I was diagnosed with adenocarcinoma GOJ in December. I presented at the doctors as I had noticed an occasional problem with my swallow. I had an endoscopy followed by a CT which confirmed the presence of a submucosal tumour at the GOJ. I then had a PET scan. There was no sign of metastatic disease and a tentative plan was put in place for chemotherapy followed by a total gastrectomy and further chemotherapy. Unfortunately at a staging laparotomy a spot was found on the liver and evidence of peritoneal disease present. I am told that this is now inoperable and incurable. I have been offered palliative chemotherapy - CAPOX. I am on the 2nd cycle.
I am a divorced mum of 4. My youngest is 17 years old and lives at home with me. I have 2 granddaughters aged 3 and 3 months. I worked as a Palliative Clinical Nurse Specialist - I have had to stop work. I have to admit that I am struggling emotionally which is my main reason for joining the group.
Thank you for reading.
