Thyroid cancer, total thyroidectomy and 2 radioactive iodine treatments but thyroglobulin again have risen

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Hello, 

I wondered if anyone has been through this before. I was diagnosed with thyroid cancer in 2022, and then had a dose of RAI then last year I had to have another dose which was higher than the last. Levels seemed fine up until last month when the oncologist said my levels have risen again. It seems the RAI isnt working and im booked to have another scan of the neck. 

Has anyone had this before and if so can shed any light on what will happen next in terms of treatment or what is even happening. 

Thanks feeling very anxious. 

  • Hello  

    I am Brian, one of the Community Champions here on the online Community. I have just noticed your post has gone unanswered. I can't answer it myself as I have a different cancer however by me replying your post will be "bumped up" to the top of the page and I hope seen and replied to by other members of the Thyroid Cancer group.

    One thought I had was one of our Cancer Nurse Specialists may well be able to answer your question and here's the link you need to ask them:

    Ask a Nurse .

    I do hope you get the information you need.

    Best wishes - Brian.

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