back home after having both testicles removed

Hi Darryl

Sorry to hear of your plight!

You have joined a fairly exclusive club of guys who have lost both their testicles. Most guys lose just one testicle and, of those, only 2% go on to lose their second.

I lost my first 20 years ago and my second in June (aged 43). I have some idea of how you must be feeling although to lose both at the same time must be a huge amount to deal with, mentally and physically.

Can I ask...

How old are you?
Did the docs discuss fertility/sperm shortage before the op?
Have you been advised about teststerone?
Did you have prosthetic testicle (s)?

As far as the cancer goes, the biopsy results will tell you if you need any further treatment. Hopefully the disease was contained.

My main advice would be about testosterone. Your body will no longer be producing any natural testosterone so you will need TRT (testosterone replacement therapy) asap. if you start feeling down, moody, low, irritiable it will be because you are suffering from low testosterone. If the docs haven't got you started on TRT, then contact your urologist or GP and get a prescription for some Testogel, which you apply daily. I can't stress how important this is.

Kind regards

Jason

Hey Darry

Sorry about the news of both buddies leaving, your not on your own, my two mates were taken away also, very sore to begin with but you will heal and although having some issues at the moment with the testosterone and endocrinologist it will settle, I had to adoptive mates now and they seem to be ok and settling in well, my right one seemed a little time to settle, but hey were mates again lol 

had mine at the MRI, so your not to far away from here I live in higher broughton, so anytime you wanna chat, email me and I will see what I can do with advice or anything.

Hope things settle soon mate

Mark 

Hi Jason I am 50 and the surgeon who did the operation did not think putting fake testicles in was a good idea due to the possibility of them being rejected. As far as testosterone goes I was told they will discuss that in three weeks when I go for the test results. Is it normal for  scrotum to be large it is very bruised and feels lumpy and sore I assumed this would be normal. I guess I feel very scared and still in shock with everything thank you for your message. Darryl

Hi Darryl

I had no problem with bruising/size of scrotum. The incision scars healed up fine each time. Just don't have a bath for a week or two. plus frozen peas are good for the scar area as it can swell up around it.

Very surprised they are making you wait three weeks for testosterone treatment. You'll need it NOW and once you're up to it I would chase this up with your consultant or your GP. Your case is extremely rare. Bilateral orchidectomies (both nuts removed) are not performed very often and what I've discovered in recent months is that there is a lack of knowledge among doctors about hormones and testosterone. This will probably become apparent to you as time goes on.

As for prosthetics (fakes) this is a very personal choice. Some guys like them. Some don't. You can always have them put in later...

Any more questions just shout up or email privately if you prefer.

Cheers
Jason

Hi Jason I will think about getting to the doctor early this week when I can move a little better and hopefully he might get me started on some testosterone I will get him to check my scrotum to I might be worrying over nothing but again I still feel in shock over the whole situation. 

Thank you JasonDarryl

r 

Dont worry pal.

In the long term everything should be fine. In the short term I'm sure there will be some challenges for you to overcome.

For the record, I am feeling great and it's only a few months since my treatment. I can cope fine at work, I run three times a week an, erm,  everything works fine in the bedroom dept.

As others on here will tell you: if you are going to get cancer, this is the most curable one to get. 98% cure rate.

Cheers

hi Darryl

advice has to be speak to the doc. if you've any concern, but I had a lot of bruising - on the scrotum, and around the incision. Two incisions - ooh - take it really easy.  there's nothing to do other than sleep on your back, and wear nice, loose fitting trousers (I'm thinking you probably worked that out that already).

onwards & upwards - there's hurdles still to jump, but you just went through a huge step in getting your life back.

all the best

Hi, just had doc on phone, he told me my bloods are abnormal. Had one removed 10 year ago.   I am terrified. Don't think I'm mentally strong enough to gave other one removed.

Hi Blondo,

Sorry to hear that after all this time that surveillance has shown something, but that is what surveillance is for - to catch things early. What was the diagnosis and treatment last time? do you know which blood result is abnormal?

TC, even second time around, is extremely treatable, but the treatment may depend on what you had last time.

Is it the thought of more treatment, or the orchidectomy itself that is hardest to deal with?

I feel for you mate,

Greg

Had one removed 10 year ago and now face the other one being removed. I'm walking about a field tears in my eyes.