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Hi, I'm putting this here as a marker for anyone else diagnosed with this sub-type of t-Cell lymphoma. If you, or someone you know, is diagnosed with this sub-type, please comment here, and please read my biography. I have, and will try to continue...
Hi. I’ve recently been diagnosed with mycosis fungoids after years of being told I just have eczema. I don’t have much information on treatment or what stage it is so far as it was only confirmed in the last few days. I had an ultrasound which showed...
Hi All, Some may know me from the other group. Recently Diagnosed with Mycosis Fungoides. I have a issue of itching and really extreme painful skin. It's not everyday but today is a bad face day (it's mainly my face) Anyone else have the same...
Welcome to all those who joined us over the past month. We are so sorry that you had to find us but you have found a supportive place where we all understand what this blood cancer journey is like. We are a rather exclusive group of people and with...
Hi I joined this group today as yesterday I just broke. My husband went into hospital on Dec 6th was diagnosed on the 10th and they started his chemotherapy (CHOP 14) 5 hours later. He has been in hospital since then as there have been numerous peripheral...
Hi I am female, 51 years old and in the midst of trying to get a diagnosis. I saw a dermatologist for patch testing due to itchy hands (which revealed nothing) but the dermatologist's eagle eyes spotted my chronic rash on my trunk and immediately thought...
Hi, my son has been diagnosed with possible T Cell lymphoma. It has been a long journey for 6 years. He first was seen by hematology for enlarged lymph nodes. He had several very large lymph nodes taken from the groin and under arm . He has small lymph...
Hello Group, My Dad has been diagnosed with Angioimmunoblastic lymphoma today. Could anyone shed any light on his prospects? He is 84, frail, but is due to start chemotherapy this evening.His mental state is up and down, due to low sodium levels. I...
Hi, My dad has suffered with undiagnosed T cell lymphoma for 10+ years. His skin has been red, rashy, sore and most recently weeping. He got taken in to hospital around 9 weeks ago because he was dizzy and couldn’t stop being sick. His eye sight was...
My husband (aged 61) was diagnosed with Sezary syndrome on Friday. To say it was a shock is something of an understatement. He went to see a dermatologist privately, who was provided by his company’s insurance. He went with an itchy skin and was bluntly...
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