Survival rates

I had Signet Ring Cell Carcinoma in the lower part of my stomach seven years ago. I too googled it and wished that I hadn’t! 
Statistics are not helpful as you are an individual. There are others on this group who had a similar diagnosis and responded well to treatment. 
It’s good that you are recovering well from surgery as it does take time to adjust. 
Waiting for results is very stressful! I found it helpful to focus on the things that I could control as I couldn’t change what the pathology was going to be! 
Good luck x

Thanks for sharing and all good vibes and good news belief

I was diagnosed with gastric adenocarcinoma with signet ring morphology been told it is aggressive at T3 N0 M0 been told full stomach removal after chemotherapy and yes the 5 year survival rate is my biggest fear, please help me with this journey and some experience. I habe always loved food and I work as a community carer (used to) 

Thanks for sharing, your message gave me hope! 
I am trying to stay positive and focus on other things but this is getting harder, I feel all I have done is wait for results and whilst I know the tests need doing, the psychological and emotional stress this causes is difficult to deal with. 

I had 75% of my stomach removed 3 weeks ago and I am on a strict soft diet, I was very surprised at the amount of foods I can actually have. There isn’t many options in the way of a meal as such, however I have found that I am better with snacks and little and often. 
Good luck on your journey x

My prayers to you and family, I have been told to expect total gastrectomy. My world torn apart. I a have been trying to find someone who has had Total gastrectomy to find out their experience.

Thanks again God bless you 

I should imagine the recovery is quite the same. 

I found that every little movement caused pain at first, however this does ease. Eat little and often as everything needs time to heal. 
Ask your healthcare team if you will be eating or if you will go on a TPN diet (I was on this prior to surgery via my pic line) 

I work as a district nursing sister so I can offer support and guidance with medical terms if you are struggling, please feel free to contact me. 
x

Good afternoon.  I had a total gastrectomy (robotic) in June 2025 so still recovering.  I had NO pain from actual surgery.  I have lost a significant amount of weight which I am struggling with.  I was a size 14 and now a size 6.

You will feel extremely weak and tired and wont be able to walk far or stand for long.  Gradually you will build up your strength.

Eating :  tiny portions to start with.  I was sick quite a bit but that was due to eating cream/sweet foods.

I am now experiencing hair loss which apparently is common 6+ months after surgery.

There are days I feel a bit sick but that is usually due to foods I eat.  I can't eat cream, nuts or spicy foods.  My portion size is decent now and will keep increasing.

I am getting Counselling to deal with my weight loss as I do look skeletal.  I am in touch regularly with my Dietician so need to take supplements.

You will get there as I am "feeling a bit more normal now" so that is just 6 months post surgery.  I am determined to try and put on a bit weight this year.  

I am in the process of moving house in 3 weeks so once I move I will start supplements and have a proper look at my diet.

Please try and not worry as you will get through it.  Get in touch with any questions.  Take care, Shirley X

Wow Shirley, you really are battling on. Moving house as well as all you’re dealing with! 

thank you for the information and recovery notes, it’s so difficult to know what is normal and what should I be concerned about. 

I have develop an infection in my wound but the district nurses are caring for this, so I should be healed soon. 

I totally understand the feeling of tiredness and not being able to stand for too long, my poor daughter is having to shower me as I just cannot manage alone. 

have they said if you are having chemotherapy when you’re healed? The surgeon did mention it to my daughter but as of yet I haven’t had any histology results so everything is still a bit up in the air! 

x

Thank you very much and that is positive and encouraging news, am currently trying to put on weight before surgery that is a feat in itself am currently 86kg dropped from 88kg. However a the start of my diagnosis I was around 76kg.

Am more scared of surgery than owt, coming from a athletic background playing rugby, gym its been a shock denail for me am struggling to talk to anyone if I am being honest. I hope its not for long I need family and friends my partner has stick with me thick and thin love her to bits. I send and manifest positive thoughts to u and myself and everyone else going through this brief stint I like to say x

Hi, sorry to hear you need a total gastrectomy… I had one in 2022. I had stage 4 signet ring.  It’s a struggle to begin with and weight loss will happen. I am now fit and well. I can eat and drink anything in small quantities but it’s going well. 
If you need any advice just let me know. I have seen quite a few people have now messaged with their experiences too.. 

Just remember don’t be afraid to ask your health team for advice before and after, write down questions when they’ve popped up in your mind as you can get overwhelmed when you speak to them. 
Take care 

Michele