Survival rates

Thanks Michele,

Did you have post op chemotherapy or any other treatment? 

How is your health now? X

Just read through your reply, chemo has been mentioned to ne after surgery. Looks like there is no two ways about it. And I was told I might go into theatre not long after surgery been told. 

Am already loosing some hair due to chemo but been told will grow back tbh not fussed I was going bald anyway. This experience has kind of lwft me defeated I just have enough fight left in me hence trying to draw hope and inspiration support from folks. Am damn scared I put a poker face everyday for people I love and not want to scare. X

Yes I had 4 rounds of FLOT before and 4 more after my operation. 
My health is really good thank you… Only thing I suffer from on the odd occasion is Dumping Syndrome, which you will be advised about after your operation… 

I have read about that, but am sure I will cross that bridge soon. And Amen to the good health by God's grace it only gets better.  I am dreading having no stomach at all, thats my only fear tbh

It is a scary thought… I forget every now and then but it’s ok to not have one… I just think it saved my life… be strong! 

I would say everything that Michele has already said. I had total gastrectomy in April 2025. 

The simple fact for me is have total gastrectomy or not be here. 

I am in remission and take everyday as it comes. Yes, you do have your down days but looking at google etc just doesn’t help. 

I looked for 5 mins then stopped and used my strength and mindset to fight the cancer. I had kidney cancer when i was 3-4 years old, so wasn’t going to let it beat me again.

I have lost weight as expected but apart from when i first had TG then when on  post surgery chemo it has come off steadily. About 3 and a half stone so far.

Please take care 

michelle x

Sorry for the delay in replying and I understand how worrying your situation.

I had a total gastrectomy in February 2021 and I have just had my final appointment with The Upper GI team at the hospital.

Apart from not having the appetite I used to have and a change to my eating habits I lead a normal active life.

I would like to send my very best wishes for a long and happy life.

Chad1