Surveillance. Relapse?

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Hi guys. I would like to ask some basic questions about how often you attend surveillance after being given the clear. I had surgery 2 weeks ago and have just been told that they got all of it out and I will not need to undergo any chemo. I will now be going straight on surveillance. How often are these appointments and what do they consist of? Also what are the rates of relapse of people in my situation? Obviously I'm going to be positive and confident that it will not return but just have that question on my mind. 

  • Was it very painful? I’m hoping they can do the spinal injection while I’m asleep which is possible said by anaesthetists. My surgery will last about 3 hours or more they said as they need to remove some of my lymph nodes to my right groin and leg. 

  • I just got put right under. Woke up later and sent home within a couple hours. The pain isn't excruciating but i think it could be if you moved too much too quickly. Just be slow and take small movements. 

  • So are they giving you general and the spinal nerve block? I just had the latter so was awake throughout. 

    My recovery from the op was very fast. Up and about the following day and pretty much moving around as normal 3 days later. I know others have taken a bit longer. The lymph nodes might make a difference I guess. No real pain. Just the scratchy sensation you get when wounds are healing.

  • Has taken me 2 weeks to get back to some sort of normal movements. Can go out and about walking again. First 4 days for me I was still pretty much stuck in bed bar from the odd trip to the toilet or kitchen. The one thing that stands out most to me now is the burning/pins and needles type feeling down the side of my ball and inner leg. Pretty constant and someone annoying

  • I think that’s what they are planning to do. And I was advised that it could be a 3 night stay at the hospital. When you had a spinal injection did they put a cream or inject you a local anaesthesia before they put the spine needle?

  • I was sat on the edge of a table leaning forward with my head on a nurses chest to keep me steady. I think they placed a kind of plastic self-adhesive guide where they were injecting before they actually put the needle in.  I didn't feel anything at all.

    It sounds to me like the lymph nodes makes it a considerably larger operation. I mean in terms of incision size and number of stitches - not risk.  My op wasLeaves about 45 mins, so I guess yours is basically what I had and then an additional procedure.

     

  • Hello, it’s been five days now since my operation and I was sent home just yesterday. Just to share what I have experience. I had almost 3 hours of surgery and woke up at CCU without any pain as they did a spinal anaesthesia to me that wasn’t too bad really. But I suffered with a lot of pain the day after with my abdominal drainage until they removed it 3 days after the surgery. I had a lymph nodes removed on my right groin and leg and right testes with a very long scar from my right lower abdominal groin to my right thigh. They did a dissection of lymph nodes too on that area. As of now taking my codeine for pain as it is painful to walk around hopefully this pain will go soon. 

  • That sounds like a much bigger operation than most of us go through.  I'm glad you're home now, and I hope you have a speedy recovery from here on.

    Best wishes

    G

  • Sounds like a quite an operation you’ve had. Good luck with the recovery! 

  • Thank you so much!