take any medication not even for when i have bad headache, and i do find et unusual at the moment , because even my self i don't know how fit i am and healthy , but have to leave with et thought . You have mention since May you haven seen a Consultant , have you try contacting your GP talk to them , or right a latter to your nurse or Doctor.
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